Kamma

Thanks for the linked article, Naturechick. It's totally correct in it's premise that we normally consider wine 'unprocessed' and elemental. For those of us in the world who are trying to be mindful of what we are putting into our bodies aside from just gluten (and mindful of what effect massive production/agricultural processes are doing to the ecosystems...

Hello mdohtnla It is frustrating and not just a little frightening to have something wrong with you and take a battery of tests to have them come back negative when all you want is a diagnose and a plan of action to get better. One thing you might want to investigate further is Gluten Ataxia as some of the symptoms you described closely fit with it such...

Thank you for the update, Gatita although it isn't as good of news as you probably hoped for. I'm sorry about that and yes, it's hard to see someone disintegrate in front of your eyes. Your heart gets wrenched around and you want to do as much as possible to bring them back to health. Your brother is fortunate to have a sister such as you. Remember...

Amen!

Hello Gatita, I hope your brother responds to going gluten free. It would be great news if this is what is causing his ataxia and you can eliminate the cause (as opposed to it be idiopathic.) Keep us posted on how he makes out. Kind regards.

Good point. To clarify: the washing is effective on removing the pesticides that are on the surface of the plant and not in the pesticides that have been incorporated into the plant while it was growing.

Soap is an excellent cleanser because of its ability to act as an emulsifying agent. An emulsifier is capable of dispersing one liquid into another immiscible liquid. This means that while oil (which attracts dirt) doesn't naturally mix with water, soap can suspend oil/dirt in such a way that it can be removed more efficiently than using just water. It...

Ciel, Eating whole foods is the best way to go. Fruit, vegetables, meat. I stay away from grains as well because of the cross contamination. In the beginning it is difficult but the better you feel, the more momentum and motivation you have to stay on the path. The real confirmation that you're doing the right thing is when you accidentally ingest...

M. Hadjiivasilliou is doing clinical trials on the ttg6 blood test. He just released confirmation of a recent study that pointed that ttg 6 antibody response can be used as a marker in gluten ataxia. It will takes some time for the test to make it it to the mainstream. He's been working on this test for the last couple of years so perhaps it will be ready...

One of the tell tale signs is the shrinking of the cerebellum in the brain. This will show up on an MRI. Some people have extensive damage that it will show up others don't have enough to show the shrinkage. Another thing is the current blood tests only test for the skin and intestinal manifestations of gluten intolerance and they will not not catch the...

Pleased to meet you, yolo. Thanks for sharing your story. I was wondering if you could speak more about how gluten affects your kidneys. I have tested positive four times in the last two years for protein in my urine.

It takes a while for the antibodies to leave your system. For example, AGA antibodies have a half life of 120 days. So even if you stopped all gluten now, the antibodies would still be circulating your system full on for almost half a year. Hadjivissilliou seen the most improvements after one year. That's of course if you can keep the trace gluten out...

clevercate, that it is absolutely wonderful that you are responding! Especially after so long of just 'suffering through things and being told not not worry about it. Arrrrgh, doctors make me so mad sometimes. I'm not surprized you would test negative on the blood test. Hadjivassilliou's research shows less then 30% of gluten ataxia patients will...

Gatita, I was diagnosed with gluten ataxia in January 2012. I immediately stopped ingesting gluten and within weeks I felt my fatigue lessening. My balance issues and drunken walking still continued however. It was only by going super clean and only eating fresh foods (absolutely no processed foods including 'gluten free' replacements foods as most...

Yup, there's tons of things with soy in them. Even margarine. Every margarine container that I looked at one day had soy in it. The only soy free substitute I have ever found is Earth Balance Almond Spread. Canola oil is naturally gluten free. It has the potential for cross contamination in the processing but there is something to do with the seed...