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1desperateladysaved

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Blog Entries posted by 1desperateladysaved

  1. 1desperateladysaved
    In the beginning of my celiac journey; I expected that my biological children may also have celiac disease.  I urged for the whole family to use caution and do a trial gluten free. Because of my super-sensitivity to gluten, we created two kitchens. Now, a decade has gone by.  My 5 children grew up and flew the coop.  Not one of them has opted to be tested or go gluten free, so far as I know, although each is gluten aware more so than I would have been. 

    I have one...
  2. 1desperateladysaved
    Sometimes the celiac diagnosis isn't the whole answer.  I don't want to confuse new people; it does take some months to recover, but if recovery takes more than a year, although you sense movement; I would most certainly start looking for other possible problems contributing to your symptoms. I have been there and believe I have conquered.  Here is my list of great helps:
    IGG/IgA sensitivity test:  This essentially helped me to be on the diet I use now as I stopped eat...
  3. 1desperateladysaved
    Source: A Thought On Supplements
  4. 1desperateladysaved
    At the grocery store the other day, I checked out the meats. I noticed a package of turkey breast, which I use to frequently buy before I found out I had allergies to it. I absently passed on by.. I got a few feet away and stopped dead. "Wait" I told myself; I can have turkey! I turned and took a couple of steps back. Oh, right, I thought as I turned away again, but what fun are turkey nuggets without breading? I haven't had breading for months. I walked away. "But wait!" I...
  5. 1desperateladysaved
    I am going down weight loss mountain the past few months. Things are (as usual) too complicated for me to really know why. My own guess ( just now) is that I finally got the last big allergen out of my diet. . I had previously avoided all sweets except for tiny amounts of honey. Honey was something I had not considered for possible allergies, and finally realized it was the only thing left that I had had often when sick. When I pulled honey out, my weight started dropping....
  6. 1desperateladysaved
    I guess many know, but I better be up front to say that I am having allergies most likely from long-term celiac symptoms not diagnosed. At any rate I have healed my villi and had figured that I could stop taking my enzymes. I noticed the following symptoms:
     
    More easily irritated.
    Overwhelmed
    Increasing Fatigue ,
    Weight loss 10 lbs in a few months. (This certainly could be something else)
    Stool containing food fragments and capsule pieces. (At least ...
  7. 1desperateladysaved
    About 1 1/2 years ago I did a food antibody test to see if I could find some safe foods for me to use and any I should not use. The tests searched for Igg and IgA antibodies made by the body to combat foods that it evidently thinks are invading it. The tests showed me several surprises:
     
    Buckwheat threatened my body the hardest! (I was already off gluten.)
    49/60 foods my body interpreted as problems. Surprisingly, this left a few of my favorites which I could ...
  8. 1desperateladysaved
    I am normally a very shy person just wanting to blend in and willingly do what I am asked. However, when doctors told me that I needed to drink high fructose corn syrup, corn in my medications, and plastic (Mira lax) they had overstepped their power and I felt threatened. I swell up if I smell corn, so I knew I couldn't eat it. They dismissed my concern about this saying, "You can do it for the test." I set out to figure out a safe alternative for me to prep for my colonoscopy...
  9. 1desperateladysaved
    Quite possibly I suffered from celiac all of my life. I say 30+ years since I am older than that and can recall bloating and fatigue beginning undeniably at age 19 after a bout with mono-nucleosis. I have been working with my physicians to relieve my symptoms naturally and attempting to get to the roots of problems and solve them since realizing I had a gluten problem about 2 years back.
     
    I haven't been too interested in Medical doctors for years since they could ...
  10. 1desperateladysaved
    Here I go again into territory I have not yet conquered. The challenge: to eat only foods, I had no measured intolerances to, for 6 weeks. These 10 good foods included 5 protein foods, 2 vegetables, and 3 fruits. The test had been for about 85 foods and of them, I had 10 left. I also may eat any food not tested.
     
    I heard the average American only eats 12 foods over and over. For the test, I strived to take in most of the 85 items. Some I already knew I have a problem ...
  11. 1desperateladysaved
    When I was 19 I fell ill with mononucleosis. From than on I carried what seemed like 100 lbs of fatigue on my back. I tried many natural ways to relieve and energize me. You see that I tried to take care of a large family. Yet, sometimes it seemed that it took more energy to make a meal than I got out of the meal. I felt tired, but the doctor said, "Of coarse you are, you have a big family to care for." I often taught home school, in my living room, lying on the couch. While...
  12. 1desperateladysaved
    I recently started on glutamine to help to heal my leaky gut. I had been experiencing general inflammation and that is what the doctor said to do.
    Love it when my body gets dramatic. But, my tummy is now shrinking so fast that I don't know how to stand right. I stick out my tummy in order so that it will look "normal" to me, but I give myself a back ache pushing it out way too far. I never noticed before that I judge my posture by how my tummy looks! It looks like...
  13. 1desperateladysaved
    For decades I kept improving my diet in the hope that the energy and alertness I craved would come and stay. In my desperate way I cut junk food, baked my own 100% whole grain natural bread, and even moved to a farm. Lately, I have been thinking about the desperate way I controlled my diet, while I left exercise to chance.
     
