squirmingitch
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by squirmingitch
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Please do not spread rumors like this on the board. These 2 items are a huge misconception. Please read the following links: http://www.glutenfreedietitian.com/flavorings-extracts-are-they-gluten-free/ http://www.delightglutenfree.com/glutenfreemyths#.Vm8UoRGG-Ww If natural flavors and carmel coloring were glutening celiacs then most of us... -
Gosh Karen, I'm so sorry this is happening to you. It sounds like you read in the dh section. I'm going to repeat some things so please have patience. Just trying to get to the bottom of things for you. Have you checked? Shampoo, lotions, any topical product that can get on your hands & in your mouth or lesions or mucus membranes. How...
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I took Trazodone but only briefly. It upset my tummy & made me nauseous but that was very early on in my gluten-free life & I know my gut was in poor shape so I imagine that was why the Trazodone made me nauseous. At any rate, I did not have any bad reaction to it in any other way. At least you now know what's going on. You might have to resort to...
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You're welcome! I wish I could find references to derms like that all the time -- just got lucky that the Houston chapter had that on their website. Do you know what labs the GI did? You've probably done enough research by now to know that half the time (or more) GI's don't even know what the full celiac blood panel consists of. I'm betting he didn't...
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Oh boy! You have them on your elbows & knees & now he's not satisfied but wants them to also be on your buttocks & hairline. What an ass! If I had a nickel for every time someone said their derm said it couldn't be dh b/c it was NOT on their elbows & knees I would be a very wealthy woman. Find a new derm. Check out this link -- there is a...
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As to the question of the BO ~~~ I have always had a problem with very loud BO. I can get out of the shower & within 5 minutes have bad BO. This is what takes care of it for me: Shave your pits every day if that's what it takes. I find the tiniest growth of underarm hair has the effect as if I had a forest growing in there. Mitchum antiperspirant -- nothing...
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Mars makes M&M's & here is a link to their allergen policy: https://www.mms.com/us/legal/allergen.html This is the most up to date ingredient list I can find online as i do not have any peanut butter M&M's on hand to actually read the label. Milk Chocolate (Sugar, Cocoa Butter, Chocolate, Skim Milk, Milkfat, Lactose, Peanuts, Soy Lecithin...
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We haven't heard from JaneWhoLovesRain in years now so I imagine she won't see your post. As far as how long the Dapsone takes to give you some relief; I have never been on it (allergic to sulfa drugs) but from what others say it should start giving you relief in just days. BTW, I've had on the back of both knees. In fact, I had it there long before...
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He did it wrong. A biopsy for dh has to be taken from clear skin ADJACENT to an ACTIVE lesion. The biopsy has to be sent to the lab with instructions that they are looking for dh. AND the patient HAS to be actively eating a full gluten diet for 2 months prior to the biopsy or you will get a false negative.
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How long have you been gluten-free? You can either stay that way or go back to a full gluten diet for 2 months & then go to a derm & get a dh biopsy. Read threads on here to make sure they do the biopsy right. There are many gluten related rashes with celiac disease & not all of them are dh but I'm not saying yours isn't -- I'm just saying it...
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DH can present anywhere on the body. I'm not sure what you are describing really sounds like dh though.
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Low risk does not mean NO risk. If you're high risk you can have celiac, if you're low risk you can have celiac. 90% of the docs out there STILL think celiac is a RARE disease. We get this kind of stuff all the time. Docs just don't understand that 1 in 133 people have celiac disease. 90% of people don't know they have celiac disease & part of that is...
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YES! It does get easier, I promise! Really it does. Personally, I wouldn't eat anything I don't make myself. Carry food with you. No way, no how, that i would eat anything I don't make. Too much chance of cross contamination. Family & friends may mean well but they don't know all the rules. Hey, it's hard enough for us to get all the rules down pat ...
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It sounds so much like dh to me. The bilateral "echo" is a real clue. The type of itching you describe, that it goes haywire (as if i doesn't go haywire all the time anyway (smirk)), the way it presents, how you react when you eat gluten. It all adds up. Okay, you don't have to stay with the low iodine diet. Most people find they can do it for 2 weeks &...
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Chris, please don't give up. I know it's rough. Stay with your support group ~~~ they will help you & you need the support. When you see your GI, make sure to tell him you had been gluten-free for so many months & only went back to eating gluten about 13 days before the tests. Your lab bloods don't mean a thing since they are invalidated so...
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Ahhhh, I see. Thanks greenbeanie for the info.. I agree with you about the biomarker for NCGI & will even go so far as to say that one day we will have a way to dx celiac disease without the need for glutening oneself. Oh, won't those be happy days? Happy, happy days! Well, once again we're back to that saying --- if it makes you sick, don't eat it...
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greenbeanie, so your daughter is dx'd from positive blood & endoscopy. You are negative for genes. Has your daughters father been gene tested? I ask because your daughter HAD to get the genes from somewhere & if not you then your hubs. If your hubs is negative then something has to be wrong with your gene test. Of course, 1/3 of the population has...
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Hmmmmmm.... I don't know if the minus would be before or after. Can you perhaps scan that & post it here? You can black out your personal info so we don't see that part. Don't worry about asking lots of questions! That's what Celiac.com is about. I feel your frustration. I'm so sorry. I know you just want to feel good again & wonder if you ever...
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I think I have the key. In your last post Chris, you put DQ2- (note the minus sign) and DQ8 which has no minus sign beside it. If that is correct, then my interpretation is that it's saying you do not have DQ2 gene but you do have DQ8 gene. You don't have to have BOTH genes to be celiac but the probability goes down if you only have one. See: http://www...
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I don't understand this at all. DQ2 & DQ8 are the celiac genes. This makes no sense. Maybe Colleen can call in some troops to look at this. I'm in the middle of switching computers & trying to get all my info. migrated over to this new one plus a learning curve b/c this is a Mac. All my reference material is over on the other computer yet...
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Oh, wait a minute! I read your post wrong about the gene testing. I don't understand..... it says no haloype detected yet doesn't state what your genes are?
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I gave Colleen a holler about the bloods --- others are better at that than I. BUT, BUT, BUT, 13 days is not enough time back on gluten after being off it since late Sept. So the tests are false negative; at least I would bet my hat on it with a 99% chance of being false negative. Dairy doesn't make non celiac gluten intolerant people sick --- it's celiacs...
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I edited my post above so go back to make sure you read all of it please. Thanks!
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I don't know everything about it but I know a good deal. You're embarrassing me Colleen. Okay, down to business. 60% of the time, those with dh test negative on the celiac blood panel. That brings us to the question of whether the doc even did the full, current blood panel. You should get your test results from the doc & compare them to this: ...
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It's sometimes very hard to tell from photos but I'm saying it's certainly possible. Considering what else you have said, that adds weight toward the side of dh but there are many skin issues & other rashes associated with celiac disease. However, I'm still going to say it seems like you tip the scales on the side of dh.
