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squirmingitch

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by squirmingitch

  1. squirmingitch
    I am also curious as to the blood tests & the results of them. Will you please get a copy & post them along with their reference ranges? There are 6 tests in the full celiac serum panel. They are: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide ...
  2. squirmingitch
    ?
  3. squirmingitch
    https://celiac.org/about-celiac-disease/related-conditions/oral-health/
  4. squirmingitch
    As Father Mulcahy would say, "Jocularity, jocularity!" I love it GFinDC!
  5. squirmingitch
    Interesting! Just to add to this..... I am a suthunuh & mom always bought hominy grits. I knew what made hominy grits different than ordinary grits or rather I should say I knew what made hominy corn different because I asked & mom explained that hominy was treated with lye to soften it but I don't recall anything about the process allowing the niacin...
  6. squirmingitch
    Ditto this! I will forever be grateful for this site for the reasons Karen has stated here.
  7. squirmingitch
    This!!!!! A thousand times THIS!!!!!! I am positive this is off putting to new people. I'm not a new people & it's come very close to driving me away and I mean that with every fiber of my being. I see Posterboy & my mind screams. Here we go with the pellagra post again and if it isn't that, it's some other nutrient deficiency. He's so single minded...
  8. squirmingitch
    How did the dermatologist take the biopsy of the rash? ON a lesion or on CLEAR skin ADJACENT to a fresh lesion? What did the term write down for the pathologist? Did the derm say he/she wanted to rule out dh? IF you have dh, be aware that it can come & go whether you're eating gluten or not. You see, the antibodies get deposited under the skin &...
  9. squirmingitch
    You're so welcome! OK, so it just looks like you're one of those weird testers. LOL! Nothing wrong with that. We get all kinds of people on here with "not the usual" test results. Sometimes I wonder if the medical profession really knows what's "the usual" or not. But hey, that's why there's more than 1 test in the full panel and thank goodness b/c it caught...
  10. squirmingitch
    It only takes 1 positive on the celiac serum panel to trigger going forward with an endoscopic biopsy for celiac disease. With a positive DGP IgG, you have that. http://www.cureceliacdisease.org/faq/are-raised-dgp-igg-levels-an-early-sign-of-celiac-disease/ Cyclinglady only tests positive on the DGP IgA if I recall correctly & she is biopsy...
  11. squirmingitch
    And stay clear of oats for a very minimum of 6 months preferably a year. Many of us with dh react even to purity protocol grown oats.
  12. squirmingitch
    It can leave purple marks. They fade & disappear with time. I'm not sure I would describe it as muscle pain exactly but it certainly causes inflammation in the area & that inflammation does travel along the nerves. I've had areas where I would describe it as a bruised feeling or a sore feeling. Did you go gluten free before getting the skin...
  13. squirmingitch
    Do you have a dx of dh? If so, & you are in the US, then a dx of dh IS a dx of celiac disease and no other testing is required. Maybe you are trying to get a celiac diagnosis? If you have active/new dh lesions AND you last had gluten within the last couple of days, then start eating gluten right now & go get a dh biopsy done. There is no answer...
  14. squirmingitch
    Firstly, you imply that companies used to be prohibited from putting gluten-free on the label if it was processed in a plant that processed wheat. That would not be a true statement. Companies have never been barred form making a gluten-free claim even though the product was made in a facility where wheat also was. Barilla says their gluten-free pasta...
  15. squirmingitch
    I didn't realize you are in the UK. Yes, I understand it could take a good while before you can get an endoscopy done. Did the dermatologist tell you that you could stop eating gluten or to keep eating it or was nothing said about that at all? I take it it was the dermatologist who scheduled the appt. with the Gastro? Since I don't know all the in's...
  16. squirmingitch
    Great replies by Karen & knitty kitty. I just want to caution you Booster79 to make a copy of the info. Karen linked you to & take it with you to the gastroenterologist BECAUSE they don't often know 1) about dh 2) that a positive biopsy of dh IS a positive dx of celiac disease in & of itself 3) the villi damage in those of us with dh tends to...
  17. squirmingitch
    Hi Erica, I don't know what your neurologist did exactly as blood tests but there is no such thing as a blood test for non celiac gluten sensitivity. At least not a blood test that has been medically proven. You need to ask the doc why he/she gave you that diagnosis -- based on what? NCGS can be diagnosed based upon elimination of other things including celiac...
  18. squirmingitch
    http://www.cureceliacdisease.org/faq/can-someone-with-celiac-disease-who-didnt-initially-have-dermatitis-herpetiformis-dh-develop-it-if-heshe-has-continued-gluten-exposure/ http://www.cureceliacdisease.org/faq/im-scheduled-to-have-a-skin-biopsy-to-screen-for-celiac-disease-should-i-maintain-a-gluten-containing-diet-similar-to-those-who-are-being...
  19. squirmingitch
    Frangipani, If after 19 years of eating gluten-free, you are still getting dh then you are still getting glutened. Perhaps too often getting cross contamination or perhaps you are so sensitive that even the certified gluten-free foods have too much gluten for you. As to the dermatologist, You do realize don't you that you can not be tested for...
  20. squirmingitch
    https://www.target.com/p/acetaminophen-extra-strength-pain-reliever-fever-reducer-caplets-up-up-153/-/A-51217955 But if you really want to do something about the labeling of things like this then write, call or email your US House representative & urge them to co-sponsor this bill: https://www.congress.gov/bill/116th-congress/house-bill/207...
  21. squirmingitch
    Oh dear! I didn't see Gem had posted -- I never got a notification. Nor did I get a notification for your post GFinDC. That's really weird that I should have to "watch" my own thread. OK so whatever, I'm watching my own thread now. LOL! Thanks Gemini! Actually my best friend & her hubby take (or took) LDN for umpteen years. I'm not sure if they...
  22. squirmingitch
    There could be something wrong. I went to 6 OB/GYN's in 4 years trying to get one of them to acknowledge what I was telling them. My periods were basically non existent. A mini pad for one day would only have one spot on it. Sheesh! They have you fill out paperwork that ASKS if there are any changes; when you say yes & write it out, you expect them to...
  23. squirmingitch
    For those of you who love pears, here are a whole bunch of swallow your tongue gluten free recipes using pears. https://usapears.org/search-recipes/gluten-free/
  24. squirmingitch
    Not to mention the fact that (for those using the Nima) the Nima sensor has been known to give false positives. https://www.theverge.com/2019/4/1/18080666/nima-sensor-testing-fda-food-allergy-gluten-peanut-transparency-data https://www.celiac.ca/cca-statement-nima-gluten-sensor/ https://www.allergy-insight.com/nima-is-it-really-96-9-accurate...
  25. squirmingitch
    vvicin02 How about trying totally gluten-free restaurants? Are there any within reasonable distance from you? That way you could feel comfortable & you & your wife get to go out once in a while. Personally I am far too sensitive to risk eating out at all and we have no completely gluten-free eateries anywhere near us.
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