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squirmingitch

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by squirmingitch

  1. squirmingitch
    Ditto for me!!!! In fact, I'm looking at my ATK Cookbook Vol. 1, pg. 13 right now. In the top right column there it is titled "Using milk powder" and it doesn't say a word about not using anything called "instant" milk powder. I think you must have gotten some newbie at ATK who didn't know what they were talking about. I've never in my life seen a milk powder...
  2. squirmingitch
    Read our Newbie 101 here:
  3. squirmingitch
    Short answer to this: Has anyone else been through the denial phase and emotional upset upon realizing the life changes that have to happen just to feel better when eating? All of us!!!!!! It's mourning & it's normal. Breaking down in the grocery store & sobbing? Yep. Normal & I think we've all done it at least once if not multiple...
  4. squirmingitch
    How about cooked fruits? You could even cook bananas. This is just something to think about. This may sound rambling for a bit but stick with me please.: I feed my dog a raw diet and part of that raw diet is all kinds of fruits & veggies. The catch is that the fruits & veggies have to be frozen & then I thaw it for her to eat. So what...
  5. squirmingitch
    So to repeat, you will have to do a gluten challenge which is 12 weeks of eating 1 slice of bread per day for the blood tests or 2 weeks of gluten eating for an endoscopy.
  6. squirmingitch
    I agree!
  7. squirmingitch
    You're welcome ritamichelle. Yes, if you are biopsy confirmed then it will be much easier to get your daughter tested.
  8. squirmingitch
    Furthermore, getting a positive on the endoscopy will leave no doubt either in your mind nor in the minds of the rest of your family or friends. All first degree relatives of celiacs need to be tested every 2 or 3 years in the absence of symptoms & immediately if symptoms present since celiac can present at ANY age. So your parents, siblings & your...
  9. squirmingitch
    It seems like you really need a concrete or near concrete answer so I would say maybe you ought to get the gene testing. Then you can decide on the gluten challenge. Thanks! I am convinced our dogs are there waiting for us. Meanwhile they are playing, running, laughing, barking & chasing. I have another favorite quote dealing with dogs: ...
  10. squirmingitch
    Most (90%-95%) patients with celiac disease have 1 or 2 copies of HLA-DQ2 haplotype (see below), while the remainder have HLA-DQ8 haplotype. Rare exceptions to these associations have been occasionally seen. In 1 study of celiac disease, only 0.7% of patients with celiac disease lacked the HLA alleles mentioned above. Results are reported as permissive, nonpermissive...
  11. squirmingitch
    This is not quite as cut & dried as it sounds. Although rare, there are diagnosed celiacs who do not have either of those genes. Ravenwoodglass, who posted above, is one of those people. I think she has double DQ9 genes? Am I right Raven? My point is, that getting the gene testing is not an absolute determination either way.
  12. squirmingitch
    Yep, we really have it good when you think about it. The only treatment for us is eating gluten free. No pills, no chemo, no radiation. And there is plenty for us to eat, especially now with so many gluten-free foods on the market that are tasty. Labeling laws make it easier too. 20 years ago, these things were not true and celiacs had to be wary of so much...
  13. squirmingitch
    First degree relatives of celiacs should be tested every 2 years in the absence of symptoms & immediately if symptoms present since celiac can present at any age. Celiac affects every cell in the body & inflammation is common. My inflammation began in my lower back and the bend of my leg (on the back side of the knees). It progressed to literally...
  14. squirmingitch
    You'll get there. It's very early days yet.
  15. squirmingitch
    KALE! It really is a super food. Lots of Vit C as well as other vitamins & minerals. Now I know you wanted something to drink but I'm just saying kale is hard to beat for nutrition. You can add it to liquids but yes, it does tend to have a strong flavor. As far as OJ goes, I rarely ever drink it & that includes pre-diagnosis. Every time I have...
  16. squirmingitch
    Optimistic! (Insert jumping up & down with joy emoji here) You are doing GREAT!!! Kudos!
  17. squirmingitch
    This scare over the "natural flavorings" is one of those internet myths. By law, in the US, wheat must always be clearly listed as WHEAT on the ingredients list. This is because wheat is also 1 of the top 8 allergens so they can't hide it by saying natural flavorings. Now that leaves us with rye & barley. We all know rye is in very few things & you...
  18. squirmingitch
    You are entirely welcome here! We have & welcome both celiacs as well as non celiac gluten sensitives (NCGS). We recommend NCGS people follow the same strict gluten free diet as us celiacs do. There is research being conducted on NCGS but we don't yet know enough about it to determine if it causes some permanent damage somewhere in the body so better...
  19. squirmingitch
    You don't need luck because you've been so very careful & conscientious. Your numbers will come back great! But I'll wish you luck anyway & tell you to stop being anxious.
  20. squirmingitch
    A wheat allergy would not produce those numbers not to mention those are not the blood tests one would do for a wheat allergy. The tests that were done are for celiac disease. BTW, if the GI gives him a dx, which I'm sure will happen whether or not she does an endoscopy, then all 1st degree relatives need to be tested every 2 years in the absence of...
  21. squirmingitch
    You're welcome and I'm hoping you are one of the lucky ones whose rash resolves quickly. I have to say most do. Months, maybe a year but then some of us can go years.
  22. squirmingitch
    Here's a list of Hershey's gluten-free products. Warning: the list says it was last updated Sept. 22. 2015. However, Hershey's is very good about labeling so look at the ingredients list on the package. From their website: The best way to determine if our products contain a gluten ingredient is to read our product label. This label includes an accurate...
  23. squirmingitch
    There's the rub. You don't know by judging how the rash acts ..... at least not for a while. The rash can present even when you are strict gluten-free. The rash can go away even if you're eating gluten. You see, the antibodies get deposited under the skin & just sit there like little grenades and those grenades have a mind of their own as to when they...
  24. squirmingitch
    Cyclinglady & I must be long lost sisters or something. I use the Vaseline Intensive Care (white bottle) also. I was also going to suggest coconut oil or even olive oil. We don't have a Costco here so no Costco shampoo for me but I use the Suave Naturals shampoo - cheap & I have hair down past my rear; it works great & I have zero complaints about...
  25. squirmingitch
    Great links you two!
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