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FruitEnthusiast

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by FruitEnthusiast

  1. Thank you Posterboy, Only glanced at thread so far but noticed a mention of B12. I am trying to get a definitive diagnosis for a very severe B12 deficiency, and my folic acid is low too so the Niacin sounds pretty interesting. I’m anemic too but waiting for tests on that. I take the daily max of magnesium already for C - helps a lot for that. Think I...
  2. Yes eveyone has a different situation, with it’s own challenges for sure, so we just have to do the best we can. I know of no problems with unprocessed frozen foods at all, it’s never been a problem for me.
  3. ...also the way I combat all those long lists of ingredients is I don’t eat anything processed - too much stuff in there. I make everything from scratch using all whole foods. Lots of work but worth the results! Avoiding canned foods helps and whatever you do avoid canned fish - look up Histamine poisoning from canned fish. I went tbrough that and it really s...
  4. trents, glad my post was helpful, I too wish to be finding more help available here in the US. One deflating aspect of this is that it’s being treated in other countries like the UK. Which means we are behind in America on the holistic side of things. Maybe all us HI people could get a special rate to fly over there for help together - oops there goes a...
  5. Hi cycling!! Thanks, was hoping to find more progress made in the Histamine arena by now. I don’t have symptoms of MCAS I’m aware of, just HI. No symptoms of Chrohns, just chronic C, no pain involved. I’ve asked several Drs about Sibo, none have thought I need to be tested for it. In your opinion is Sibo a standard test all of us with these...
  6. Thanks so much for remembering me icelandgirl!! I found GottaSki’s email! Sent her a note!!! So good to be on here again. My computer died but I’m able to do this on my phone!!! Thank you for your support, it means the world right now! ?
  7. Thanks for yor response trents! NCGI is Non Celiac Gluten Intolerant. Yes I am aware of histamine levels in foods. I can eat some fruits not others, cherries are on my “can eat” list. I haven’t been on this site for years. Is it still a place for NCGI people to come with issues or has that changed? At that time NCGI was used frequently here. I’m looking for Drs...
  8. Hi friends! Been a long time, back here seeking info, ideas, referrals or treatment for my Histamine Intolerance. Referrals, info, ideas? I’m NCGI, completely disabled, losing weight. Need to find professionals who treat HI in So Cal?
  9. Oh no, I should have stayed out of this. I thought someone was encouraging others who didn't already smoke to start. I don't take it lightly as I used to smoke cigarettes, and after I quit, there were smokers trying to get me to start up again. I think that experience clouded my judgment here. Cigars and cigarettes are not the same thing anyway, and it wasn...
  10. Really? Why encourage Celiacs who have enough problems already to smoke? Smoking isn't "safe" for anyone. You can do as you please, but c'mon we're trying to get healthier around here for cryin' out loud
  11. Don't go on the trip! Do you have to go? I may have missed something you may have posted already. I assume your husband wants you to go maybe? Put yourself first. There's nothing wrong with telling him you are just not well enough to go. You mention stress and I would hate for you to get worse and lose whatever recovery you have had. No guilt. You deserve...
  12. When I was first diagnosed gluten intolerant, I found I could not tolerate grains of any kind. I haven't tried any of them again yet because I am still recovering and don't want to have problems. I believe there are many people who are able to incorporate gluten free grains back into their diet again successfully and others who are not. Don't know which one...
  13. https://www.celiac.com/articles/22324/1/Gluten-Free-But-Still-Feeling-Ill/Page1.html

    She also has a youtube page with countless videos to help you. I'm on this journey with you and know how frustrating and often times lonely it can be. Please feel free to contact me if you ever need anything

  14. I saw your post about not feeling well yet. I went through a year of being gluten free and yet the sickness persisted. I would urge you to check out " Health now medical" with Dr. Vikki Petersen. There are many reasons, such as fungal candida, malnutrition and cross reaction to foods that may be playing a role in your suffering.

  15. Hmmm... more helpful info, thanks! It's true I haven't had the energy left over lately to exercise and I SO want to get back on my exercise bike. I've been walking 10-20 min some days. I actually crave more vigorous exercise. It does wear me out when I do it now, but 5 min a day on the bike might be do-able, but when I ache all over most days lately,...
  16. Me too, I drink 85 ounces of water every day. Occasional colonics have made a huge difference to get things moving. Before I found out I was gluten intolerant, I used MIRALAX daily for several years and it worked like a charm. Since my diagnosis, I stopped using it in case it was irritating my already inflamed intestinal lining. My colonic tech suggested...
  17. Thanks so much everyone. I do feel cheered up hearing that it's not just me. My switch to Kangen water a week ago might be making a difference. Given what my bm looks like now, I would usually be feeling sick today, but I feel pretty good. It's possible that reg tap water after it's gone through the Kangen filtering machine, making it alkaline, antioxidant...
  18. After about 8 colonics over 2 months, then a colonoscopy prep, magnesium citrate, nothing would move. A cat scan showed there was still an impaction, so my doc said if it wouldn't move after all that, a liquid diet would be necessary. At that point I was on my third colonic technician and she suggested the 30 day raw food diet, because there are more digestive...
  19. Thanks for saying that, because it is miserable, and discouraging. When my bowels don't move, I feel depressed, then when they move again, it's like a dark cloud has lifted and I'm back to my optimistic self again. The psychological and physiological parts go hand in hand. I am having blood work next week to check all my vitamin and mineral levels and...
  20. I eat two avocados and and a tablespoon of olive oil every day. Increasing my olive oil consumption daily is one thing I haven't tried consistently. My weight has been consistent, but lately my scale will show I've gained 5-10 lbs, but I think I'm retaining water. Maybe I should have one avocado a day and increase my olive oil. Once I tried drinking 1/4 cup...
  21. I've seen some really brave posts on here recently, so I am going to talk about my worst symptom. Severe Chronic Constipation. More people seem to have D on this site, and I never do, so I've been embarrassed to bring up my problem. I've been having severe constipation for three years, trying to figure out why. Then I found out about my gluten intolerance...
  22. Interesting. I've had geographic tongue for decades. It comes and goes but I don't know of anything that helps it heal faster. I read it's related to immunity issues. I've had food problems for about as long too. Low blood sugar issues, other food sensitivities, or so I thought. Sure makes me wonder when I first started having gluten problems, since I've...
  23. Try looking for a green symbol that's a circle with gluten-free inside on the back of products. Those products are supposed to be certified gluten free. Other things that say they are gluten free, may or may not be, as I have also found out the hard way. Some manufacturing facilities are certified gluten free, even better. Health food stores are best for...
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