Eclara
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ARCHIVED Sjogren's + false negatives
Eclara replied to Eclara's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Looks like I had (negative) TTG-IGA and IGG done in 2012, but not until I had already been gluten free (without avoiding cc) for nearly 2 years. My rosacea is better than it was and I don't really expect it to improve more than this- it is less bumps and residual redness at this point and more hypersensitivity, flushing and extreme dryness. It does get... -
ARCHIVED Sjogren's + false negatives
Eclara posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
So what's the verdict on false negatives? Because I had my biopsy four years ago and it was negative, my IGA was ignored because it was always 10-20 points below the normal range- but my stomach has never completely recovered from the hellish 8 week pre-biopsy gluten trial I did in 2012 and I have been progressively more sick each year in new and exciting... -
Thank you for the kind replies! I don't really tolerate many other meats or vegetables right now, which is why my diet is so limited. It's part of what I was hoping would improve- I'm dying to get sweet potatoes and cauliflower back especially! I also avoid dairy and soy. The only dairy I tolerate is lactose free kefir which I haven't been drinking the...
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I have been as gluten-free as possible (living in a mixed household, have my own cookware) since my negative biopsy 16 months ago. Ever since the gluten trial I did beforehand I am intolerant of almost everything but especially grains. I eat about as well as can be expected. I'm on a kind of paleo I guess, all meat and vegetables and small servings of fruit...
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ARCHIVED Getting Desperate
Eclara replied to Eclara's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Upper stomach symptoms for me means extreme bloating and pressure, sometimes nausea, and sometimes cramping. I sometimes bloat out so far that I can't fit into my pants comfortably anymore. It usually feels like throwing food into a balloon that's stretched to capacity, and it often feels like the stomach lining itself is very irritated and sore. Overall... -
ARCHIVED Getting Desperate
Eclara posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was gluten-lite for about two years before I did an 8 week gluten challenge for an endoscopy in December. I had horrible symptoms the whole time, but my biopsy came back negative. I went gluten-free the day after the endoscopy, so it's been 9 months completely gluten-free. It took awhile, but most of the symptoms cleared back up. But I developed upper stomach... -
ARCHIVED Archer Farms Ground Ginger
Eclara posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I've been feeling extremely off for the past week or so. Originally, I thought it was leftover from agitating a different food intolerance earlier in the week, but the symptoms are very different. The only thing I changed in my diet was that I started using quite a lot of Archer Farms ground ginger. I read online that they sometimes add small amounts of flour... -
ARCHIVED Extreme Depression As A Reaction
Eclara replied to Eclara's topic in Food Intolerance & Leaky Gut
Thank you for the replies! They say they're certified gluten free, and their policy says: "All of our products and processes are inspected, tested and certified gluten free by the Gluten Free Certification Organization. Additionally, suppliers are required to provide negative-allergen documentation to guarantee their ingredients are gluten... -
I had a TERRIBLE reaction to the "Food Should Taste Good" sweet potato chips, and I'm not sure why. Ingredients: Stone Ground Corn, High Oleic Sunflower Oil and/or Safflower Oil, Sweet Potato, Corn Bran, Evaporated Cane Juice, Sea Salt I've eaten these chips on several different occasions, but I always had something else I blamed the reaction on. Twice...
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Thank you so much for your response! Unfortunately, that is outside of my driving range as I don't have a license and the only person available to drive me can generally only take a couple hours of out his day. I will definitely make note of it for future reference though!
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Anyone have any recommendations for gluten intolerance and celiac-educated doctors, particularly gastros, in the Twin Cities and the southern surrounding areas? Basically anywhere between-ish Lakeville to Minneapolis. I've been to three doctors in the MN Gastro chain so far, and I don't know if I just happened to pick the worst ones but they were enormously...
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ARCHIVED Glutened Or Gastritis Flare?
Eclara replied to Eclara's topic in Coping with Celiac Disease
Thank you all for the replies! I agree that it was probably the gluten, although the wine probably didn't help with the stomach pain. I guess I've learned my lesson about slacking now! I'm doing a little better today, the drugs from my wisdom tooth extraction are masking most of the other symptoms, so there's a plus! Weirdly, the glutening actually turned... -
I went on a road trip this past weekend, and had my first ever drink of alcohol on Sunday night. It was Arbor Mist wine, which from my research appeared to be gluten free. I didn't have much, maybe 2, 2 and half little glasses. I didn't really feel the fun part of it, all it did was flare my rosacea and make my brain fog worse and my stomach a little burny...
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Hello! To recap: I was gluten-free at the suggestion of my then-doctor, but was not careful and not avoiding CC. I did this for about one to two years. I did a gluten trial from mid-October to early December in 2012. Biopsies all came back normal but the trial made me very very sick, triggering gastritis, fibromyalgia, a spike in my thyroid levels, and about...
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ARCHIVED Armour Thyroid
Eclara replied to Eclara's topic in Gluten-Free Foods, Products, Shopping & Medications
Thank you for your reply! I was on 50mcg of levo for 3 years, and I'm on 30mg of Armour now. Do you think I could be having hyper symptoms this fast? I think it's only been five days and I had symptoms after I took it the first day.