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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by plumbago
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what is all about ?
plumbago replied to grumbleguts's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, I have not had high WBC on a routine blood test. Not to say I never ever have had elevated WBCs, but during my celiac disease testing phase, my WBC were never elevated. What was elevated, was what was found on endoscopy: intra-epithelial lymphocytes (IELS), in my small intestines. Of course, I've had low D - something that is practically epidemic... -
what is all about ?
plumbago replied to grumbleguts's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I would advise you checking with your doctor to see if you can get B vitamin levels checked. Just because metformin - a highly useful drug - can cause B vitamin deficiency doesn't mean it will or does in you specific case. If you have celiac disease, you may have malabsorption of those vitamins because of it. Also, as you know as someone with type 2... -
what is all about ?
plumbago replied to grumbleguts's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Can you clarify that last word? It means, in the case of celiac disease, that the villi lining your small intestines have been flattened and because they're how absorption of nutrients take place, without them, you can have malabsorption. The way I've been taught about it is that celiac disease can lead to malabsorption (not the other way around... -
In general, I follow the plate method which is, for every meal (including breakfast), half of my plate is vegetables, one quarter is a protein and the remaining quarter is a carb or starchy carb like potato or rice, etc. Vegetables are a carb, it's true, but for the most part, those carbs are "free." And I don't mean to leave out the good fats, which are...
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DH reaction to rice or rice flour?
plumbago replied to Maureen Haley's topic in Dermatitis Herpetiformis
With a condition called pernicious anemia, since the problem is lack of intrinsic factor, a protein produced in the stomach and, under normal circumstances, binding to B12 in the small intestine, a process which is necessary for absorption, no matter what you eat, it will not be absorbed, necessitating the intramuscular injections. -
Covid virus/vaccine triggering celiac
plumbago replied to Tintern21's topic in Related Issues & Disorders
Scott, my understanding is that about 1% of the total US population has celiac disease. It would be interesting to know of that 23% who carry the gene, what percentage go on to develop celiac disease.- 30 replies
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- coronavirus
- covid jab
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DH reaction to rice or rice flour?
plumbago replied to Maureen Haley's topic in Dermatitis Herpetiformis
I'm sorry, I don't understand your answer. -
DH reaction to rice or rice flour?
plumbago replied to Maureen Haley's topic in Dermatitis Herpetiformis
I like the food vs vitamin supplements route too, but pernicious anemia is different in that intrinsic factor (necessary for B12 absorption) often found with B12 deficiency is lacking and there's just now way to eat your way around that (so far as we know) which is why injections are often preferred. -
Severe vomiting after eating gluten
plumbago replied to gatlint's topic in Introduce Yourself / Share Stuff
The breath test, from what I've heard, is common. I had some abdominal issues 2 years ago and was due for my EGD (and colo :() anyway, and the doc checked my gut out at that time for H Pylori and didn't find it. -
Severe vomiting after eating gluten
plumbago replied to gatlint's topic in Introduce Yourself / Share Stuff
Good for you! There are a couple of ways to test for H. Pylori, including a breath test, via urine, serum, and stool; and gastric tissue biopsy. -
You didn't post the actual results or the tests, so it's hard to speak more definitively, but any positive test on a Celiac panel is generally indicative of celiac disease. I would go online and print out something from one of the Celiac disease societies stating that and send her a fax asking for an endoscopy, if that's what you want.
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The general advice is to continue eating gluten until you talk to your doctor. People do different things, sometimes, however. But yes, if you and your doctor and son opt for the biopsy via EGD, then he should continue eating gluten. There's a minimum amount, which I believe is something like one or two pieces of toast every day.
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Interpreting test results
plumbago replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Is it possible that it would mean that your child has celiac disease but no damage has been demonstrated based on the biopsies so far? -
It's probably too complicated for any of us to attempt to break this down for you. My first message is to talk this over with your doctor. It will also be my last message. In between, I'll say I'm glad you are getting re-tested while on gluten; that is entirely appropriate. Ferritin is the protein where iron is stored. (But the major storage site...
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Interpreting test results
plumbago replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@deanna1ynne My response is in relation to the screenshot you posted, not the part you typed in. My notes say that if both deamidated gliadin tests (IgA and IgG) are high, almost certain to be celiac disease. Not sure I'm reading your screenshot correctly, but it appears that the deamidated gliadin IgG is very high and the deamidated gliadin IgA... -
Interpreting test results
plumbago replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
For now, at least until the appt, your child probably should continue eating gluten containing products such as one or two pieces of toast per day, and that's it. If you are going to a gastroenterologist, he or she may well recommend an endoscopy to diagnose, I can't say for sure. For adults, it sure is difficult to walk in to a GI office with GI complaints... -
Interpreting test results
plumbago replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ask to have the paper copy of the results sent to you (mail, portal, fax). It's the only way. Or go in and pick them up. -
Interpreting test results
plumbago replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Can you post the reference ranges? -
Hoisin Sauce
plumbago replied to Bharvi's topic in Gluten-Free Foods, Products, Shopping & Medications
Replying to this topic nearly a year later....wow! Has anyone checked the prices of gluten-free hoisin sauce? I went to my local healthfood store and didn't find it, so I just looked on Amazon. Seems $12 is a bargain! OMG. -
Yeah, something I was exposed to, but also probably I was under more stressed than I appreciated at the time. Ok, so Allegra is not the cure-all I was sure it was! Glad it's not getting worse, and good luck at the derm. I really have no direct experience with DH, except that I had hand eczema (which still flares but rarely) and my derm at my request did a...
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I don't know if it's scabies, DH or something else, I'm sorry. It looks like it's awful though. Once I was traveling in Mexico and got body-all-over hives and urticaria. I went to three different doctors there, used bottles of calamine lotion. It didn't get better. Then somehow, someone recommended Allegra which was sold freely at the open-air, roadside pharmacies...
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Severe vomiting after eating gluten
plumbago replied to gatlint's topic in Introduce Yourself / Share Stuff
Hi, I can't really answer your question about how rare it is to experience vomiting after eating gluten, but I know in celiac disease generally, vomiting can be and is a symptom, with different reasons - ie, delayed gastric emptying; vitamin deficiency; among others. My understanding is not broad or deep enough to write very much more on this, but I... -
Question.... Newly diagnosed celiac
plumbago replied to Aprilmon's topic in Coping with Celiac Disease
Soluble fiber (pectins (eg, the inside of an apple), gums, muscilages (certain fruit seeds like pomegranate; oatmeal) does lower cholesterol by binding with bile and does slow digestion, true. However, insoluble fiber (cellulose, hemicellulose, lignans) like stalks, outer covering of nuts, skin of apple accelerates fecal transit time through the GI tract...