    By chance I got quite a lot of exercise. I am a mother of 7. I help to take care of the house and get people out to their events. I believe I ...
  14. 1desperateladysaved
    Disclaimer: My reactions are unique and may be more than celiac, therefore not many people would need to panic they will get like reactions. The reactions aren't labeled, so I really don't know why I am having them this way. Please don't panic .
     
    Now, My Family Believes Me!
     
     
    In my illness, I would say daily. I am tired. I didn't mean that I over did it a little, but overwhelmingly tired. My family decided that nobody could say and mean that every da...
  15. 1desperateladysaved
    I am not a volunteer to my current position of transitioning from a life of relishing gluten to lady that shrinks back when gluten is near. When the teacher mentioned "health" or an internal organ in elementary school, I felt weak! Sometimes, I would get dizzy and the field of vision turned black! Once a nurse came to school to take our pulses. The teacher helped some, and she tried to take mine. She couldn't find it, so she called the nurse over. The nurse found the pulse...
  16. 1desperateladysaved
    I have just passed through several days of cramping, swelling, and gassiness. All of this as a result of nothing specific that I know of. Perhaps after 19 months gluten free it is just further recovery. Happily, I woke up today without the cramping and felt excellent since.
     
    . Previous blood counts, over the passed 5 years, showed immature blood cells which tended to break easily. These have difficulty carrying oxygen. Late morning I received the happy news. Word ...
  17. 1desperateladysaved
    This year a doctor told me not to eat anywhere but home. My body is acting super-sensitive and I didn't want to rock the boat. I alerted my sister, the hostess, and my brother that I would be unable to eat at the gathering, but would eat on the way there. On the way there I enjoyed my very filling rice and beef casserole. I had planned to do a regular turkey dinner, but when I remembered I couldn't have mashed potatoes and gravy, I skipped it.
     
    After arriving,...
  18. 1desperateladysaved
    Before I diagnosis, I did not feel celiac pain. I would notice my tummy bloating, my legs swelling, and have a pregnant looking belly. I had extreme fatigue and foggy mind, but didn't realize those until it went away one day. I trudged on with these mysterious symptoms that were "All in my head." Wondering in my dreamy state if something possibly was wrong.
     
    Now, I am 18 months (well there about) into a gluten free diet. Some mysterious way, I got some gluten. Right ...
  19. 1desperateladysaved
    I owe a lot to celiac,
     
    If it weren't for celiac I would eat like an American: chips, soda pop, and candy until gone, but undiagnosed celiac motivated me to cut out sweets. I learned to eat vegetables, I grew more and more motivated to learn about and use foods to nourish.
     
    When I got married I knew how to cook hotdogs, chocolate cake, chocolate chip cookies, and scrambled eggs. Oh, I had fried chicken once and browned beef. My family would have learned c...
  20. 1desperateladysaved
    I began my gluten free trek in about May of 2012. I did classic gluten free for a few months and then went grain free. Last November at about 6 months gluten free I had my first nutrient absorption test. In spite of my natural, whole food, organic diet, and many supplements my nutrient levels were low. Especially the Vitamin B levels were unacceptable. I felt rundown and foggy. I dragged myself through my days, Sometimes I felt better and sometimes really bad.
     
    I ...
  21. 1desperateladysaved
    I shouldn't be too surprised. This week (May 12) got off to an awful start. I should have maybe cancelled the dentist for this week. Still, I went off a little optimistic that I would not get lectures this time. I have been gluten free for over a year and hadn't had any cavities for several years.
     
    The hygentist listened half sympathetically as I mentioned that I had mal-absorption (now diagnosed). Another hygentist had told me that mal-absorption could cause deposits ...
  22. 1desperateladysaved
    One day I was feeling perky and having quite an animated discussion with my doctor. I had previously not wanted to consider cutting gluten from my diet.. Desperate as I was, it could not be that helpful. I always thought that my homemade breads were so good for me. Then, I drew a new line and I could avoid gluten if I could just feel better consistently.
     
    I needed to feel like I didn't have to give everything up, so I said, that I wasn't ready to do a rotational ...
  23. 1desperateladysaved
    Onedesperatelady may need a new name! Getting giddy usually happens to me before the next dive comes. Dive after dive has come to me since I have been really battling celiac disease (mostly Undiagnosed) for 6 years! By battling, I mean spending much efforts to help my body work right, my actual plight with celiac. disease has been at least 30 years.
     
    This time I have cause to rejoice. I feel better. I jumped out of bed this morning at 6 am, because I felt ...
  24. 1desperateladysaved
    For this post, a "smiley" with tears gushing out both sides of the face is what I needed. One would think that getting better would be nothing but happy, but I found that grief engulfed me.
     
    For years I had lived in the fog and I knew nothing else. Then one glorious day, the fog cleared. Then the realization struck. I had lived in the fog for 25 years! Another fantastic day, I had more energy then I knew what to do with. I learned that I had lived with extreme fatigue ...
  25. 1desperateladysaved
    I had been living with a nice clear mind for at least a couple of months. I put up with brain fog for nearly 30 years, but now I know something better. Now, when I have to deal with it, I want back out. A taste of the good life makes me more desperate to gain a clear mind back again.
     
    Since I started my rotational diet and a couple of supplements, one to heal my gut, and enzymes to help break down my food I had a nice clear mind. I don't just know what I did, ...
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