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AlwaysLearning

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by AlwaysLearning

  1. AlwaysLearning
    If you read again, I was careful not to label her family members, rather described my own personal experience with people ... who have official diagnosis.
  2. AlwaysLearning
    Donna, it sounds to me as if your "friend" has some mental health issues. It reminds me of a couple people I know who have narcissistic personality disorder. Telling other people what to do, having no concern for their concerns, and seemingly ignoring anything they say is pretty typical of a narcissist. If this is the case with your friend, then they are...
  3. AlwaysLearning
    I don't have any medical advice to give you, but I hope I can offer some moral support in having shared experience. I didn't get my diagnosis until I was 42. Before that I had phases where I had symptoms and phases where I did not. In hindsight, it was linked directly to eating out (high gluten) vs. cooking for myself (low gluten). I knew something was...
  4. AlwaysLearning
    I used to have problems with hives. Turns out it was actually a reaction to mold that I didn't know was in my house, which was causing my immune system to be suped up, which was causing my thyroid to be overactive, which was causing my body to produce too many histamines, which was causing hives. I have zero allergies but I would get hives on my hands...
  5. AlwaysLearning
    Soup. I make big batches of it and freeze most of it. Two big pots nets me about 20 servings. Yes, you do have to take a couple hours to make them in the first place, but if you can get the kids to help out on the prep, you may be able to reduce that. And it can be super healthy, so worth the effort. The ones I make most often are kind of similar...
  6. AlwaysLearning
    I don't see her numbers, nor would I know what they mean, but from what she has said, I think she has stayed fairly stable, kind of like being pre-diabetic, sometimes a little better, sometimes a little worse. Knowing my mom and the way her brain works (how stubborn she can be when it comes to refusing that there could be anything wrong), I suspect...
  7. AlwaysLearning
    Before I say this, I want to state for the record that I whole-heartedly agree with Trents that a higher risk when the risk is already very small is not an area of concern. I have not been able to convince my mom to get tested for celiac or to go gluten free, despite having a ton of symptoms of autoimmune disease. But I did talk her into going gluten...
  8. AlwaysLearning
    Congratulations on getting a diagnosis! Going gluten free can be tough. I think one of the most-helpful things I did was to make sure I found ways to see the positive and try to make eating an adventure instead of a hardship. Those early trips to the grocery store, when you realize that so many of your favorites are now off limits, can be tough...
  9. AlwaysLearning
    DevJac, I'm sorry to hear that you are facing some major life changes and don't seem to be ready for them, but congratulations for getting a diagnosis before your symptoms were too bad. You got lucky. I spent two decades going to doctor after doctor after doctor, desperate for answers, only to be told there was nothing wrong with me, that I was making...
  10. AlwaysLearning
    For me, the cold hands and feet, a problem I had for decades, was all from gluten. It went away completely within the first two weeks of going gluten free and never came back. My graves disease is triggered by mold and mildew. If I can keep everything uncontaminated, my thyroid calms down and is not a problem.
  11. AlwaysLearning
    I read a post a while back from someone else here that could explain your lack of reaction after five years of being gluten free. Apparently, your body produces little factories that make the antibodies that attack gluten. The longer you eat gluten, the more factories you have, the more antibodies that are produced. And it takes up to two years for all of...
  12. AlwaysLearning
    Before going gluten free, I would describe myself as either being asymptomatic or suffering. In hindsight, I realize that, for me, it was job dependent. If I had a job where there were few options for eating out, I would bring my own breakfast/lunch which were generally gluten light. During these periods, I had no noticeable physical symptoms but if...
  13. AlwaysLearning
    Every time I turn around, I hear of some other reason to avoid taking NSAIDs so I'm with you 100% on being hesitant. I know this sounds a little out there, but before going to pharmaceutical route, I would investigate guided meditation for pain relief. From what I hear, it can be much more effective without any adverse side effects ... and there are...
  14. AlwaysLearning
    Just because a person becomes a pastry chef doesn't mean they are going to be sitting around eating baked goods all day. And shame on anyone here for dissing her dream!
  15. AlwaysLearning
    As someone who won't go into traditional bakeries or pizzerias because of the high volume of wheat flour dust in the air, I think I would make an exception for finishing your courses. There are definitely gluten free bakeries that will need employees, but I don't think you'll be able to find a school that is gluten free. I would deal with whatever is needed...
  16. AlwaysLearning
    Actually, I was trying to figure out if celiac could be related to my mother's severe personality disorders. I was thinking that malnourishment as a child could have affected brain development or something of the sort. I will probably never know because part of the personality disorder is to deny that anything could be wrong, so she'll never get tested for...
  17. AlwaysLearning
    Oh yeah. You definitely need more fruits and vegetables in your diet. There is an expression that we should be "eating the rainbow". From what you describe, your meals are mainly brown and white. If you find ways to add more greens, yellows, oranges, reds, and blues, you will automatically be getting a wider variety of nutrients AND getting the fiber you...
  18. AlwaysLearning
    I am curious if anyone knows of any studies that have looked to see if there are connections between celiac and mental health issues. I know that some people get gluten ataxia, which affects their brain function, and I know that many of us have experienced anger as a symptom of a gluten reaction. But what I'm really trying to get at is if anyone has...
  19. AlwaysLearning
    I don't eat out at all, so I understand your hesitancy to trust anything coming out of a contaminated kitchen. But you should definitely go to the dinner. Just make something that you can bring with you so that you can be eating at the same time as everyone else. Really, the only thing that is tougher about bringing your own food to a restaurant vs. someone...
  20. AlwaysLearning
    I really enjoyed reading this. Not the subject matter, because that is heartbreaking (and familiar). But the writing drew me and was extremely relatable. I felt every bit of frustration and angst. Great story telling! Yeah, I feel this way a lot, but mostly it is about how much time and effort I have to put into cooking food from scratch. I haven't ordered...
  21. AlwaysLearning
    OMG. Marry your fiancé as quickly as possible! What a great family that they are willing to try something new to help others be included! I wouldn't worry too much about the next time. The novelty of your celiac disease will wear off and it won't be talked about so much. And you can make a plan with the cook to only worry about making a few dishes ...
  22. AlwaysLearning
    I would consider the possibility that you're dealing with something else entirely, not related to celiac. Granted, having gluten reactions might be what originally amped up your immune system, but it could be remaining on high alert because there is something else in your environment to react to. Can you send a sample of your drinking water off to be...
  23. AlwaysLearning
    Severe hip pain due to tendons/ligaments catching is one of my gluten symptoms. At its worst, I had to drive to work instead of taking the subway and had a prescription for some serious pain killers, though they didn't do anything other than upset my stomach. I just realized, while writing this, why my hip pain returned for a bit a couple years ago...
  24. AlwaysLearning
    What about heavy metal poisoning? A diet that high in fish is what makes me ask. Also along the lines of toxins, do you live near any fossil fuel production sites? Peripheral neuropathies are associated with living near fracking sites and oil refineries. And I think within 3-5 miles is considered "near" though wind directions may vary. Mold is another...
  25. AlwaysLearning
    Congratulations on finally getting some answers!!!! Reading your story reminded me of when I finally got my answer to years of asking what was wrong with me. Being female and seeking out possible causes for aches and pains during the beginning of the opioid crisis was a double whammy of doctors automatically dismissing me as being either a hysterical...
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