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Corrie

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Corrie

  1. Corrie
    Thanks for your responses. At least I know a little better what I’m dealing with. I have contacted them and am waiting back to hear. My cruise isn’t until January 2019.
  2. Corrie
    Probably misses the mark, but could it possibly be Pressure Urticaria? I had urticaria for 18 months straight and the hives caused by pressure didn’t always present like the classic wheal. Sometimes it was just strong, bruising pain.
  3. Corrie
    Has anyone taken a Hurtigruten cruise of the Norwegian coast? I’m investigating it, and wondered if anyone had first-hand knowledge about the food (how accommodating were they of gluten free diners).
  4. Corrie
    I've had this before too. Look up LERD, or silent reflux. It's a type of reflux that sounds a lot like what you're going through. Open Original Shared Link
  5. Corrie
    Thank you both for your input. I'll let you know how it goes!
  6. Corrie
    Hello All, I will be traveling to Gatlinburg/Pigeon Forge, Tennessee in a few weeks and am looking for gluten free friendly places to eat. I can find the chain restaurants on my own but am hoping for recommendations for any smaller independent type places. Thanks!
  7. Corrie
    I would encourage you to get it checked out by a doctor. It could be shingles.
  8. Corrie
    I have gotten chilblains when my feet haven't been THAT cold. Red itchy/painful blisters on the toes. I have Graves' (sort of like opposite Hashis) as well as celiac.
  9. Corrie
    Thanks for the advice, mommida! I am used to bringing snacks for myself, but I'm an adult and can more easily deal with the unhappiness of being the only one without a dessert. I definitely don't want Grant to feel left out and if I can prevent it, I will. ahearnsberger, I read on some info printed at the bottom of my son's genetic testing labs that...
  10. Corrie
    Had a very positive experience at Cincinnati Children's Medical Center with Dr. Mike Leonis. He has great bedside manner, addressed and validated all of my concerns for my child, and made a point of talking directly to my 10 year old son. Children's is a wonderful place. The nurse is available to talk about anything, anytime. The meeting we had with Dr....
  11. Corrie
    Well, here's the update. My son saw a wonderful pediatric GI doctor at Cincinnati Children's. The doctor took all my concerns very seriously, especially about his weight. He showed me the growth chart, and we looked at where Grant is on the chart-- he is moving along in a flat line, well below the minimums. Doctor explained that he would not be worried if...
  12. Corrie
    Thanks for all the input and things to consider. He is eating a ton of gluten. Toast for breakfast, sandwich for lunch, granola bars, pretzels, etc. He knows he might have celiac, but for now we have not made any changes to his diet. He is taking a multivitamin, and I also have him taking a Vitamin D and calcium supplement, thinking the leg pain might be...
  13. Corrie
    Thank you for responding. I hope others will as well. My son is ten, almost 11. He weighs 52 pounds. He is a foot shorter than every other kid in his class. As far as the elevated ttg possibly being from something else, according to blood work, he doesn't have diabetes and his thyroid is fine. He has no symptoms of Crohn's. Besides asthma and seasonal...
  14. Corrie
    I was diagnosed four years ago, and have been watching my son carefully. After reading a lot in May (Celiac Awareness Month) I was encouraged to have him tested. His is very small for his age-- 1% for height and 3% for weight, but both his parents are small. He also complains about his legs hurting. His doctor chalked it up to growing pains, but this kid...
  15. Corrie
    The brand I have purchased is called Alpine Aire. I have not eaten them-- I keep them on hand for emergency preparedness reasons. The packaging states Gluten Free, but doesn't state whether it was prepared on shared equipment.
  16. Corrie
    Before I realized I had celiac, my synthroid had to be adjusted frequently. I was all over the place, hyper, then hypo. Now that I have been gluten free for three years, I am much more stable, and the amount I take has decreased. I used to be on 137 mcg, and now I am on 100 mcg and holding steady. My endocrinologist said I was not absorbing the medicine as...
  17. Corrie
    I do experience this. I have noticed it is worse when I eat too many carbs, so I have been intentional about eating more protein and it has gotten better. I also have thyroid problems, and that has given me a fast/fluttery heartbeat in the past. It seems once you are aware of it, you notice it all the time, and then the anxiety about it kicks in, making it...
  18. Corrie
    I would look into Addison's Disease.
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