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Jewels50

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  1. Jewels50

    Dr Deficiency

    Jewels50 replied to Jewels50's topic in Doctors

    I think you hit it right on the head. The only way to get production ($$$$$) out of Celiac patients is to do endoscopic surgeries. And I know the big medical conglomerate that actually owns the gastroenterology practice has production goals that the doctors and staff have to meet. Hence the reason to have a FNP on staff and meeting with patients. HMO...
  2. Jewels50

    Dr Deficiency

    Jewels50 posted a topic in Doctors

    I live in the Eastern NC area and am struggling to find a good Dr, gastroenterologist here in the area. I was was told yesterday by the FNP at my gastroenterologist’s office that it is “not true” that other autoimmune diseases can be present with Celiac. When I showed here the FAQ from the U of Chicago Celiac Disease Center, she replied, “well, t...
  3. Jewels50
    Oooooo! I have checked out their website and they ship!! Thank you!
  4. Jewels50
    Thank you for the link. I have had my own celiac panel done. My tTg were still slightly elevated as well as my DG Abs, IgA. My DG Abs, IgG was negative. From the research I have done, if the DGP IgG is negative, then I am NOT ingesting gluten. http://www.cureceliacdisease.org/faq/in-follow-up-blood-testing-why-would-ttg-be-negative-and-dgp-be-positive...
  5. Jewels50
    Nima is coming out with a sensor for those with peanut allergies this fall! Yay! My Grandson has a bad allergy to peanuts (epi pens kind) and this sensor will help to make a huge difference to my daughter's family eating out dilemma.
  6. Jewels50
    https://www.walkinlab.com/catalogsearch/result/?order=relevance&dir=desc&q=celiac+panel&btnSearchSubmit= This one you can access directly without a doctor involvement. They send you to a draw site. Other forum members have used this or at least have linked to this site for others. I believe you have to pay cash but am not sure if...
  7. Jewels50
    Good to know that the Nima can be overly sensitive. I would be interested in the lab information. Thank you!
  8. Jewels50
    Recently, my lab test came back slightly elevated (5) on my tTg levels plus I have been having the symptoms of being glutened. I was diagnosed 6 years ago and for the most part, have been doing okay with the occasional set back usually due to a cross contamination issue at a restaurant and a well meaning friend or relative thinking that they could do the...
  9. Jewels50
    In an effort to find out what I have been eating that is causing my symptoms (migraines, joint pain, brain fog, fatigue, gut pain) I have invested in a Nima tester. Peanut M&M's DID NOT pass the gluten free test! I highly suspect cross contamination as Mars have so many M&M's that contain gluten items like pretzels and cookies. Peanut M&...
  10. Jewels50
    Okay, great information about the tests. Good to know! After the initial gluten challenge I was positive for DGP IgA, TTG IgA, EMA IgA. I am smacking my head! I too am one of the 10% who cannot eat ANY oats. My husband uses a gluten-free bread mix to make gluten-free bread. It is possible that it has some trace amounts of oats...
  11. Jewels50
    Thank you all for your replies and suggestions! I did get a copy of my lab results. 3 were done in the past 6 years. Yes, 3. Oh I have had blood drawn lots but only 2 were a panel of tests for Celiac (2011 & 2012), but this last one done (2017) was just for tTg. My tTg was 5 on the most recent test. Down from 32 back in 2011. I have questions...
  12. Jewels50
    I exist! I have confirmed Celiac with biopsy and positive blood work but my genetic testing says I do not have the DQ2 or DQ8 gene. So when I read the so called experts state it is impossible to have Celiac without those two gene markers, I tune out. I am not sure if I have the DQ9 gene or not. Thank you Ravenwood for pointing that out. I was born and...
  13. Jewels50
    Hi Tessa25, thank you for all your input and help with this! Yeah, the more I deal with this assistant, the more I am convinced she makes incorrect assumptions and generalizations. She postulated today that the dietician hasn't called me yet because "they are probably trying to figure out my insurance". Because, you know in these days of high speed internet...
  14. Jewels50
    Yes, back to a restricted diet. I am also doing the (tried and true for me) probiotic, magnesium, herbal /holistic approach to leaky gut regime and re, re, re researching how many ppm of gluten are in foods I eat. A food diary will help. Thanks!
  15. Jewels50
    Hi Gemini, great information and I will ask.
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