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jschooley

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    schooleyjosh
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    Delaware, Ohio

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  1. Hello all. My name is Josh. I live in Delaware Ohio. I have been recently diagnosed with Celiac disease and am trying to learn how to cope.

    Some history:

    When I was 12 I started having violent "attacks" usually after I ate a meal. I would spend 30-45 in the bathroom in extreme pain. My parents took me to my doctor about it. He simply said "It's all in your head."

    After that, my parents bought into his diadnosis, or lack therof. I dealt with it for a few years after that with the help of Pepto Bismal (The only thing available at the time)

    When I was old enough to drive (16), I found a new doctor. I decided that I was going to deal with this anymore. He diagnosed me with IBS and prescribed medication, (Bentil).

    The medication controlled the symptoms for about 5 more years. About a year after getting Married and having my first child, the symptoms got out of control. The medication didn't help anymore.

    During that time I got VERY sick. I couldn't keep food in me, so was extremely malnurished. I lost 45 pounds and looked ill.

    I went back to my doctor and told him "I can't take this anymore." He was immediately concerned and reffered me to a specialist. After seeing the specialist, he told me that I have severe IBS and to lay off the caffine. He prescibed a new medication called Diphenoxilate-Atopine. The medication worked wonderfully controlling the symptoms and I was able to continue a somewhat "Normal" life.

    The time came when I ran out of pills. It was time for a checkup with my doctor before he would prescribe more, but he couldn't get me in for another month and wouldn't refill my perscription until I saw him. Needless to say, I found a new doctor. I went back to my pediatrician! After spending nearly 1 1/2 hours with me, he said that he did not agree with the previous two doctors and told me about Celiac disease.

    I have now been diagnosed and don't know where to start from here. I am having trouble finding Gluten-free products and meals.. A lot of food manufactures use products that contain gluten as stablizers.

    I really need some help dealing with this, and how to cope. Any comments, suggestions, etc... would be extremely helpful. Imodium AD has become my best friend and I would really like to NOT be dependant on it.

    Thanks for any help!

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