Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

spirit-walk

Advanced Members
 View Profile  See their activity

  • Posts

    95

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by spirit-walk

  1. spirit-walk
    Thanks nvsmom and janpell. I usually feel my best when I haven't eaten for several hours. I'm on a mission to gain weight though, so I've been eating as often as possible. Usually when I finish a meal, I feel it in the wrists first. Some days are better than others, but the popping is always there even on the good days. I've gotten to the point that I...
  2. spirit-walk
    They haven't been able to explain it which is why I'm reaching out to this community. However Irish, they didn't say it wasn't a rheumatic condition. Well, SOME (I've seen four different ones) have said I don't have arthritis. One said I have inflammatory arthritis and that he could feel inflammation in my joints. The initial rheumatologist I saw said...
  3. spirit-walk
    I never said neither of those things. I said I had difficulty lecturing when I was experiencing the jaw popping, and I never said it wasn't a big deal.
  4. spirit-walk
    karen, I've seen numerous doctors and have been a pin cushion for blood work. I've had a joint scan and bone scan. Those were both done a while back though, and this all started two years ago. So I'm not sure what an x-ray would show today on the different joints. The last time I asked about it, there were a few people who gave some good feedback. One person...
  5. spirit-walk
    I move all the time. I teach fourth grade and I am constantly on my feet and moving. I've also been in a great deal of pain over the last two years while working and wondered if I can continue as my symptoms progress. It's very difficult to stop stressing when you're in pain all the time and symptoms are getting worse. I've been doing yoga daily for the last...
  6. spirit-walk
    Thanks for the John Hopkins link. Have seen it many times, and it is not describing my particular condition. This is not normal popping that comes from lack of motion. Irish I'm not sure how many times I need to explain this or if I'm simply not explaining it clearly. My bones SNAP. This isn't crackling like when you rise out of bed. My wrist want to...
  7. spirit-walk
    There is pain associated with the popping. I had difficulty lecturing to my class when the jaw popping went on. My hips hurt almost daily from the clicking in them, and when the knee popping gets bad, it is painful. When my wrists pop, they don't generally hurt, but in feels uncomfortable and they feel as if they are locking up at times. Sometimes with a...
  8. spirit-walk
    I posted about my issues with joint popping a while back, but I wanted to try and again to see if I would get any more responses. Does anyone have chronic joint popping? It started with my wrists and shoulders. I had it a while in my jaw but it went away. However, it never stops in the wrists and shoulders and progressed to my knees, hips, and now neck. Once...
  9. spirit-walk
    My symptoms are VERY similar to yours, and I've been almost down the same path. 19 months after the severe joint pain started, I still do not have GI issues that cause stomach or intestinal pain. My biggest problem is that my popping seems to be progressing to other major joints (mainly my knees right now). But I go out and eat at Jason's Deli and have their...
  10. spirit-walk
    I really wonder if I'm undiagnosed Celiac. I've been off gluten for over a year now, and when I had my upper endoscopy done, I'd been off for about 7 months. My villi looked great according to my GI doctor who performed the biopsies. Mayo also said my genetic blood test they did came back absent for Celiac genes/pairs (can't remember). He did say that the...
  11. spirit-walk
    foam, thank you for this information. How did you go about learning of your B12 deficiency? My gastroenterologist (who is apparently the best GI doctor in Austin) is the one who discovered the redness in my stomach when he did my upper endoscopy. He said is was gastritis and didn't really know what could be done about it. He also said my villi looked good...
  12. spirit-walk
    I've been told by four rheumatologists that I don't have arthritis. But, I have severe joint pain if I eat certain foods. Now that I've managed to reduce the joint pain through diet, this popping is taking over. It's like everything is getting loose. There is an autoimmune response going on that is causing this. I'm worried it's degenerative. My shoulders...
  13. spirit-walk
    Thanks. Really don't understand why this popping condition is so rare. Very frightening.
  14. spirit-walk
    When you say IgG, are you referring to something like this? https://www.xymogen.com/products/product-detail.aspx?pid=84
  15. spirit-walk
    Thanks for the prayers. The last few days have been rough. The popping in my knees and ankles is as bad as ever, and I don't really feel like doing anything. Can you expound on "functional medicine" and what IgG product are you referring to? Right now I have started taking RepairVite and Aloe Vera water recommended by a kinesiologist I am seeing. I've been...
  16. spirit-walk
    Hello, I've posted in the past on this board, but it's been a few months. I've been on a year and a half journey that all started with severe joint pain. I thought I had RA, but I've seen numerous doctors (including the Mayo Clinic in Minnesota), and four rheumatologists have ruled out arthritis of any kind. I'm still not sure that I'm not suffering...
  17. spirit-walk
    Yes, big help Lisa! One of my fears is that I'm going to become intolerant to the little foods I have left. I'm already so restricted that it's difficult to eat a healthy amount. I was told to do the rotation diet and not eat foods more than once over a four day period. That's impossible for me. I try to eat them once or twice and then not eat them again...
  18. spirit-walk
    Thanks for the advice Karen. I haven't had a burger in almost a year, b/c I tried to cut out red meat. Same with white potatoes (nightshades). I have done sweet potatoes and chicken breasts in the oven with olive oil though. I love avocado. Haven't had bacon in quite a while either, but I miss it. I just bought my wife and I New York Strips. We'll see how...
  19. spirit-walk
    I'll also add that these food sensitivities came on rapidly. One day I was eating any and everything in front of me. Within a few weeks the joint pain started and became almost unbearable. I saw the nutritionists about 3-4 months later and she did the bloodwork. Whatever happened in the gut, it came on like wildfire and I suddenly couldn't eat so many foods...
  20. spirit-walk
    Yes, I have had many inflammation blood tests done through rheumatologists. All have come back negative. Couldn't understand how it never showed up in my blood when I was feeling it all the time. So, if you're correct about it not ruling out inflammation caused by food, that would make a lot of sense for me. I saw a nutritionist that did a food sensitivities...
  21. spirit-walk
    Thanks Lisa, I have been gluten free for the last 9 months. There may have been a handful of times that I accidentally ate something with gluten in it, and I have eaten stuff like Nut-Thins that say they are wheat and gluten free but have a disclaimer (produced in a facility that also makes products containing wheat). I've had many blood tests done including...
  22. spirit-walk
    My wife said the doctor told her my stomach was more red that usual and said it could be gastritis. Also said I had a polyp in my esophagus that he removed. He took biopsies of the polyp and stomach and I believe they are testing for celiac and not sure what else. My symptoms are just like what I would read for celiac, except instead of major stomach...
  23. spirit-walk
    I look forward to your post and any others who could shed some light. I am highly concerned about the persistent popping in the shoulders and wrists. Also if anyone has any ideas on how to add calories for someone who can't have gluten, dairy or eggs, that would be helpful. Had an upper endoscopy and colonoscopy today. I'll get results within the next...
  24. spirit-walk
    Thanks. I think I actually looked that site up and read it a couple of weeks ago. Dr. Alessio Fasano, one of the leading Celiac Doctor's speaks about Leaky Gut here: http://www.(Company Name Removed - They Spammed This Forum and are Banned)/gluten-free-society-blog/dr-fasano-on-leaky-gut-syndrome-and-gluten-sensitivity/ This is part of the frustration...
  25. spirit-walk
    Thanks for all the advice and information nvsmom. I've had my thyroid and hormones checked, but I still wonder about my thyroid. My hands get very cold when they aren't feeling feverish and hurting. I'll ask my gastro doctor about my genetic testing for Celiac. Do you have any thoughts on "leaky gut?" I've read about it on the web and was told I likely...
×
×
  • Create New...