Diosa

Thanks guys!!

I've only been gluten free for 2 weeks (only a week before I was tested), but it's made a world of difference, so long as I don't eat any by mistake.

My nutritionist warned me that corn, soy and rice weren't really good for me, and I have to agree with the corn and soy. Soy makes me feel ill, and cornflakes flared up the pain. But rice/rice flour seems to be ok.

I guess you guys are right. I don't really *need* the test results. It's the geek in me wanting straight up answers. That's all it is. It's just been such an ordeal (as I'm sure you guys will understand). I'm supposed to go talk to the specialist in late July (gastro guy) so I may bring up the gene test. I know they want to do the scope, so if there's damage he could see and do a biopsy while he's in there.

Right now its just learning how to cope, and what I can eat. I know meat, dairy and cheese don't give me too much hassle and eggs seem ok. I don't dare go near veggies without probiotics, and I don't like fruit (hence the reason going sugar-free wasn't too hard). I seem to do ok with Malitol and the other sugar alcohols as well.

I guess I just feel lost since all this shook down.

nini, what is dx? Diagnosis?

Hi all. I'm new here and really could use some advice. I'll try to keep this as short as I can.

Last October I started having some really bad food issues. I had been trying to lose weight and first did WW, then SBD, then back to WW and then SBD, then nothing. After about 3 weeks I would get amazingly ill and could barely function on any of these diets. October is when it really reached a head. I was constantly ill, cranky, migraines and the like. It totally ruined the visit with my future in-laws, let alone the holidays. January I went back to low carb/surgar-free. It didn't help. So I cut all sugar out of my diet, along with all processed flours and that helped some, but I was still not totally there. Two months ago, right after my fiance had his appendix rupture, I started having severe pain in my right side. Everyone thought it was gall bladder but every test showed up negative. They also thought ulcerated colitis (but not very seriously), Crohn's disease (also not extremely seriously), IBS, ulcers, and gastritis. So far, all have been ruled out. I've had a couple more ER visits due to pain and doctor appointments galore, when someone thought it was possible I had celiac sprue. So I decided to cut all wheat out of my diet (still sugar-free mind) and for the last two weeks I've felt so much better. The pain is at a manageable level finally, and I have more energy than I have in 2 months. But the problem is, the test results came back negative. I don't know what he ran, just one test for the antibodies. I had eaten a piece of white bread the night before and was totally incapacitated from the pain (even painkillers didn't totally alleviate it)

So could it still be celiac or am I going in totally the wrong direction? I admit I feel better when I don't eat wheat/gluten. The good news is I love to cook so I can avoid some of the hidden stuff, but I really don't know where to go or what to do. I've never experienced anything like this before, nor do I know anyone with it. Any help/advice/direction/support (if I can be so bold) would be appreciated.

Thanks,

Beth