jeanzdyn

I posted this a little while back... (in a different thread, got no reply). well, now I'm in the same boat again.

This time I slept nine hours last night, got up to eat brunch and watch TV, then slept about 2+ hours. My head feels funny and I could totally fall asleep again. My body is screaming at me to but I'm going to wait as long as I can and try to sleep at night instead.

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How do you handle sleep episodes like this where you feel headachy and sick and can't get anything worthwhile done? luckily I'm not employed atm, but I mean to be soon.

I've dealt with extreme sleepiness before but that was when I was actually out and about doing things, not just sitting around eating and watching TV and then sleeping. .................

What you are describing about sleep and getting up and then an hour or two later going back to sleep --that is exactly what I have been experiencing! That is my weekend: sleep for 9 or more hours, get up eat, watch a little tv, and then back to sleep again for 2 to 4 hours. Then up for a few hours and back to sleep again. Sometimes I am only up for 2 hours at a time. Give me a place to lay down -anyplace, anytime and I can sleep. I have not gotten much done on the weekends in months, all I do on the weekend is take a lot of naps.

I do have to say that I was just diagnosed 2-1/2 months ago and have not stayed completely true to the gluten-free diet.

This sleep pattern on the weekends has been what I have experienced for most of the last year.

If I have a place to go, something to do, then I don't sleep as much, and it does not seem to affect me in a bad way at all. But, staying home on the weekend, then I take a lot of naps.

I was diagnosed with "possible" Celiac disease back in November (2011).

That is what they said to me "possible Celiac disease", however I was not surprised to hear that, and I know that I do indeed have Celiac disease. I know because so many of the symptoms fit and because if I observe a gluten-free diet I feel so much better. I struggled for too many years with symptoms that doctors seemed to find puzzling, and then I finally talked to a gastroenterologist because I wanted to have colonoscopy. After spending 4/5's of my life trying to figure out how my myriad of symptoms fit together it is a relief to know that I actually have a medical condition and it is not "all in my head". On my own I had tracked my symptom-ology down to Sjogren's Syndrome and now to learn that it can be related to Celiac Disease --at least I was not far off in tracking down this thing that has made me so sick for so long!

I had experimented with taking wheat, in the form of breads and pastas, out of my diet and that helped with some of my symptoms. Anyway, it has been a very long journey, and while no one is happy to have Celiac Disease, I am happy to know what on earth is wrong with my body!