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powerofpositivethinking

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by powerofpositivethinking

  1. powerofpositivethinking
    I haven't been on this forum for a long time, but it was absolutely wonderful during the diagnostic process! My path for celiac disease diagnosis was the following: -Had normal IgA level, and my only serology positive test was the DGP IgG -Deficiencies in both Vitamins D and K that did not increase at first despite massive supplementation ...
  2. powerofpositivethinking
    So my December hasn't been quite as I had planned ? Got diagnosed with mono at the beginning of the month, and then had my airway almost swell shut after developing a secondary super bacterial infection and microabscess on my tonsils. Ended up staying in the hospital for three days for that and because my heart rate was elevated. Luckily the hospital had...
  3. powerofpositivethinking
    (May 2018) So my pharmacy switched generics on me, and before going to pick it up I called Amneal Pharmaceuticals and was told Lillow contains no gluten ingredients and there is no possibility for cross contamination. I was on Portia before, so hopefully Lillow works for me! If anyone has any feedback on Lillow, please let me know. Thanks!
  4. powerofpositivethinking
    I put this in my diagnosis thread, but I wanted to start one specifically on low cholesterol. Went gluten-free in March 2013 and just got my cholesterol screen back, and my numbers are the lowest they've ever been. I'm thinking my fat malabsorption problems may have returned. I eat a high fat diet, so there's no reason these numbers should be so low. ...
  5. powerofpositivethinking
    First the positive! My Vitamin D is now a 57.6. Highest it's ever been!! I randomly still take a 50000 iu every few weeks since I still have them, so that probably helps. However I went for my yearly physical and previous to going I noticed I was starting to bruise again easily. Overall I'm feeling good, but a bit more tired in general. I got my blood...
  6. powerofpositivethinking
    Replying to this late, but Piazza Sorrento is awesome!! Open Original Shared Link
  7. powerofpositivethinking
    Haven't been back to update in a long time, but I'm doing great!! My vitamin/mineral levels are normal, and the only time now I get a minimally backed up digestive system is when I'm under a great deal of stress. I'm perfectly fine accepting that reason now instead of doctors pawning everything off on stress. I moved into Philadelphia and started a new...
  8. powerofpositivethinking
    Well Zebra007, you got it I have no problem admitting when I'm wrong, but in this case, this supposedly "great guy" had serious issues. The allergy testing came up with a few minor allergies but nothing severe. The doctor said I had no need to take a daily antihistamine, and I didn't need allergy shots. I get a little bit of morning breath most likely...
  9. powerofpositivethinking
    so the outcome from the ENT's office was that I don't have halitosis. He did find that my nose was slightly stuffed, there were no signs of active reflux and everything else looked normal. It is an ENT and allergy clinic in one, so I am going back for allergy testing in a few weeks. Until that time I am not supposed to take any kind of antihistamines,...
  10. powerofpositivethinking
    Thanks for all the suggestions I have an appointment with an ENT this week, so here's hoping!
  11. powerofpositivethinking
    so March 10th will mark two years gluten-free, and I feel so much better! However here's what's going on... I'm dating this great guy but earlier this week he told me that my breath and body odor really turn him off. I'm an extremely hygienic person...brush and floss at least twice a day, shower once a day, wear deodorant...so when he told me, quite...
  12. powerofpositivethinking
    I'm not sure if it's in all Target stores, but in the two near me in Delaware (Brandywine and Christiana Mall locations) have started selling all of these Open Original Shared Link I've seen these in several grocery stores locally, but Target sells them for $1.50-$2 cheaper. These Targets are also carrying WOW brand cookies as well. Open Original...
  13. powerofpositivethinking
    I've started using this that I found at Whole Foods. No guessing if it's gluten-free Open Original Shared Link All Physicians Formula make-up is gluten-free, so I use that too.
  14. powerofpositivethinking
    I was a big C sufferer, and when people ask me what led me to get tested for celiac it was because of the C and bloating. For reference I'm a 29 year old female. I was always regular and then that started changing. My Mom tried to convince me everything was fine, but I knew something wasn't right. It's one thing if you've been irregular all your life...
  15. powerofpositivethinking
    thanks everyone I've been resting more and am definitely getting back to feeling like myself. I was told the pink coloring is back in my face which is a good sign. No more dark circles under my eyes and my headaches/brain fog are much better, but my intestinal area is still a bit sore. The gluten-free diet may be a little challenging at times, but feeling...
  16. powerofpositivethinking
    I've been strictly gluten-free since March 2013 and to my knowledge have only been glutened three times. Unfortunately I'm still feeling the effects of the third one. I can't pinpoint it exactly, but I think it either came from Thanksgiving dinner or Black Friday lunch out. In general I have delayed reactions. I read about people knowing they've...
  17. powerofpositivethinking
    I ended up being able to go off Creon about two months ago because my elastase testing went from 72 (indicated severe pancreatic insufficiency) up to a 414 (anything over 200 was considered normal), and things had been going really well! Unfortunately I got glutened sometime last week...can't pinpoint it, and I'm still feeling the effects. I ended up taking...
  18. powerofpositivethinking
    Wanted to add this PubMed abstract I found. I couldn't access the full text, but it seems more light is being shed between celiac and its connection to pancreatic insufficiency. Open Original Shared Link
  19. powerofpositivethinking
    so living in the northern Delaware/Philly area, Wawa convenience stores are all around! They really stock some great on the go things for the gluten-free crowd. They've started carrying Krave jerky and Wai Lana yucca chips. My favorite flavors are the black cherry pork bbq for the jerky, and the herb and garlic for the Wai Lana chips. Maybe two months...
  20. powerofpositivethinking
    my GI ordered a MRI of my abdomen and pelvis, small bowel series and a capsule endoscopy. Those all came back normal with the exception of a ulcer in the illeum section of my small intestine. I didn't show pancreatitis, so that was ruled out as a cause for EPI, and I didn't have Crohns or CF. Check out table 4 in this article which lists the different...
  21. powerofpositivethinking
    back to update after getting all my follow-up testing completed. For reference, I am a 28 year old female. warning...long post ahead Back in August I went to my GP to have my yearly exam. Some things of note: -My TSH has gone from a 2.490 back in April 2012 to a .945 in August 2014. -My Vitamin B12 has gone from a 824 in February 2013 to a ...
  22. powerofpositivethinking
    I sent this to Utz: To whom it may concern: I absolutely loved eating your Utz Natural Gourmet Medley chips! As an individual with celiac disease, I was very sad when I realized the new packaging for these chips contained the new allergen warning, "Processed on a production line with other products that contain milk, wheat and soy." After searching...
  23. powerofpositivethinking
    Angry Orchard has a seasonal flavor called Cinnful Apple, which is a cinnamon apple tasting cider. It is delicious, and my favorite kind of alcohol because it doesn't taste like alcohol. I highly suggest it!
  24. powerofpositivethinking
    I would look into taking a magnesium supplement for your muscle weakness. However I would caution you to start out on a low dose and slowly increase to find your threshold because if you take too much it brings on the big D. I've had my magnesium levels tested various times, and each time they come back normal, however I had deficiency symptoms like muscle...
  25. powerofpositivethinking
    I love reading posts like this! Glad you are improving, and always a great reminder that good things will happen in time
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