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squirmingitch

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Everything posted by squirmingitch

  1. squirmingitch
    Thanks Shroomie. It does suck.
  2. squirmingitch
    Photos taken on 1/19/13. http://farm9.staticflickr.com/8086/8397268918_25a514e824_z.jpg Above is the flesh eating lesions you saw earlier. http://farm9.staticflickr.com/8329/8397268656_f95f1f68df.jpg Below is the underside of my breast. http://farm9.staticflickr.com/8232/8397268718_b204fa28b6.jpg Lesions on my front: http...
  3. squirmingitch
    Since dh can flare at any time until all the antibodies are out of our skin, I thought it would be good to show such as well as the progression of it as it ravages the skin. I have been absolutely strict gluten-free since Dec. of 2011. We have a gluten-free household & eat 99% whole foods. Have not eaten out at all. My dh had improved greatly upon going...
  4. squirmingitch
    DH is called "the suicidal itch" & that's for a reason. It itches insanely, burns, stings, & the lesions can be painful & sore.
  5. squirmingitch
    I'm really sorry you feel that way. The conversation didn't get squashed; it got moved ---- to here: and it takes a moderator to move it. I am not a moderator. You DO have ideas to contribute, things to discuss, photos to share & I hope you will reconsider your decision. No one said you could not do all those things. They just need to have...
  6. squirmingitch
    :lol: :lol:
  7. squirmingitch
    Now there's a thought.
  8. squirmingitch
    Aye. The simple pleasures.
  9. squirmingitch
    YAY! Doing a happy dance here. Woooooo Hooooooo! :lol:
  10. squirmingitch
    Oh! That is easier than I thought. Thanks Karen! Yes, Peter, this is exactly what I want to be able to do. To type between each one Or even before the first one. YOU are a smarty pants! Thanks all!
  11. squirmingitch
    I have looked for instructions but I didn't find any. If there are some then please point me there --- I am happy trying to learn it from instructions. But darn it! I do not know how to use the multiquote feature & it would be so nice to & make things much easier at times. Can someone please tell me how it is done? Thank you.
  12. squirmingitch
    Yes, moneek. The dh photo bank is pretty much so that people coming on the site can go directly to it to see photos of dh in it's many, & varied presentations. It was not intended for a discussion thread other than a short comment here or there. New people wanting to look at or compare photos would have to wade through a whole bunch of discussion in order...
  13. squirmingitch
    Welcome to the board moneek! And to the club none of us ever wanted to be members of. Tealiemonster is new here too. If you read the threads she has posted on then it will help you to learn. I am so sorry to hear you lost your home to Sandy. I come from hurricane territory myself having lived most of my life in southeastern coastal Fl. so i know full...
  14. squirmingitch
    This is the thread ampmomof3 spoke about. I will reply there since the bulk of the information is there.
  15. squirmingitch
    FWIW I have only eaten out once since going gluten-free & that was before my hubs found out he had it TOO. We went to Chinese & I brought my own food, a sandwich, I ordered wine & an iced tea to drink with my sandwich. They had no problem with it & I told them in advance what I was going to do. To me, it's just not worth taking the risk. It...
  16. squirmingitch
    Oh you poor, poor thing!!!!! You've got it BAD don't you? Well, I don't know really anything about the dosing of Dapsone but I would say maybe you need to talk to your doc about upping the dosage. Now, upping the dosage will not make the places heal any faster. This stuff takes it's own sweet time healing & it is vexing in the extreme. So Dapsone will...
  17. squirmingitch
    You ever get the feeling that most of the doctors out there went to the Frank Burns School of Medicine?
  18. squirmingitch
    Yup, between the blisters, the photos & the itching; I say it looks like dh. I hope after gluten-free they almost never or never come back for you but just remember they can. And dh is very, very sensitive to the tiniest amount of gluten. So don't take any chances. Play it really safe otherwise it may go gangbusters on you.
  19. squirmingitch
    Looks a lot like dh to me. I don't believe psoriasis blisters. Does yours burn or sting? Tail bone is a classic place for dh to present. You might be lucky so far in that it doesn't drive you nuts itching ---- yet. How long do the lesions usually last before they heal? Oh, gee, I see now you are dx'd celiac ---- in that case you have dh. You've been gluten...
  20. squirmingitch
    I was thinking about doing the iodine patch test in the beginning but I did a lot of research on it & mostly IMHO, I think it's up for grabs or a lot of hooey. I don't know. You COULD go low iodine. Here's a link: http://www.thyca.org/rai.htm#diet If things don't start clearing up in a week or less & certainly if no improvement is seen in ...
  21. squirmingitch
    My rash & my husbands are improving gluten free. But one has to remember it's not always an overnight thing with dh as the IgA can take 2 years (some med. papers say up to 10 years) to work it's way out of our skin. As to the Dapsone; many of us will not take it, it's some scary stuff, & some of us such as myself can't take it as it's in the sulfa...
  22. squirmingitch
    I never took photos of it at it's worst before I went gluten-free except those few on my neck. I could not stand to look at myself. I certainly couldn't see why I would want photos of the horror hanging around. Now I wish I had. Might be good proof to a derm one day. Hindsight 20/20. I certainly hope your never comes back again! NEVER!
  23. squirmingitch
    These first 4 are from Sept. 2011 when I was on the verge of discovering this was dh. This 1 shows the clear amber fluid. The blisters were coming up so fast & bursting all by themselves. The following ones are after 6 months gluten free & several months low salicylate & not a lot of iodine but I had been doing so well that I couldn...
  24. squirmingitch
    This is why you can't find the fast melts. [url="http://www.benadryl.com/recall_nov152010"]http://www.benadryl.com/recall_nov152010[/url] I was just looking for them on drugstore.com & it says the manufacturer is out of stock. so I went looking for the reason & found the recall info. I have tried the liquid but something about...
  25. squirmingitch
    WTF??????
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