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guest134

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Everything posted by guest134

  1. guest134
    I agree that it is more specific to Celiac than any other disease but there is a point to looking at it by a patient by patient basis. Theoretically 95 out of 100 patients with elevated TTG have Celiac but the University of Chicago used these theories to also swing the ball the other way: "tTG are thought to be 97-98% specific, but by definition this means...
  2. guest134
    Yeah but there is a long list of things to investigate before claiming someone is "just in denial". It looks to me like the original poster probably has Celiac but I find Takala constantly makes posts that are so ignorant and inflammatory so I was going after that. To just group everyone who has looked at a wide spectrum of issues WITH their doctors and ruled...
  3. guest134
    What? So people have inconclusive tests and follow up tests come back negative while their not so related to Celiac symptoms DO NOT improve on a gluten free diet and you think that it means they are just in denial about having Celiac? This, as many of your posts do, shows how little you know about the blood tests or OTHER diseases/issues that go on in the...
  4. guest134
    Ok, well Lupus at 48 is rather uncommon. Even if you did have Lupus, why would you end your life? Would you really want to succumb to this? You have to be stronger than that! My grandfathers brother had Lupus, guess what age he lived to? 92, no I am not kidding you NINETY-TWO. My grandfather who was perfectly healthy lived until 88. Lupus is known to often...
  5. guest134
    Robb, I am really sorry to hear how poorly you feel, hopefully you can get to the bottom of it soon. The thing with the gluten free diet is that it does not require a prescription.... You are free to do it on your own, so why not give it a try? Desperate times call for desperate measures and you can very well have NCGI. That being said I think it is important...
  6. guest134
    "Anti-CCP is a very useful test to order during the Open Original Shared Link of a person who may have rheumatoid arthritis. If present in such a patient at a moderate to high level, it not only confirms the diagnosis but also may indicate that the patient is at increased risk for damage to the joints. Low levels of this antibody are less significant. In...
  7. guest134
    As Nicole said, you need to let us know which test it is. The anti-gliadin test does not differentiate between autoimmune and non-autoimmune gluten intolerance (Celiac, vs. NCGI). Although both can cause the same symptoms NCGI as we know it does not cause other complications or issues if gluten is ingested while Celiac can trigger other autoimmune or even...
  8. guest134
    Type 1 diabetes associated and tissue transglutaminase autoantibodies in patients without type 1 diabetes and coeliac disease with confirmed viral infections. Open Original Shared Link Helicobacter pylori infection is associated to increased levels of tissue transglutaminase in gastric mucosa cells Open Original Shared Link(01)83332-1/abstract Anti-transglutaminase...
  9. guest134
    The reason your biopsy was negative was because you were gluten free for 2 years before, unless you had refractory sprue there is no way your intestines would had not fully healed on a strict gluten free diet. When your new doctor speaks of your blood tests I wonder which ones were given. While the DGP is very sensitive and specific to Celiac it was not...
  10. guest134
    Were your gliadin test results "anti-gliadin" or "deamidated gliadin"? Anti-gliadin does not differentiate between autoimmune and non-autoimmune forms of gluten intolerance. That means that both Celiac and non-Celiac Gluten Intolerance as well as some "healthy" population samples will show up positive on the result while the deamidated is pretty specific...
  11. guest134
    I wasn't aware that it was a TTG blood test, I thought you were speaking of the fecal gliadin tests.
  12. guest134
    Doctors would call that "biological variation". I don't think the test will be positive for absolutely no reason however it is elevated in MANY different disorders and infections. Studies have shown transient elevation during an infectious illness and it is notorious for being false positive in those with other autoimmune diseases (20 percent false positive...
  13. guest134
    Nicole, If I had a dime for every doctor that thought they could diagnose the thyroid on TSH alone I would be rich.
  14. guest134
    Although it seems extremely likely that you have the disease due to your symptoms and your daughter having it (was she biopsy confirmed?) I still have to inform you that all of these take home gluten tests are next to useless. There is a reason these tests are sold directly to the public and not adopted by the medical community - they are garbage. Of course...
  15. guest134
    That is a very high result. Keep in mind TTG can also be elevated in Crohn's, which your mother had. Along with the biopsy it will probably be worth your while to get the Deamidated Gliadin IgA/IgG tests along with the endomysial. That will help isolate the potential causes.
  16. guest134
    False positives do happen on the TTG tests but we need to have some more info before we can think about that as a possibility. Your total IgA is in range which means that it should be the IgA based tests that take significance but it is also very low in the range. I am not sure how to interpret that. Can you provide us with some more info? Age Symptoms...
  17. guest134
    To begin with, do not fear a endoscopy/biopsy at all. It is considered considerably more tolerable than a colonoscopy. When you think about it, it is natural for things to go down your throat into your stomach but not up your rectum. So naturally, an endoscopy is easier for the body to accept. I was so concerned over my endoscopy and even with my doctor spending...
  18. guest134
    Yeah, that's the thing, it is usually pretty easy to differentiate since salmonella comes hard and suddenly where as Celiac crops up slowly.
  19. guest134
    I had a DGP IgG of 11.5 on a >10 scale with salmonella and retest a few months later returned to negative. Mind you my initial result was so close to the positive/negative line that it could have just been laboratory error as well but perhaps the infection raised it temporarily? My IgA form was negative and I am IgA sufficient.
  20. guest134
    Emmkat, have you had any progression in finding your ailment? Also to Gemini as I just noticed this, my recommendation on the endoscopy was based on the blood tests costing money while the endoscopy is free. Along with that there are basically very few doctors in Canada who are willing to diagnose with blood work. While it would be great for her to feel...
  21. guest134
    The endoscopy will look for obvious things that are visible to the naked eye such as cancers, ulcers, gastritis, inflammation, etc... Sometimes people with Celiac will have bad enough damage that their intestines are off up to the naked eye, most cases however will not have visible damage just yet (maybe mild inflammation.) This is where the biopsy comes...
  22. guest134
    Takala, I have never heard of Celiac causing undigested food to leak into your blood, can you link me to where you heard this?
  23. guest134
    Belmo can you share where you got this "doctors become concerned when tests go over 10"? Every test has different ranges and depending on the sensitivity some can go as high as 40, now testing 30 on a 40 being positive kit would not mean you would also be 30 on a 20 over is positive test. The numbers mean nothing within the negative ranges and healthy populations...
  24. guest134
    A colonoscopy covers the entire colon but does not go past it, Celiac is in the small intestine. Therefor to expect a colonoscopy to find Celiac makes no sense. I agree with Marilyn that you should shop around for G.I's because if he thought he could find Celiac with a colonoscopy he will also probably be the type to take 1-2 biopsies and call it sufficient...
  25. guest134
    Going through your symptoms I would suggest being tested for H. Pylori. I don't have much more to add myself but hopefully others can come in with more help to your symptoms. Let us know your results and I will get back to you.
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