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AlwaysLearning

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by AlwaysLearning

  1. AlwaysLearning
    Yeah, keep the pets, just get everyone treated, including yourself.
  2. AlwaysLearning
    In response to the original post title, I do think there is a need to clarify between allergies and autoimmune diseases. For each, a different type of T cell is involved. The link to the study posted appears to describe an autoimmune reaction to the proteins in milk, which would be a good parallel to the reactions that celiac's have to the gluten protein...
  3. AlwaysLearning
    I think you are smart to consider celiac or non-celiac gluten sensitivity a possible cause for your problems. Abdominal pain, edema (leg swelling), vitamin deficiencies, and fatigue are all symptoms I have experienced in reaction to consuming gluten. But they can also be symptoms of other things. Do keep in mind that celiac is an autoimmune disease and...
  4. AlwaysLearning
    A lot of it really depends on just how gluten free you intend to be. For me, being 100% gluten free means not eating out at all, unless the entire restaurant is gluten free, because I became super sensitive when I went gluten free. But most people I know who claim to be gluten free are taking minor risks on a regular basis. They are likely still suffering...
  5. AlwaysLearning
    Separate from any damage from gluten affecting your ability to absorb nutrients, I would look at a couple things. 1. Next time you see your doctor, have them check your hormone levels specifically looking for thyroid issues. If your thyroid is hyperactive, long term difficulties with gaining weight would be expected, and thyroid issues are common among...
  6. AlwaysLearning
    The only way to "prove" you have celiac is to be tested. To get accurate test results, you have to be consuming a consistent amount of gluten every day for at least a month, maybe two. The test looks at the antibodies that build up in your system as a reaction to eating gluten, so if you haven't been eating enough for long enough or if you took a break from...
  7. AlwaysLearning
    Oh, I am sooooo jealous that you had a doctor that was smart enough to test you for celiac after seeing the anemia result! When I tested as anemic, my doctor just told me to eat more steak, which made no sense as I've never been a vegetarian. I had to waste another ten years and probably $10,000 on medical tests as I desperately tried to find a doctor to...
  8. AlwaysLearning
    Yes, the fast digestion you describe is one of the symptoms an undiagnosed celiac might experience if they were eating gluten on a regular-enough basis to have developed what I think of as pretty severe symptoms. But in my experience before going gluten free, to get those symptoms, I'd have to be eating twice as much gluten as you need to eat to have positive...
  9. AlwaysLearning
    The depression you describe makes me think you have a vitamin deficiency. I would get outside into the sun to get as much vitamin D into your system as you can before summer ends. Then I would budget to buy some vitamin D supplements to hold you over the winter. It sounds to me as if you have been turning to comfort foods to try to counteract your depression...
  10. AlwaysLearning
    So glad to hear that you're doing so well after going gluten free. I've never made my own pasta, even before going gluten free, but I can tell you cooking store-bought, gluten-free pastas on very low simmers helps keep them from breaking down. My favorite gluten-free flours are from King Arthur though I don't know if they are vegan. The ingredient...
  11. AlwaysLearning
    If you had to take antihistamines, I wonder if you are dealing with an underlying mold or mildew problem. Stirring up dust would make those tiny spores airborne. These should be more irritating than just the fiber from clothing or rugs. Have you had any leaks in your home recently? Has it been unusually rainy and humid? I really do hope this is not the issue...
  12. AlwaysLearning
    I don't get DH but my sister does and she goes a little crazy trying to figure out what foods might be triggers. She basically gave herself an eating disorder because she became so afraid to eat, so I understand that it can be extremely frustrating. My heart goes out to you. I would not overlook the possibility that you may have been exposed to gluten...
  13. AlwaysLearning
    I think that many of us change our priorities throughout our lives. If hanging out with friends and socializing is a main priority for you right now, I can understand how it might be difficult to stay gluten free, especially if you don't have any noticable symptoms. But knowing that being gluten free is something that you SHOULD do, I would recommend...
  14. AlwaysLearning
    As far as I know, there are a few reasons to go ahead and to get a biopsy. 1. Confirm the blood test results or to give a positive diagnosis if blood tests were inconclusive. 2. Give a point of comparison of healing, compared to a future biopsy. 3. If you live in the US, to get a positive diagnosis to allow you to take a tax deduction for...
  15. AlwaysLearning
    My understanding of the side effect of pericarditis from the vaccines is that it is going to be temporary, not a life-long ailment, so I would have hope for improvement. And it is probably better than having heart damage after contracting covid, so I would not second-guess your decisions to get vaccinated. But it sounds as if you are dealing with a lot...
  16. AlwaysLearning
    The one time I was in the hospital after going gluten free, I had to check myself out early so that I could get myself something safe to eat. They brought me a tray of food that was supposedly gluten free, but the only thing on it that was actually safe was a sealed container of apple juice. But my hospitalization was years after I went gluten free so I already...
  17. AlwaysLearning
    I became super sensitive to gluten when I went gluten free, so I worry about the minuscule amounts that most people say "shouldn't" be a problem ... because they are a problem for me. When it comes to alcohol, I only consider one factor. What were the original ingredients that went into it? I know that many people believe that the distillation process...
  18. AlwaysLearning
    Rejoycin, I am sorry to hear that your daughter is on steroids and hope she won't need them for long. And it is great to hear that she is doing well with her gluten-free diet after seven years. But I fear that both you and your daughter may have been exposed to some misinformation about the risks concerning the covid vaccine. In your posts I see that...
  19. AlwaysLearning
    I didn't say metal pans were a problem. I said non-stick coating because, unless it is brand new, it is going to have scratches that can be places for gluten to hide. I did a quick internet search and the inter webs confirm the thought that immediately came to my mind after reading the comments above: that gluten CANNOT be destroyed by heat. The only...
  20. AlwaysLearning
    I'm really sorry that you're having a tough time of it. That totally sucks. I wish I could say something to help reassure you or to help make you feel better, but I will admit that I don't have any experience with ongoing symptoms. Alcohol can be problematic in a number of different ways. I have had gluten-free friends who claim that because their alcohol...
  21. AlwaysLearning
    I used to worry that I might have a problem with eggs which would be horrible. But I couldn't figure out why eggs that I used in baking were not a problem, but my scrambled eggs were. Turns out I was reacting to the black pepper I was putting on my scrambled eggs. And it wasn't an allergic reaction, just a normal side effect of eating black pepper. I...
  22. AlwaysLearning
    Wow. The original post made me depressed too! Reading reminded me of all of the things I have lost since going gluten free, including a couple close friends that couldn't handle the transition of me no longer being able to eat out, and being unwilling to switch to doing activities that didn't revolve around food or drink. Turns out they weren't really...
  23. AlwaysLearning
    In this conversation, the problem isn't the coating itself, rather that the coated pan was in use before decontaminating the kitchen. If you were cooking gluten in a pan that has a non-stick coating, the coating itself is now contaminated. There isn't a coating out there that isn't scratched or damaged to some extent, and we can't scrub them clean without...
  24. AlwaysLearning
    I had both doses of the Moderna vaccine, the one that is supposed to have the worst symptoms. It wasn't bad at all. Yes, my arm was sore both times, but the second time, I asked to have the shot put in a little lower in the muscle, further away from my shoulder, and that seemed to help a ton. The first time, I had muscle and bursa pain because the injection...
  25. AlwaysLearning
    My mother's latest thing is to tell me that she believes that I have celiac ... which she amazingly doesn't realize reveals that she did not believe me for the first several years of my being gluten free. And of course, she feels the need to tell me this at least once every few months, reminding me of how little respect she has for me. (Eyeroll) I think it...
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