LIZARD66
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Thank you. Everything's been checked. Some were even found to be high. I started taking everything after my celiac disease was dx'ed. My D was severely deficient in '07, before my celiac disease was dx'ed. I worked hard for years to get it to optimal and still take 20K iu daily, due to being on D depleting meds.
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I did have an episode of what I think was DH several years ago when I was contaminated. I had a seizure and woke up the next day to see a blotchy red rash all over my neck and chest. Curiously, I also get a blotchy rash after the neuropathy stops. It lasts several minutes and gives me a "prickly" itch.
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I appreciate all the info. Thanks so much! My neuro is scheduling the skin punch biopsy. As far as I know, that's all that's left to do. Would it possibly indicate if it's from celiac disease?
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Thanks for this. I guess I'm just puzzled that the neuropathy would start after all this time if it really is from celiac disease. Could the Covid booster have kicked it into gear?
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Hey, everyone. I was dx'ed with celiac disease 15 years ago and have been devoutly gluten-free since Thanksgiving of '08. I was doing very well when I suddenly developed severe burning in my torso, arms, face, back, and on the tops of my thighs in December of '21 the day after my third Covid booster. The episodes lasted anywhere from a minute to an hour...
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New Here! celiac disease & Epilepsy?
LIZARD66 replied to Snap's topic in Parents, Friends and Loved Ones of Celiacs
I am a 52 yo mom who started having seizures in infancy, soon after beginning baby cereal. At 41, and many seizures later, I was finally dx'ed with celiac disease. Been completely gluten-free 10 1/2 years now, and my szs completely stopped about 9 mo after all gluten had been eliminated from my diet. I had a few "oopses" along the way but just marked 5 years...