plumbago
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by plumbago
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I'm a little surprised I didn't read the back of the package until I had already consumed all the croissants, but for ingredients, it lists: Wheat* starch, water, vegetable palm of egg, and so on. The * has: The wheat has been processed to allow this food to meet the FDA requirements for gluten free food. What do people think of this? Plumbago -
Hidden Sources of Gluten?
plumbago replied to ac5858's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I've gotten aptheous (spelling?) ulcers in my mouth - but it's been a while. It may have been due to tomatoes, sugar, or something viral. I was never really able to nail it down for sure. I did change to a toothpaste without SLS. For the most part, everything I did (new toothpaste, trying hard not always successfully to reduce sugar) -
I agree with Trents @MiahL, and you should probably proceed as if this is a clear cut case of celiac disease. I just can't believe the way things are done, sometimes. Maybe I've just gotten lucky with my 'scopes and biopsies. But because I'm a bit demanding and neurotically focused on details of my diagnoses, I would kindly request to see the actual biopsy...
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Not necessarily. Especially if we know that 1) blunting is not uniform; and 2) they only took one biopsy. I would like to know the language the pathologist wrote, @MiahL if you can find the report and then type those words in.
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I was a little confused about the villi blunting and then the biopsy being negative, like @trents. The only thing that occurred to me was that on visualization only, they could see blunting. If you have the biopsy report, can you type in the language they used? Because that's the missing key here.
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Thanks @Scott Adams. Yes, I have gone back and forth many times on this. Podiatrists I've consulted say I'm not there yet. And despite the complaint above, I am managing it pretty well. However, there are several complications that can happen, like in my case, my big toe not being able to function in its weight bearing capacity due to the bunion, so my weight...
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I wish my foot pain would go away since I'm on a gluten-free diet, but it hasn't. I have bilateral bunions and a neuroma on my right foot. I also can have foot pain on waking in the mornings, that goes away a bit (as someone upthread commented). Plantar fasciitis and tendonitis are not the same thing, btw. Plumbago
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I took thiamine somewhere in 2020 or 2021 but for a few months only. Then I stopped. I started a full face mask much later in December of 2022. Changing to it was mostly a matter of comfort. You wouldn't think so, but the full face mask is/was more comfortable than the nasal wisp. As luck (or something) would have it, my supplier called the other day and...
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@knitty kitty Thanks! I sort of suspected you would recommend thiamine, based on some of your experiences, which makes sense, and honestly, if that's what it is, I gladly say pass the bottle! But I'd like to know for sure I'm deficient, first. And IIRC, testing for that b vitamin isn't the easiest - most b vitamin tests are a bit complicated. Actually...
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Thanks Jill! The ophtho did a huge range of tests and examinations. Meaning, my eyes were subjected to dilating drops many times as he looked at them through the "slit lamp" many times. He seemed like a knowledgeable professional so if I had uveitis, I feel like he would have spotted it and told me and/or included it on the discharge paperwork. He did mention...
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It was, but being in the ER esp for 12 hours is one circle of hell I do not wanna repeat any time soon. Props to staff there that still remain - real pros and am always appreciative of the polite ways they can find to ask people to wait, because that is what 95% of people do there, wait. You are so bored/frustrated - and it draaaaags out for so long, that...
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Hi all, Yesterday I spent about 12 hours mostly waiting in the ER for what turned out to be a hyphema. In my case, an arteriole in my left eye was leaking RBCs. It affected/diminshed my vision (cloudiness, fogginess - both of which were very annoying), there was some photophobia and mild discomfort. In terms of causes, I was asked about trauma (none...
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Sometimes we try to tease out associations or causes where there are none. Add in the fact that lab results can change a lot from one draw to the other. Were you perhaps a bit dehydrated before the blood draw? Did you have your 'scopes done yet?
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I'm so sorry, Libby. I hope you don't lose your teeth, and with some interventions, you should not. I used to have bleeding gums. I'm not sure of they relation if any to celiac disease, but once I started flossing regularly, the bleeding stopped for the most part. A rough floss can draw blood, for sure. Now I use the waterpik, because Glide dental floss...
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I would be very surprised if this were scurvy. The NHS web site says: But one never knows, I suppose. Gingivitis causes inflamed gums which can cause them to bleed.
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There may be a lot of contaminants and chemicals in the mixture that they use. I would be very careful.
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I'll try to answer one of the questions you asked which is, if I'm reading correctly, if you're getting a colonoscopy already, should you go ahead and get an endoscopy. Generally, people get a colo every 10 years. In my case, I did go ahead and get the endoscopy (and biopsies, IIRC) with the colo. You might as well, is my reasoning. It's a big deal to fast...
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With smoking it was (and still is) a massive publicly funded education campaign; regulation; withholding of federal funds to the states unless they enacted restrictions. It was massive federal involvement (including lawsuits) and it is working. You do not need to be wealthy to eat healthy. No. But it helps. And having a little bit more helps. Many came to...
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Of course I meant what I said: food deserts; 'deserts,' as in the Sahara. The spelling is correct 😀 What I mean is - and I'm not sure, but we may be talking about two different groups of people (those dx with Celiac, as in the participants here, and those suffering from metabolic diseases, the people I work with who are primarily on public health in...
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You cannot categorically say that with any accuracy, @trents I work day in and day out with people with metabolic disease. I've done education on this. There are truly things like food deserts. And there are things like government regulation. The celiac community is compared to the people I work with, very wealthy. People who have economic means...
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I'm actually not so sure I buy that last part. We are marinating in a soup of highly processed carbohydrates. They're plentiful and they're cheap and often the only thing people can afford. It's a mix, at best. But not all countries allow their food industries to get away with what we in the US allow ours to get away with.
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Hello, I also tend to think that given your positive blood tests and some flattened villi, that you more likely than not have Celiac. The only question I have is what is meant by no "increased IELs?" I know IEL is intraepithelial lymphocytes but where does the increased come from? Increased from what? Have you had biopsies done previously? Maybe I'm...
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Not sure if I’m coeliac
plumbago replied to Laurak11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello Laura, So sorry to hear about this. There's really no way for us to zone in on what your symptoms add up to with exactitude, but we can endeavor to ask questions and support you in other ways. I myself have recently experienced the feeling of having something stuck either in my throat or mid-chest/sternum (basically my "craw"). I am fairly... -
If you mean your very normal hemoglobin level - absolutely not. There's no way to tell, just looking at that, the first thing about cancer. The only abnormal reading is the IgA gliadin. Everything else is normal. I would keep eating gluten and then retest. They say only one negative test result indicates Celiac. But me in your shoes, I'd repeat the panel...
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Happy to help, but we need to see the reference ranges which should be in your report.
