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Celiac Ninja

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Blog Entries posted by Celiac Ninja

  1. Celiac Ninja
    Well well well....
     
    Not surprised. Nor scared. I may have cancer again.
     
    I am going to go WHOLE HIPPY NUTS THIS TIME! BooYAA!
     
    I'm allergic to pain killers: no surgery for me. Thank GOD!
    I'm not interested at all in chemo or radiation again. Been there done that. They will want to bone marrow transplant, I will not tolerate pain killers nor that transplant without painkillers. lol
     
    I am however FAR more aware of what to research, how...
  2. Celiac Ninja
    The battle ground....
     
    Lymph nodes going up my neck.
    Nodule 9mm on the back of my right thyroid lobe. (Hard to palpate)
    Unknown battle ground in chest cavity.
     
    Weapons....
     
    selenium 100mcg x2 each day. (breakfast, dinner)
    Vitamin E 400 I.U. x2 each day. (To process the selenium better)
    licorice root tea x2 a day. (helps with menstrual, adrenal and immune)
    Intolerance Complex x3 each meal (for digesting more than just gluten)
    Copper 2m...
  3. Celiac Ninja
    A lot has happened since I last blogged.
     
    There are obivous reasons for me being tired; I have two kids under the age of 3, I'm a celiac, I've got hypoglycemia...yadda yadda.
    There are not so obvious reasons; chest pain at night, ache down the arm, lymphnodes swollen up neck (Cat scan confirmed), noduel on thyroid (cat scan confirmed), scar tissue in left cerebral hemisphere (MRI scan).
     
    My only concern is the swollen lymph nodes. The experience with l...
  4. Celiac Ninja
    Obviously I'm not good at titling my blogs, lol, but the latest events of the Gluten Free struggle is what I'm posting here.
     
    I've forgotten about my thyroid. Conveniently I'm sure, when I was diagnosed with non-hodgkins lymphoma, I put off dealing with the nodules on my thyroid for years. It's been 9 years. I think I was hoping getting gluten free would cure them. But they have been super active, being I am easily swayed into stressing out over things and consuming ...
  5. Celiac Ninja
    With two kids to tend to, glutened by who knows what, and allergic to other stuff, I am finding it hard to survive. At night I have horrible nightmares, have had since I was a kid, but the glutening makes them worse. Also having heart palpitations, tightening, lethargy. Very tired all over as well. The last few weeks the glutening has damaged my gut and I guess I am consuming things that make it swell normally, so going to the restroom is defiantly difficult and painful. I...
  6. Celiac Ninja
    Well, my sweet hubby and I had another baby, Surprise! its a girl. ? Yes, we didn't know until month 8.
     
    Doctors told me she was in serious danger because I am Rh-, that is O- blood. I chose not to do the rohgam. It is protein based and I have numerous allergies including to pain meds. When I had cancer I had seizures while the nurse was giving me retuxin, which is animal proteins. I seizured twice on the table and they had already given me banderol. They pulled it ...
  7. Celiac Ninja
    So...
     
    Oncologist doctors and Licensed Naturopathic doctors are still not respecting each other in this valley at least. Doesn't surprise me. I the client am in the the middle. It's like a tug-o-war game really. One person says this, another person says that. There is absolutely no reason under the sun why a oncologist doctor can not respect nutrition. There is equally no reason why a Licensed Naturopathic doctor can't speak with the oncologist doctor before referring ...
  8. Celiac Ninja
    That's exactly right!
     
    Meat, rice and vegies.
     
    The only extras were the ones that I knew and tested before and still feel confident about; Silk coconut milk (for my calcium/magnesium/etc), CeliAct vitamins and my MRM gluten enzymes.
     
    *I added my Rice cheese later, kept up with the Waluby Greek yogurt and drank water from the tap. Then the Rice Dream Organic vanilla ice cream.
     
    There were slip ups of course:
    #caffeine- I am totally all...
  9. Celiac Ninja
    The little dude is 3 weeks and 10 lbs. already Which is fast. He's smiling, making valiant efforts at holding up his head and frowning at everything that is perplexing. Very cute stuff. So far he's breast feed 90% of a full 24 hours and the other is formula (similac "advanced" formula). The similac supposedly is suggested as a gluten free on this site by people who have looked into it, but the can does not say gluten free. I want to contact the company and get their word for...
  10. Celiac Ninja

    Baby Is Born!

