powerofpositivethinking
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Latest Celiac Disease News & Research:
Everything posted by powerofpositivethinking
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I haven't been on this forum for a long time, but it was absolutely wonderful during the diagnostic process! My path for celiac disease diagnosis was the following: -Had normal IgA level, and my only serology positive test was the DGP IgG -Deficiencies in both Vitamins D and K that did not increase at first despite massive supplementation ...
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So my December hasn't been quite as I had planned ? Got diagnosed with mono at the beginning of the month, and then had my airway almost swell shut after developing a secondary super bacterial infection and microabscess on my tonsils. Ended up staying in the hospital for three days for that and because my heart rate was elevated. Luckily the hospital had...
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(May 2018) So my pharmacy switched generics on me, and before going to pick it up I called Amneal Pharmaceuticals and was told Lillow contains no gluten ingredients and there is no possibility for cross contamination. I was on Portia before, so hopefully Lillow works for me! If anyone has any feedback on Lillow, please let me know. Thanks!
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Any Issues With Kind Bars?
powerofpositivethinking replied to pianoland's topic in Super Sensitive People
for those worried about oat CC, please check out this thread when I e-mailed KIND earlier this year with that question. Their oat containing products are made on separate lines than the nut bar products. https://www.celiac.com/forums/topic/106422-kind-nut-products/?hl=%2Bkind+%2Bbars -
I've always been an oatmeal girl, but unfortunately at this point, I cannot eat oats even certified gluten-free one. I loved the texture of oatmeal, and that it was always eaten warm. I tried Bob's Red Mill Brown Rice Hot Cereal, but even though it is labeled gluten free, it didn't sit well with me. I agree that Lundberg is a great brand! I ended...
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this new abstract in PubMed discusses DGP IgG in regards to non-responsive celiac disease and their diagnostic value: http://www.ncbi.nlm.nih.gov/pubmed/24392888
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Three Months In - Blood Test Results
powerofpositivethinking commented on KCG91's blog entry in KCG91's Blog
awesome news!! hope you enjoyed the pancakes :) -
every so often I like to do searches on DGP IgG because I still have an obsession with it Here's a powerpoint from the 2013 ICDS by Dr. Umberto Volta, Coordinator of the Italian Celiac Association Board, discussing NCGS. on the 5th slide it says, "Deamidated gliadin antibodies (DGP) IgG were consistently negative in NCGS patients except for one case at...
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thanks for the response!
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did they talk about anything related to the DGP-IGG test? I had a strong positive on it three times and my IGA level is normal, but all other tests were negative, including the biopsy. The 2012 World Gastroenterology Report lists the DGP-IGG test as having a sensitivity of 70-95% and a specificity of 99-100%, and all the other research only talks about...
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I've gone back and forth on this so many times, and all I can say is I understand your frustration I tell people I have celiac because I do whether diagnosed by biopsy or not I tested a strong positive three times on the DGP IGG, and I had a normal IGA serum level, but all other tests were negative. It's supposed to be 99% accurate, but that...
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Just Starting To Learn
powerofpositivethinking commented on paige-ann246's blog entry in paige_ann246's Blog
based on what you wrote, I think getting tested would be a great idea! does your rash look like dermatitis herpetiformis? what did the doctor say about the elevated liver numbers? check out this link Open Original Shared Link that cracking in the corners of your mouth hurts!! I play French horn and it would make that super painful. Since going gluten... -
wanted to add this link from Chicago's Celiac Website regarding DGP-IgG http://www.cureceliacdisease.org/archives/faq/are-raised-dgp-igg-levels-an-early-sign-of-celiac-disease
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"up To Date" Management Of Celiac Disease In Adults
powerofpositivethinking commented on jebby's blog entry in The Patient Celiac
It is normal for women to experience breast tenderness in the 1st 3 months after going gluten free…. good to know because I never used to have that problem, but now before that time of the month it's happening, so hopefully that will resolve soon! -
so before my EGD today, I asked my GI if he was able to find another cause of high DGP igG besides celiac, and he said he was unable to locate another reason for the elevated number. It was great to hear him say that there is a lot of ongoing research with celiac and food intolerance in general. He said that for a long time doctors have told patients that...
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thanks for the suggestion! I checked the symptoms of salmonella, but it doesn't seem to match-up with me. My DGP igG tests were both strongly positive. Greater than 30 was strongly positive for my lab, and I had a 43 and it dropped slightly to a 41 on the second testing. My main symptoms are continuous bloating and frequent C for the last two years. ...
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thanks for the links I had actually read through those articles and FAQs during my previous research and was hoping someone would have a clear cut link answer like chicago does for other causes of raised ttg iga antibodies except for DGP igG antibodies http://www.cureceliacdisease.org/archives/faq/after-going-gluten-free-can-a-positive-ttg-mean-anything...
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I've posted a few times in other threads about this, but thought I'd start a new topic that puts my question right out there Am I correct in thinking that if it was non-celiac gluten intolerance or gluten sensitivity, a person would not have elevated antibodies? Does anybody have any research or articles that discuss other known causes of high DGP igG...
