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rehh05

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rehh05

  1. Also you might be getting cross contaminated by things in your kitchen. Your cutting board, your pasta drainer, inadvertent crumbs from other people. Believe it or not, affectionate significant others who consume gluten can spread gluten to you. Gluten is very sneaky.
  2. I have found gluten free ibuprofen at various places... Walgreens, Target...just look at the boxes. The liquid gels are NOT usually gluten free though. I do not look at children’s Advil, just regular generic ibuprofen. I have also found gluten free generic Tylenol products. Again, read the boxes. They are there.
  3. Well, sounds like you if something works for you, then keep doing it... but, one thing struck me. you described the feeling of having a lump in your throat. That is something that folks with thyroid problems sometimes feel... and having a swollen thyroid or nodules can affect swallowing... which can make one swallow more air. just a thought...
  4. I also have had this. I had had issues with vitamin levels and with back/joint problems. My doctor and I keep a close eye on my vitamins, my sugar levels, and I make sure to get enough sleep and try to keep stress under control. I would suggest having a chat with your doctor and see if he/she will check things. it is certainly a weird sensation...
  5. If they make you feel bad, don’t eat them. I know. Not particularly helpful ? but really, each person reacts differently to different things. My suspicion, in your case, from what you said, is that you might be one of those folks who also reacts to oats. Some do. Make sure they are certified gluten-free oats (not all are) and if what you have had are for s...
  6. Well, if those were the only tests run, I would have to say it is possible you are celiac but the tests you had done are not enough to say for sure. You need more diagnostic work done. You have the chromosome for it but that doesn’t mean you have active celiac. as for the nausea, yes, nausea is a symptom for some people. There are a lot of symptoms. D...
  7. Interesting. When I was fingerprinted for a background check for my job, nothing they did could get the machine to read my fingerprints... just too faint. I figured it was the forty years of constant hand washing as a preschool spec ed teacher that wore them off. Maybe not!
  8. Might want to have your thyroid checked as well as vitamin levels.
  9. No, you don’t need to be eating dairy and soy to be tested for celiac. Yes, damage from celiac can cause lactose intolerance... the part of the villi in the small intestines that digests milk is the top part and it is the part that shows the damage. Yes, there are lots of people with celiac who have other food intolerances. Yes, in my opinion, it is worth g...
  10. Yes, celiac runs in families. You can have testing done to see if you carry the chromosomes that predispose you to it. There are many folks who have the chromosomes who never develop celiac, but it is my understanding that if you don’t have those chromosomes then you probably don’t have celiac.... with the caveat that they are finding more genetic markers as ...
  11. Well, I would think your GI doc would want you to have been eating gluten before both the blood test and the endoscopy . That said, this is how my experience went down: I had symptoms and was misdiagnosed for years and years. I met a new friend who suggested going gluten free. I did so about a year before changing doctors and getting tested. My GI doc didn...
  12. I agree. Keep eating gluten. But don’t let Dr Internet diagnose you. Keep an open mind. It might be celiac... but then again it might not be. Might be vitamin deficiencies. Might be you are not taking in the right form of B12 or need folate instead of folic acid. Might be your diet includes something else you are allergic to or sensitive to. Have a frank o...
  13. It seems that you have complicated symptoms... there may be more than one thing going on. Perhaps you could find a physician who could work with you to figure out what is what. It might not be celiac. It sounds like you need to have all of you vitamin levels run and a bunch of body systems looked at in my unprofessional medically uninformed opinion. It is...
  14. Have you kept a food dairy and tracked what you were eating and drinking before you had diarrhea? Does anything make you feel better? If you are having nonstop diarrhea, you may need medical help to calm you gastric system down. If you could figure out what you CAN eat safely, you can base your meals around that and gradually add things in to see how you...
  15. Fatigue can be related to low B12. Joint and muscle pain can be related to low vit D. Being low in both vitamins is common with celiac. There are also other sensitivities that cause gastric problems... dairy, and corn are common... but these also can go along with celiac. Get tested by a doctor. Keep eating gluten until after you get test results and find...
  16. I did. I had been gluten free or mostly gluten free for a couple of years prior to testing, though. After the negative celiac blood tests, the GI doc gave me the gene test to rule out celiac and was surprised to have that come back showing I had the genes. He then did the biopsies and was even more surprised to find the damage ... he then diagnosed me with...
  17. It means you have the potential for developing celiac. Many folks have the genetic variants but do not have celiac... some develop it eventually, some do not. So, now you know it is possible for you to develop celiac, get tested for the disease. You need to be eating gluten during the testing stage.
  18. Fresh baked artisanal bread... fresh from the oven fresh warm cider donuts or better yet fresh warm yeast donuts... the kind with raspberry filling fresh warm bread sticks with Parmesan grated on top to dip in marinara sauce pizza crust must be thick, yeasty and well risen... like home made but not as much work involved Graham crackers ...
  19. Definitely get her tested for celiac but don’t automatically assume that is what is causing this. There are other things which can cause these rage reactions in kids. Has she had a strep infection? In rare instances it has been known to cause neurological problems. We had a child at my school who had this happen and it was terribly frightening for the family. ...
  20. Keep eating gluten until you are tested and until you have an endoscopy if the doctor calls for one. If dairy if bothering you, you can give that up before celiac testing... but I don’t know about other testing. As far as the redness... that sounds like a reaction you should discuss with your doctor.
  21. Yes. But I had a negative blood test before the biopsy. I had been gluten free for a year, but not as careful as now. I also had the genetic test run... he said if I did not have the genes then I didn’t have celiac... but I had them and I had damage in my gut per the biopsies.
  22. That is correct as I understand it. The genetic testing only shows if it is possible to become Celiac. My doctor had me do it to rule out celiac... I had been gluten free for a year when I talked to him about the possibility of celiac. My blood rest was negative (because of being gluten free). After the genetic test showed that I carried the genetic disposition...
  23. Wow, this is great! Thank you! I think I'm having trouble processing the extra fiber as it seems to all go right through me really fast. Digestive enzymes is a goood idea. I guess it will just take time for my little microbes to decide that veggies are just the way it's going to be.
  24. I am celiac and trying to transition to a vegan/vegetarian diet. I've been gluten free for about ten years. I've just started introducing vegetarian dishes and phasing out meat/egg based ones in my family. My problem is that my tummy is not adjusting to the transition. Any idea how long it will take my insides to adjust to the different foods? I have not...
  25. Right side pain under the rib can also be gall bladder. I had problems with that before finding out about my celiac and thyroid issues. It can be extremely painful.
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