    By Celiac Ninja,

    This is one healthy baby boy! After 11.5 hours of labor with a midwife and assistant watching closley, my husband and I had our baby boy in our arms! :D
    He is 20 inches long, 7.14 lbs, and had a 14 inch around head! He came out healthy as a horse, nothing of concern! WOW Thank God! His little finger nails were even longer than mine (past his fingertips) which explains the scratching inside :S hehe
    Our next adventure is nursing, major lack of sleep, and bonding with...
  11. Celiac Ninja
    Honestly it's not so bad being pregnant. Minus the swelling from various foods or things I drink that I have been informed are gluten free. The baby is growing quickly, seems to have growth spirts like a normal kid does out of the womb. I swear, in one week, I went from 145-150 and stayed there! I thought the scale was broken, I put the scale in the goodwill pile...everyone else who weighted themselves on the scale came up normal. Darn it! lol But, from a very very helpful...
  12. Celiac Ninja
    Back to College
    Years later, yes it took years to get my brain back on track and cleared up from all that nasty chemo, it was back to art college! I will happily pay off these loans (all $64,000 worth) because I didn't come this far to be unhappy about my future as an artist! Granted I was still an imperfect person (in my mind), I still didn't like...uh correction, I still don't like the things I do or my weaknesses, but that is something God is still trying...
  13. Celiac Ninja
    What Kind Of Doses?
    Off to Rituxin and chemo we go. Mom and I zipped up to Seattle where the Cancer Care Center was. First thing we did was get a cheap motel because it's a two day process for the Rituxin and chemo session. Filled out surveys and realized that the cancer my family has had was hitting an all time low by showing up this early in a twenty-year-old's body. How rude. They asked if I wanted a port. Alarm bells went off in my brain, I'm thinking "No way, that...
  14. Celiac Ninja

    The Quick New Plan

    By Celiac Ninja,

    The Quick New Plan
    So in Spokane at the doc's office, mom and I were informed that surgery would be the only option for something that was cutting my time short. The tumor was non-hodgkins lyphoma, 4.5x5 inches. Bob was gonna be lifted out (pffft by helicopter) by opening my chest, that's aka chainsaw to the chest method. Barbaric! I think I prayed my hardest right then and there. Feakiest moment of my life! The doc gave me a gown and said to get ready. I was like 'AHHHHHHHHHHHHHHHH...
  15. Celiac Ninja

    To Portland! :d

    By Celiac Ninja,

    Off to Portland
    I was so happy and determined for so long about going to the college in Portlant that nothing was getting me down. I was like walking on clouds. Just before I moved out of state, I felt something very dark looming over me. It wasn't like the dark emotional waves that use to crash over me, it was out of my hands and coming toward me. I prayed about it but felt like I recieved an answer 'your going to experience this so be prepared'. On the drive to the college...
  16. Celiac Ninja

    Short Hair

    By Celiac Ninja,

    Up until senior year in Highschool, I did hurt myself, usually when I failed at something and or got too emotionaly distraught. I used objects or my hands to hit myself. One moody day I did successfully knock my jaw out of alignment, that hurt more than I thought it would. I vowed to God if He healed me I'd never do it again. The Chiropractor couldn't get my jaw realigned, I had waited too long to go see him. Hurting myself was wrong and didn't fix anything, obviously. Other...
  17. Celiac Ninja

    Dark Minded Child

    By Celiac Ninja,

    I've had issues since I can remember. In kindergarten I remember thinking all the other kids hated me, that there was something seriously different about me, something wrong. These thoughts were most likely from my negative family, seemed to be passed down. I believed those negative things and it hurt. Then they sent me to chiropractors at age five for scoliosis, which I did have, x-rays proved that there were three curves. Could be debilitating if it wasn't controlled soon...
  18. Celiac Ninja
    I haven't written a blog in years.
     
    Well I guess this should be about gluten-free eating and the trials I went through to get where I'm at. Probably future goals and stuff too.
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