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plumbago

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by plumbago

  1. plumbago
    Hi Max, In my research I have found that avoiding sugar is a fast-track way to improve health. And I've found this to be true for me personally. The key is staying away from it for the long term. I find I can do it for 2-3 months at a time. Which is not bad, and not to be dismissed. But then I will eat it (attempt moderation) for the next few months...
  2. plumbago
    Hi there, I'm a nurse, and not crazy about your handle! but let me offer you a few generalities that may or may not help. It sounds like you have a lot going on. The coldness could be thyroid issues - you would need to get lab tested for that. You should probably be checking your blood pressure every day or every other day. From what you describe, it could...
  3. plumbago
    It doesn't matter what caused it. If you are losing that much fluid and electrolytes, yes after a while it can be serious and you need to go to the emergency dept right away.
  4. plumbago
    Hi Everyone, I'm picking up a thread from a couple of years ago because I would love to hear from some of the participants here, specifically about symptoms of GERD. For the last 2-5 days, I have felt like something is sort of stuck in my throat (superficially, not in a major way, more of an annoyance) or lower down, in the esophagus (middle sternum...
  5. plumbago
    Most on here will say yes, to continue eating gluten containing foods. I would also advise that. There are links on this site advising you on pre-EGD prep, but there's also this. https://nationalceliac.org/celiac-disease-questions/diagnosing-celiac-disease-after-going-on-a-gluten-free-diet/ Good luck.
  6. plumbago
    Just youtubed it. LOL!
  7. plumbago
    Good article in today's NY Times about "shrinkflation." https://www.nytimes.com/2022/11/26/climate/fighting-shrinkflation-consumer-products.html
  8. plumbago
    Ok, so you've had an EGD and biopsy. You have every right to look at the pathologist's report - indeed that should have been handed to you, along with pictures. This is, in my experience, across the board standard. Get that report. It's yours.
  9. plumbago
    My bread options are not endless. My go-to was Canyon, but their price is now about $1.50 more than Udi's, so now I have to eat Udi's. But - has anyone checked out the size of their pieces of bread lately? Man, are they getting stingier.
  10. plumbago
    I used to eat their pancake (mix) a lot, but no longer do. I had no reaction when I did. Maybe you're reacting to one of the ingredients / additives - like xanum gum, maybe?
  11. plumbago
    It's getting ridiculous. Sad to say, Canyon is my favorite commercial brand, but due to its increased cost lately, I'm buying Udi's (about a dollar less).
  12. plumbago
    Quick question: What was the result of the biopsy they did for h pylori?
  13. plumbago
    Thanks @DeannaM. No, it hasn't happened to me, and if it's a complication of celiac disease, I haven't heard it expressed much on these boards. However, if you are vomiting regularly, that could be a big contributor to electrolyte abnormalities including low sodium. I'm not sure what level your sodium was, how severe was the hyponatremia, but it sounds like...
  14. plumbago
    Can I ask again what diagnosis you left with when you were discharged from the hospital?
  15. plumbago
    Me in your shoes, @WhatsTheDealiac, I would definitely retest. I quickly looked up the test you took and see it measures blood from a finger stick. I just don't know anything about those tests. So again, me? I'd retest at a lab with peripheral blood. I'd also get a biopsy of your rash, and I'd try to find a celiac specialist near me and try to meet with him...
  16. plumbago
    I'm not sure about that @DeannaM. What diagnosis did they give you in the hospital? How low was your sodium? Is your kidney function ok?
  17. plumbago
    Tramadol, if I recall correctly, is a synthetic opioid, or "opioid-like," (at any rate it's a schedule 4 controlled substance and an analgesic) so it will help with pain and slowing digestion. Lomotil may be over the counter. I have no personal experience with it, but working in healthcare, I know lots of doctors prescribe it for things like chronic diarrhea...
  18. plumbago
    The medications you mention are mostly opioids and synthetic opioids and likely help because one, they are potent pain relievers for sure, and two, they slow many of the body's processes like digestion. They are, as you no doubt know, also highly addictive and present issues of their own. Has your doctor mentioned any other medication (like lomotil) that...
  19. plumbago
    Hopefully others will respond, Jacqueen - and welcome to the forum. In my own case, it was a fairly straightforward diagnosis of Celiac, roughly 10 years ago, and ever since, I eat the vast majority of my meals/snacks at home and am generally extremely careful about "outside food," most especially since the pandemic, as I don't eat inside restaurants hardly...
  20. plumbago
    I would agree with you on the first part. On the second part, you could think about this: have home gluten free, but son can eat gluten outside the home. Seems like the best of both worlds to me! Nowadays, there's just as much (unhealthy) processed gluten-free food, almost, as gluten-containing food/snacks.
  21. plumbago
    I am also interested in more detail of the cross reactivity test, ie, blood test? Thanks.
  22. plumbago
    I think most everyone when faced with a diagnosis of a chronic disease definitely wants it to be super crystal clear, and one thing you'll see on this forum is the agony of doubt when it's not. You're not alone - smiley face. Not that we should be comparing, but I was older than you at diagnosis, and here are my results: Ttg-IgA 81 (limit was ...
  23. plumbago
    @vjacintoit probably does. Question - when you say What are the letters that come before IgA?
  24. plumbago
    Yikes is right. While I don't totally agree with the NP's decision, it probably won't hurt to wait. Speculating aloud, I wonder if she just wanted to do everything to ensure that the EGD happens and worried that a normal blood test could lead to thoughts of cancellation. If you really want tests before the EGD, you can always order them yourself and pay out...
  25. plumbago
    Might as well get more / as many Celiac blood tests as possible: tTG-IgA; tTG-IgG; DGP-IgG; DGP-IgA; Total IgA; EMA IgA. Common vitamin tests for celiac disease patients are B12 and Vitamin D. Sure, you can ask about the number of biopsies. You can also ask how many of these procedures they do or if it is commonly done in their offices, just to...
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