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squirmingitch

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by squirmingitch

  1. squirmingitch
    Homemade bone broth. There are numerous recipes on the internet. Extremely nourishing, very digestible & gentle on the gut. Give him easy to digest foods --in other words cook veggies to death - no raw ones. Might want to avoid dairy for a few months & then begin cautiously adding it back in. Forget oats for the first year. Stay away from processed...
  2. squirmingitch
    I agree. Make sure you keep eating gluten until after the endoscopy. Yes, I'm sure she's probably swamped but do try to get clarification on whether she's going to refer you to a GI. If your insurance does not require a referral then you could go ahead & make an appt. yourself. I hope you & your home are okay. If you're talking about Michael...
  3. squirmingitch
    There is no hard & fast answer. Everyone is different. Read a bunch of threads in this topic listing & you can see how much it varies.
  4. squirmingitch
    Even for the dh biopsy, you have to do the same gluten challenge --- 12 weeks --- as you do for the blood test for celiac. It doesn't make the time different just because they are doing a skin biopsy. Sorry.
  5. squirmingitch
    I am surprised they allow wine without specifying only white wine. Generally they say nothing red, orange or purple. You should be able to do popsicles - lime, lemon or banana flavor.
  6. squirmingitch
    At least you aren't in pain anymore. There is that.
  7. squirmingitch
    Ohhhhhhh, so she is a GI doc. Find a new GI.
  8. squirmingitch
    I'm sorry but your doctor has the order of things screwed up. You have to be eating gluten for the endoscopic biopsies. http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ What she would have you do is go gluten-free & then she'll give you a referral for an endoscopy where you will have to eat gluten for at least 2 weeks prior....
  9. squirmingitch
    I am pretty sure I have RA. I have so many symptoms. It's really sort of jumped on me in the last 2 or 3 months to where almost every single day I have 1 to multiple body parts affected. It seemed to come after getting cross contaminated several months ago & the cc symptoms subsided but this body wide inflammation is not getting any better. I have a primary...
  10. squirmingitch
    There is another option for diagnosis with him. It's known as the 4 out of 5 rule. This most commonly comes into play when the patient is unable or unwilling to undergo or complete a gluten challenge & the resulting endoscopy. Here's a link & I would advise you to print it out & take it with you to the GI appt. He/she may not be aware of it so...
  11. squirmingitch
    I was tested for celiac some years ago and do not have it. That does not mean you are clear for life. You will still need to follow the testing protocols just like the rest of the family.
  12. squirmingitch
    I agree. This kind of thing happens all the time. The Dr says the patient should go gluten-free immediately but the patient has not yet had an endoscopy & so when they get to the GI, the GI either doesn't know the testing protocols or isn't aware the pt. went gluten-free & the biopsy turns up negative & the GI says the pt does not have celiac...
  13. squirmingitch
    I agree! Call every single day to ask if there have been any cancellations. Odds are, there will be & you will get him in sooner than originally scheduled.
  14. squirmingitch
    Oh your poor baby!!!! He was a very sick boy! Thank goodness you now know what was causing it. OK, the good news is that he's very young & the young heal & get well so much faster than older people. You do know that all 1st degree relatives should get tested every 2 years in the absence of symptoms or immediately if symptoms present. It's a genetic...
  15. squirmingitch
    Well whatever you decide, know that there are gluten-free replacements for everything & I mean everything. Now, at 1st, you should not eat those things b/c you want to give your body as much help as you can to allow you to heal so 6 mos. to a year of just whole, unprocessed foods. After that, you may find you have lost all taste for that stuff & want...
  16. squirmingitch
    Some people find it easier if they eat the gluten at night before bed & that way they can sleep through the worst of it. (supposedly) You don't have to eat great gobs of it either. 1 slice of bread or a few crackers each day UNLESS you want to go all out & pig out on all your favorite gluten items & say goodbye. Then you can have a field day eating...
  17. squirmingitch
    All BUSH'S® canned bean products are gluten-free. We do use corn starch in some of our products, but it does not contain gliadin gluten from wheat, barley, oats or rye grains, which may cause adverse responses in people suffering from Celiac Sprue. https://www.bushbeans.com/en_US/faqs
  18. squirmingitch
    The Chicago Celiac Disease Center recommends 2 weeks eating gluten every day for the endoscopic biopsies. http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ Since the blood test is out of the question for you; you're only going to get one shot at this so you don't want to blow it. If it were ME, I would shoot for eating gluten for...
  19. squirmingitch
    Thanks for posting this!
  20. squirmingitch
    But armpits DO get affected! I had it in my armpits & it's, well, frankly, the pits!!!! OH yeah, dh in the armpits is not a new thing nor an uncommon thing. A gal named pricklypear1971 was on this board for many years & she helped me when I first came along. She had dh in her armpits & that was the first place it presented with her. She had it...
  21. squirmingitch
    Big Question Did you "go gluten free" prior to the endoscopy? Boyfriend needs to brush well before you guys kiss. Drinking water will not do a thing to get rid of gluten. If he brushes well & rinses his brush well you will be safe. Your numbers were high positive, yes.
  22. squirmingitch
    Trying to escape the heat.
  23. squirmingitch
    Can you post the results of the celiac panel here? Please include the reference ranges as well b/c those vary from lab to lab. Celiac, if you carry the genetic marker for it, is often triggered to present by things like pregnancy, an accident, an illness, a major stressor (death in the family) etc... So yes, the pandemonium your body was thrown into...
  24. squirmingitch
    First off, a hearty congratulations on kicking the heroin addiction! My hat is off to you! Like Karen, I'm a little confused about your statement about your "celiac levels". Are you saying you have celiac disease? For how long? On the other hand, it seems like you are saying you've just been diagnosed with celiac & are wondering if celiac is...
  25. squirmingitch
    I agree with Tessa in every respect. Make sure he takes 6 biopsies.
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