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plumbago

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by plumbago

  1. plumbago
    Ok, @Salomon - one thing I've learned, is that doctors are not fond of ordering blood tests unless they know exactly why they are ordering them, so that may explain the lack of action on your doctor's part. (It may, not necessarily does.) There are good reasons for this. If you feel the high cortisol is significant, then I would do more research and...
  2. plumbago
    Cortisol is tricky to measure given how much it fluctuates. I've never seen it ordered on routine blood tests, which makes me wonder which doctor ordered it and the reason he/she gave you for ordering it. High cortisol may explain the lack of sleep which in turn can explain high cortisol and round and round we go in a vicious cycle. I'm so sorry. Curious...
  3. plumbago
    Excess of folate and b6 can cause peripheral neuropathy.
  4. plumbago
    I commonly see high platelets in people who've recently had surgery - this is common. (I'm a nurse.) If you have rheumatoid arthritis, you can also have high platelets. And there are other conditions. Others on the forum may have heard of bowel inflammation leading to high platelets, but I haven't. Editing to add: Do you have any other abnormal...
  5. plumbago
    High platelets can be a sign of inflammation. There are many other reasons for a high platelet count. What other evidence have you found to attribute high platelets to the inflammation - of Celiac, I assume? And have you done a recent Celiac panel? I would be more secure in interpreting a high platelet count the way you do if at the same time something like...
  6. plumbago
    I would like to see the exact name of the test you refer to as "gliadin IgA and gliadin IgG" before commenting more. We would also need to see the references ranges for every test you reference. As for what you refer to as raised Ttg Iga, I think that might indicate short-term immune response, indicating ingestion of gluten 2-4 weeks preceding the test...
  7. plumbago
    In terms of the clubbing shape, how it happens is actually a complex process. But usually nail clubbing occurs as a result of deficiency of oxygen to the body's tissues.
  8. plumbago
    @Tash1 you are welcome! And good luck on Tuesday. It is worth a try to ask them to draw blood for the Celiac panel right before your procedure - they'll be putting in an IV anyway, might as well. (Honestly, it's almost irresponsible to go straight to an EGD for Celiac, without testing for antibodies first.) Alternatively, if you are really determined...
  9. plumbago
    I would try to eliminate shingles as a possibility. Likely it's not, since you said it's not just one leg, but both if I read correctly. Shingles doesn't often happen on the legs but it can. If you are in the US, and in a decently sized city, find out which group holds the Medicaid contract and go to them. They often will see people without insurance...
  10. plumbago
    @Tash1 why don't you go ahead and ask for a celiac panel to be drawn before you get the endoscopy? That way you will have more information coming out of the EGD (endo). For example, if you test positive on the blood tests, but negative on the EGD, you will know that, more likely than not, you have celiac and you need to start eating gluten-free. If you are...
  11. plumbago
    When there are others in my household, everything's gluten free. I do both - hand wash and 3-4 times a week use the dishwasher. But at work, I sometimes eat in our dining room if the person cooking has assured me there are no gluten containing ingredients (this is about 2-3 times a month), and so while the occasional meal may be gluten-free, the kitchen...
  12. plumbago
    Yes, you can - but I would strongly encourage you to do so in a way that your name and date of birth (and any other identifying features) are omitted from the screen shot. Just copy and paste your results and save it to your desk top or something, then insert it into a reply here. But again, do it in a way so that your identity is hidden. From your original...
  13. plumbago
    Talk to your doctor about Paxlovid within five days, or Remdesivir. You would have to use google, or email the manufacturers (or call them) to find out if there is gluten in either of these medications. There are other treatments available, but we are not MDs here, and more specifically, not your MD, so as always, we advise that you talk to your doctor. ...
  14. plumbago
    While you're still symptomatic and hopefully while you're still eating gluten, go ahead and get the complete Celiac (blood test) panel, and then you can think about discontinuing gluten to resolve the diarrhea.
  15. plumbago
    Maybe someone can help me out here. The above article states, But my understanding is that "the density of intra-epithelial lymphocytes (IELS), which are white blood cells found in the immune system. More than 25 IELS per 100 epithelial cells is significant. Epithelial cells line your intestines and act as a barrier between the inside and the outside...
  16. plumbago
    Quite extraordinary @MarNar. I would have suggested you see a nephrologist, but quick. Glad things normalized for you. Celiac is an intolerance, not an allergy, to gluten, but your point admonishing doctors to test such things is well taken. Congratulations.
  17. plumbago
    FYI, I hear Grindstone Bakery (Calif) is opening back up / staying open. https://mailchi.mp/grindstonebakery/meet-the-new-owners?e=981f5db34a
  18. plumbago
    I think by "gluten challenge," you mean you are now eating gluten in preparation for another Celiac panel test (or was it the endoscopy)? In any case, make sure you get or got the full complement of Celiac serology tests, not just one or two. For me, it unquestionably has helped to receive an official diagnosis, it has simplified the plan for me...
  19. plumbago
    I meant to reply about that - I had both positive serology (celiac panel) and positive biopsy, so my situation is not exactly like yours. Were you eating sufficient gluten at least 2 weeks before the celiac panel test? There are other situations that can lead to degraded villi and IEL. Are you taking any medications - or, were you, prior to the EGD?
  20. plumbago
    I had this, minus the SIBO - that I know of. It's possible that my gastros at the time either didn't know much or think much about SIBO, I just don't know. How are your liver enzymes? Did the doctor palpate your abdomen? Can you get the complete report? If you are in the US, you are entitled to see exactly what the doctor wrote, with a new law passed in ...
  21. plumbago
    I don't know, and I've never heard of wheat-free rye bread. But if you are celiac, you shouldn't eat rye bread, even if it is wheat-free, I would guess. Plumbago
  22. plumbago
    I don't know @yuluyouyue, it seems fairly well-established that (untreated) celiac disease can predispose to infections. Take iron deficiency anemia. This is not as obvious and straightforward a cause of moderate disease resulting from infection as neutropenia (deficiency of white blood cells) is because it is both a cause of and result from infection, but...
  23. plumbago
    Yes it's possible, but I'm also thinking you already had Celiac and that could have pre-disposed you to so many infections and moderate disease. I also work in healthcare, I have controlled Celiac disease, and to my knowledge I have not been infected with the SARS 2 coronavirus. I do mask fairly diligently. Plumbago
  24. plumbago
    @herminia none whatsoever. The croissants were delicious. Would I do it again? If I verify that it's ok, but I need to learn more about it.
  25. plumbago
    Yeah, @RMJ it was quite shocking to read "wheat" as the first ingredient! I kind of couldn't believe it. Thanks for weighing in.
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