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squirmingitch

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squirmingitch last won the day on September 16 2019

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  • Gender
    Female
  • Interests
    Gardening, birds, bees, butterflies and nature in general. Nature is a genius!
    "If there are no dogs in Heaven, then when I die I want to go where they went." ~~~ Will Rogers
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About Me

Dermatitis herpetiformis & therefore celiac.

Gluten-free Dec. 2011 and 5 months later we found out the hubs is also celiac with dermatitis herpetiformis. Crazy things happen in this world. 

We have a gluten-free household.

I am not able to eat even certified gluten-free oats. I discovered this March of 2015.

 

  1. Teresaburris1963 started following squirmingitch
  2. icon April42 reacted to a post in a topic: Rash Mimics Dh But Not Celiac
  3. Timak started following squirmingitch
  4. Dee21 started following squirmingitch
  5. 1LC started following squirmingitch
  6. squirmingitch
    It's a steroid cream & that's why it helped relieve the itch. A stronger, better one is Fluocinonide 0.05% - it comes in ointment or cream & you need a script from your doctor.
  7. squirmingitch
    What country are you in? You need to see a derm NOW & get a biopsy for dermatitis herpetiformis. 60% of us with dh test negative on the celiac blood panel. You MUST keep eating gluten every day until the dh biopsy.
  8. icon jjh reacted to a post in a topic: H.R. 2074: The Gluten in Medicine Disclosure Act of 2019
  9. icon jjh reacted to a post in a topic: H.R. 2074: The Gluten in Medicine Disclosure Act of 2019
  10. icon jjh reacted to a post in a topic: H.R. 2074: The Gluten in Medicine Disclosure Act of 2019
  11. icon squirmingitch reacted to a post in a topic: DH - Eating gluten
  12. icon squirmingitch reacted to a post in a topic: Negative blood tests, positive biopsy
  13. icon squirmingitch reacted to a post in a topic: Negative blood tests, positive biopsy
  14. icon squirmingitch reacted to a post in a topic: Negative blood tests, positive biopsy
  15. squirmingitch
    Yep, we sure appreciate the follow up! I am so glad you found a knowledgable GI doc.
  16. icon squirmingitch reacted to a post in a topic: DH - Eating gluten
  17. icon squirmingitch reacted to a post in a topic: DH - Eating gluten
  18. squirmingitch
    Here are some threads on the subject:
  19. squirmingitch
    Hi Kim! We can't tell just by what you posted. Every lab has different reference ranges so we would need those ranges. Can you please post those? Also, it doesn't matter if you have mild or severe intestinal symptoms as over 50% of diagnosed celiacs did not present with any GI symptoms at all. There are some 300 symptoms associated with celiac disease...
  20. icon squirmingitch reacted to a post in a topic: Weak positive
  21. icon squirmingitch reacted to a post in a topic: Weak positive
  22. icon squirmingitch reacted to a post in a topic: Weak positive
  23. squirmingitch
    OK, those screen shots turned out so tiny. Anyway, if you go to the Amazon link in my previous post; they have a photo of the back of the package where it states that it is gluten free, kosher, peanut free, dairy free, tree nut free, soy free, egg free. You need not worry about modified food starch in an ingredients list in the US especially when it...
  24. squirmingitch
    I have dh & just use McCormick black pepper. McCormick single spices are fine. Here's a link to their contact & FAQ's page: https://www.mccormick.com/contact
  25. squirmingitch
    These are the real deal! My hubby is a hardcore licorice fanatic - black being his favorite & I despise the stuff, can't even stand the odor of it. So he gets no kisses from me when he's been hitting the licorice. https://www.mileskimball.com/buy-scottie-dogs-black-licorice-11-5-oz-350015?sourcecode=MK299SHIP19&gclid=Cj0KCQiA04XxBRD5ARIsAGFygj...
  26. icon squirmingitch reacted to a post in a topic: 8 Months Post Diagnosis Still Having Problems
  27. squirmingitch
    If you wish to reply to just a certain aspect or part of a particular persons post, you click quote & reply & then you can delete the unwanted portions OR you can simply copy & paste the relevant portions from someones post. Then it will ask if you want to paste as rich text or plain text & you choose. Rich emphasizes it's not you speaking...
  28. squirmingitch
    You're welcome! How are you doing with the RA? May I ask what meds you're on for it & how that's working out for you? I am on Methotrexate - recently upped from 7.5 mg once a week to 10 mg. Doc says I can go up to 20 mg before we have to consider something else. As to the Raynaud's, I'm still struggling with how to control it. I'm about out of options...
  29. squirmingitch
    Hey Lou, welcome to the board! I can't really answer your question about reaction time to gluten exposure b/c I have dermatitis herpetiformis - the skin presentation of celiac so things can be quite different for me. However, from spending many years here on the board, I can tell you it varies with the individual, with how long they have been gluten free...
  30. squirmingitch
    Hi Drake & welcome! Have you discussed this with your doctor? Has he/she checked to see if your antibodies are coming down? Do you have copies of your endoscopy report? (You should always get & keep copies of medical records & labs) What was your Marsh score?
  31. icon Keight reacted to a post in a topic: Sleeping my life away!
  32. squirmingitch
    It's okay, we ARE here to hold your hand for any future pity parties. Oh & just so you know.....it's quite possible, sooner or later, you will have a teary melt down in the middle of the grocery store. Who of us hasn't? I did twice. Surprised the heck out of myself! We're also here to cheer the victories! And make no mistake, there WILL BE victories...
  33. icon GFinDC reacted to a post in a topic: Sleeping my life away!
  34. squirmingitch
    You know what you just did there? You had a little pity party. OK, they're allowed. I think all of us have had at least 1 & many of us had several. You're in the early stages of learning all the ropes yet. You made a mistake before Christmas. Those cost but you'll never forget the lesson either. It gets better! I promise!!!!! We have a saying.....
  35. icon Awol cast iron stomach reacted to a post in a topic: my 1 year old has celiac gene
  36. squirmingitch
    I'm still hung up on your rheumy testing. I think it's possible your Hashis is causing those highs on the ANA tests. Read this: https://www.healthline.com/health/antinuclear-antibody-panel#results Mayo Clinic has some good info on RA: https://www.mayoclinic.org/diseases-conditions/rheumatoid-arthritis/diagnosis-treatment/drc-20353653 ...
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