flowerqueen
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by flowerqueen
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Yes, definitely give low FODMAP diet a go, it can make a real difference. After 2 months you start to re-introduce foods which are not allowed, one at a time, to see if you can tolerate them - it helps weed out the real offenders.
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Had enough of being sick, what now
flowerqueen replied to markb's topic in Coping with Celiac Disease
I agree with Ennis too. I experienced withdrawal symptoms for a while and even then I didn’t recover for quite a while. Eating foods that harm the gut takes its toll on the whole body and, you will not have been absorbing nutrients from your food once you do start to absorb them again, it’s going to take a while to replenish your ‘stocks’ of vitamins and min... -
Was it a gluten free bagel? If so, you may have become intolerant to foods in your diet. Have you looked at the low FODMAP diet? I have recently gone on this and it does seem to be helping.
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Hi cyclinglady, yes, it does sound like a good diet, but a little strict. I have been doing the low FODMAP for about a week now, which seems to be going okay, although last night I did have some gluten free popcorn last night, but half way through eating realised it had Demerara sugar in it which has molasses in it, so woke up with stomach ache this morning...
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Hi Christiana, you have a good memory, I do indeed live in the UK. My consultant does a full panel every time I visit, so I doubt it’s gluten. I have started a low FODMAP diet, and am feeling quite hopeful, although the amount of other things I’m having to give up, as well as the usual gluten/dairy etc., is a bit daunting, but if it helps get me back on ...
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Thank you for the suggestions. I love salmon and eat it at least once a week. I have decided to go on the low FODMAP diet, so fingers crossed .....
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I don't really eat much processed food, only gluten free bread. Most of the meals I have are cooked from scratch at home. I'm now on the FODMAP diet and apart from running out of ideas for meals, it's going fairly well I just hope it continues to be like that.
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I'll have a look, but it does sound intimidating, I agree, from what you've said and I'm finding the FODMAP diet challenging enough.
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Hi, Thank you for replying; it's strange you should mention rice, I must admit I do find my stomach settles after I've eaten rice too. I will have a look at the Macrobiotic diet, it seemed big years ago, and have forgotten all I knew about it, so will need to refresh my memory.
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Hi, you have a lot to contend with there. A lot of the things you have mentioned, I too have problems with. I think also, my problem maybe, because I have a small list of 'safe' foods, I over-use them, and am worried I am setting myself up for further intolerances in the future.
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Wow! It sounds like you have been through the mill too. I was beginning to think I was alone in this, thank you for sharing. I too, can no longer have beans, I drink decaf coffee, but I'm wondering if I'm going to have to give that one a miss too, it was bad enough giving up caffeine, but to have to give up the taste of coffee too ...... I can't tolerate...
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Thank you, that looks very interesting. It looks a very strict diet, and not sure how I could implement everything as my medication contains things which are on the list of "no no's". I will definitely look into it more though!
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I regularly get blood tests from my doctor as I have more than one auto immune disease, and the recent one came back okay. I feel like I have so many health issues, that I'm playing a juggling act with them all.
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That sounds like a lot to contend with. I have wondered for a while if any sugar/glucose could be a culprit too, it’s hard trying find out exactly what is causing the problem, I’m keeping a food diary. Did you have to have another colonoscopy to get UC diagnosed?
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Since being diagnosed Coeliac a good few years ago now, I seem to have become to intolerant to so many things. At first I just experienced the usual withdrawal from gluten, which took about 6 weeks. Then came intolerance to soya (where I had really bad IBS, including really bad stomach cramps). I had already become intolerant to dairy before being diabetic...
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Yes, it’s a mine field when there’s an in store bakery. I usually cover my mouth and nose with a scarf as I pass by the bakery. One supermarket near me (in the UK) has put their gluten free isle right next to the in store bakery. It makes me wonder sometimes about who’s running these places.
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As the flu shot is given in your arm and not ingested, it will by-pass the stomach and should be okay. I have Coeliac disease and I get mine each year, if that helps you.
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Hi, I live in the UK and have not heard of this product, however, I have heard of gluten being in some washing-up liquids, so it is possible that dishwasher products could be effected too. The best thing to do, to eliminate (possibly) the product from your investigations, is to contact the manufacturers.
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All the above posts are full of good advice. What I'd like to add is, if you have coeliac disease and continue to eat gluten, you run the risk of other autoimmune diseases in the future as well as osteoporosis, malnutrition and even cancer, so even if you had no symptoms at the beginning, and may also not have any symptoms if you eat gluten (not all coeliacs...
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Is it possible you have a bug or the flu? It may not actually be related to gluten contamination. It could also be some kind of bacterial infection. Hope you start to feel better soon.
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The Gluten Contamination Elimination Diet (Summary Of Dr. Fasano's Recent Paper)
flowerqueen commented on jebby's blog entry in The Patient Celiac
NoGrainNoPain, Last week I had some gluten free crackers that were made with quinoa (from my local health store) I have been in pain ever since, it took me a couple of days to work out what was making me ill. By that time, I had eaten them 3 days in a row. I have had terrible stomach cramps etc. When I read an article about the protein in quinoa mimicking... -
Thanks Cristiana, So I'm now a member of the wonky blood test results brigade . I will be speaking to my doctor on Monday, so hopefully I will find out then if it's the same as elevated blood protein. It seems we all learn from each other when we pool our resources. I would have hoped that by now though, my test results would have improved, being diagnosed...
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Hi Cristiana, I don't recall having elevated protein levels, (or not that I've been told), but have had other abnormal results, one in particular is liver enzymes (waiting for an appointment with doctor as I write this). Gemini, where did you go in Britain? In my neck of the woods, there's not many that specialise in gluten free
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I wish I had the answer to this and hope someone on here is able to throw some light on it. I also feel the same way about the blood tests and am always apprehensive while waiting for results. The tests they carry out in UK seem different to the ones in US, I don't know whether it's because we call them something different or what.
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My First Dietician Appointment...
flowerqueen replied to designerstubble's topic in Coping with Celiac Disease
She may be a dietitian but you may not be a 'text book subject' everyone is an individual. I would err on the side of caution with the dairy products too! I have been gluten free for 14 months. When I saw my dietitian at 9 months, she told me to try a little yogurt or cheese (as I became dairy intolerant before I was diagnosed coeliac. I did as she suggested...
