Sam81

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Dapsone? 100 Mg For 20 Years?

Sam81 replied to 33 in Ca Celiacs and DH's topic in Dermatitis Herpetiformis

I was on Dapsone 50-100mg for 12 years for "Bechets Syndrome" - (diagnosed at 16) stopped taking it nearly 2 years ago and am riddled with Celiac DH symptoms. Some Dr's are thinking I was misdiagnosed. I was left to manage it on my own with no regular blood testing and was always severly anaemic by the time they did do blood tests. Iron levels are still...
- August 28, 2011
- 11 replies
Sam81

Hello! I'm married with 3 beautiful children. I was diagnosed with Bechets at 16 and put on medication - Dapsone. For last 2 years I have not taken it due to pregnancy and breast feeding and have started reacting to everything I eat. Dr's are wondering if I was either mis-diagnosed and in fact had Celiac DH or have had it all along, masked by the meds for Bechets...
- August 16, 2011