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plumbago

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by plumbago

  1. plumbago
    All good questions. I wish we could convene a panel of broadly representative people (doctors, nurses, scientists, patients, etc etc) to have our questions answered or generate a discussion.
  2. plumbago
    The cited article is great to know about, but wasn't OP's original complaint about high TTG results not flattened villi? I was going to suggest ARBs (a class of medication to lower high BP), but then I realized ARBs probably don't impact TTG (but do impact villi). There are other conditions that can impact TTG like Crohn's but we probably would have heard...
  3. plumbago
    In some major news outlets, vitamin D is in the news. Studies are showing it does not even protect against fractures. You can google NYTimes etc and vitamin D to see the articles. As a preface to my message, I would like to say that if you are going to respond by citing a lot of PubMed articles, I will just let you know upfront that I will probably not...
  4. plumbago
    Sadly, I'm hearing that Grinstone Bakery (in Calif) is looking for a new owner. Plumbago
  5. plumbago
    I think the tendency to develop bunions is strongly hereditary.
  6. plumbago
    @Deb DuttonI suppose anything is possible. I have celiac disease and bunions. My understanding is that bunions have an extremely strong hereditary component, and are often driven by poor mechanics (posture issues) and to some extent shoe choice (though this has been overemphasized in my opinion). For me, bunions and the problems they are bringing, is...
  7. plumbago
    That's good. I'd also recommend posting a query on one of the many reputable diabetes dialogue boards / forums. Some are quite excellent. I am a nurse and I work with a lot of patients with diabetes. Again, the most concerning thing I hear from you is the SOB and high blood pressure. Your husband would certainly qualify for a good cardiac work up (I...
  8. plumbago
    There's not really enough information (labs, vitals, age, weight, social history, etc etc) here for any of us to offer meaningful advice. It sounds like a horrible situation and based on what you wrote, the greatest thing going for your husband is you, and with your continued persistence and hopefully widening network of interested people, you will be able...
  9. plumbago
    Never undertake a gluten challenge when pregnant. If not pregnant, the Celiac Disease Foundation recommends the following: "If you are currently on a gluten-free diet, your physician may recommend a gluten challenge to allow antibodies to build in your bloodstream prior to testing. NASPGHAN recommends eating roughly 2 servings of gluten, equivalent to...
  10. plumbago
    GNC, What the issue often is, is that a really good GI doc may not know a lot about Celiac, and a good Celiac doc (if there even are any), is not a great diagnostician. I mention this because I'm also wondering if there are other GI issues ongoing (eg something like microscopic lymphocytic colitis). Oh I feel so bad for you both, having to be fed via...
  11. plumbago
    Hi, I have not had high WBC on a routine blood test. Not to say I never ever have had elevated WBCs, but during my celiac disease testing phase, my WBC were never elevated. What was elevated, was what was found on endoscopy: intra-epithelial lymphocytes (IELS), in my small intestines. Of course, I've had low D - something that is practically epidemic...
  12. plumbago
    I would advise you checking with your doctor to see if you can get B vitamin levels checked. Just because metformin - a highly useful drug - can cause B vitamin deficiency doesn't mean it will or does in you specific case. If you have celiac disease, you may have malabsorption of those vitamins because of it. Also, as you know as someone with type 2...
  13. plumbago
    Can you clarify that last word? It means, in the case of celiac disease, that the villi lining your small intestines have been flattened and because they're how absorption of nutrients take place, without them, you can have malabsorption. The way I've been taught about it is that celiac disease can lead to malabsorption (not the other way around...
  14. plumbago
    In general, I follow the plate method which is, for every meal (including breakfast), half of my plate is vegetables, one quarter is a protein and the remaining quarter is a carb or starchy carb like potato or rice, etc. Vegetables are a carb, it's true, but for the most part, those carbs are "free." And I don't mean to leave out the good fats, which are...
  15. plumbago
    With a condition called pernicious anemia, since the problem is lack of intrinsic factor, a protein produced in the stomach and, under normal circumstances, binding to B12 in the small intestine, a process which is necessary for absorption, no matter what you eat, it will not be absorbed, necessitating the intramuscular injections.
  16. plumbago
    Scott, my understanding is that about 1% of the total US population has celiac disease. It would be interesting to know of that 23% who carry the gene, what percentage go on to develop celiac disease.
  17. plumbago
    Check out Grind Stone bakery in California. I haven't gone through their Web site chapter and verse as pertains your questions, but it may be worth looking through it, and failing that, give them a call. Good luck!
  18. plumbago
    I'm sorry, I don't understand your answer.
  19. plumbago
    I like the food vs vitamin supplements route too, but pernicious anemia is different in that intrinsic factor (necessary for B12 absorption) often found with B12 deficiency is lacking and there's just now way to eat your way around that (so far as we know) which is why injections are often preferred.
  20. plumbago
    The breath test, from what I've heard, is common. I had some abdominal issues 2 years ago and was due for my EGD (and colo :() anyway, and the doc checked my gut out at that time for H Pylori and didn't find it.
  21. plumbago
    Good for you! There are a couple of ways to test for H. Pylori, including a breath test, via urine, serum, and stool; and gastric tissue biopsy.
  22. plumbago
    You didn't post the actual results or the tests, so it's hard to speak more definitively, but any positive test on a Celiac panel is generally indicative of celiac disease. I would go online and print out something from one of the Celiac disease societies stating that and send her a fax asking for an endoscopy, if that's what you want.
  23. plumbago
    The general advice is to continue eating gluten until you talk to your doctor. People do different things, sometimes, however. But yes, if you and your doctor and son opt for the biopsy via EGD, then he should continue eating gluten. There's a minimum amount, which I believe is something like one or two pieces of toast every day.
  24. plumbago
    Is it possible that it would mean that your child has celiac disease but no damage has been demonstrated based on the biopsies so far?
  25. plumbago
    @trents There are a lot of others with anemia from chronic disease. I work with a population that can be very sick. It definitely exists outside of an elderly population. (I am not saying this is what is happening with OP at all, and I don't mean to alarm her.)
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