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Nikki2777

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Nikki2777

  1. Nikki2777
    Thank you both. I've done a bit more research (and of course, my facebook feed is now fit for survivalist). Thinking to stock in some backpackers food and maybe a couple of the big cans of vegetables that some of the emergency food sites have. That should all be good at least a couple of years and I can eat them as they near expiration. Water is a good point...
  2. Nikki2777
    Ok, I'm going to start to answer my own question - it looks like to get meals that are free of these ingredients, you need to go to backpackers/hikers freeze dried food. Which is a lot more expensive and has a shorter shelf life (the longest I've found so far is 5 years). But I could see getting my own tight seal bucket and storing up a supply of these if...
  3. Nikki2777
    My go to dried pastas are Ancient Harvest, Le Veneziane and Bionature. All good, but probably Ancient Harvest is my favorite. Holds its shape and doesn't get mushy, has a little flavor.
  4. Nikki2777
    I get EOS. They have lots of varieties and all gluten free.
  5. Nikki2777
    The recent hurricanes in the Southeast and other natural and man-made disasters have got me thinking. Food pantries and charities that try to provide food for people affected by these disasters can't possibly be relied on to get us safe things to eat. So what do we do? I went online and started looking at the ingredients in those survivalist type emergency...
  6. Nikki2777
    I don't know, as I haven't tried it yet and didn't get in touch with the company. May do that this week.
  7. Nikki2777
    I'm so sorry you're going through this. It does sound like you've been through a lot and likely do have some sort of gluten sensitivity. Unfortunately, the mind-body connection is also having a field day with you and hopefully you're coupling your physical recovery with trauma work. At the risk of sounding simplistic, could you also be sensitive to sesame...
  8. Nikki2777
    Hi - I bought this on a whim, as it didn't have any gluten ingredients as far as I can tell. I'm not too concerned about shared facilities, as I feel like big companies such as this must clean their equipment well between runs, but before I take the plunge, does anyone know for sure? The only thing that concerns me is that they do have other meals labeled...
  9. Nikki2777
    Thank you!
  10. Nikki2777
    Hi - I know this is a longshot, but on a whim and in a rush the other day I bought this lipstick. I do use several drugstore brands safely, but I liked the color. I don't see anything on their own website about gluten, but SkinSafe (?) - a site I'm new to - says it's "free of gluten". Anyone safely use this? Thanks!
  11. Nikki2777
    Yes, it's sad - unless it's a place known to do well by Celiacs (there are a few where I live), I won't get eggs at a diner, other than soft-boiled in the shell (and most diners won't do that.) As I'm not getting eggs, I don't get bacon either, but I imagine the issue would be similar. It's a real shame, and one of the things I miss most.
  12. Nikki2777
    I've searched and haven't been able to find this exact answer - is there a chance that Brewer's Yeast or yeast extract from barley could be in Natural Flavors in the US without being explicitly called out in the ingredients? I've recently bought something with Natural Flavors and thought it would be safe based on what I'd thought I'd read, but some are saying...
  13. Nikki2777
    Trader Joe's has gluten-free cornbread mix, stuffing, gravy and pie shells at this time of year. Whole Foods and Williams Sonoma has a lot of these, too. They definitely help!
  14. Nikki2777
    I think the problem is a misunderstanding of the word 'healed' here - there is no cure for Celiac. Healed only means that the villi have gotten back into the shape that they are supposed to be. But they are not the cause of the Celiac, just a symptom. The cause is the auto-immune disorder. So, even with 'healed' villi, you still have Celiac and any gluten...
  15. Nikki2777
    Thank you, Scott! This looks really helpful.
  16. Nikki2777
    I know it's a long shot, but I've always wanted to travel in Nepal and am looking at a volunteer project that would involve a home stay. Does anyone have any experience with an organization that can help me stay gluten free while there? I'm sure I can eat the rice and some of the meats, and I expect most of the local food is naturally gluten-free, but with...
  17. Nikki2777
    If I understand your question, you're asking if handling gluten while working food service will be a problem with your Celiac? Can't say for sure, but I doubt it - just be careful to wash your hands before eating and make sure you're not touching your mouth or face with hands with crumbs on them. I make sandwiches for my gluten eating kids all the time.
  18. Nikki2777
    I also prefer sherbet and fruit ices to ice cream - luckily lots of choice there. Talenti (though pricey) is delicious and Outshine Bars usually take care of the same cravings. I'm sure there are less expensive options vs. Talenti, too, I just rarely buy sherbet because I can't stop eating it when I do!
  19. Nikki2777
    Interesting. I'm guessing it's some sort of filler. I think the basics that you were told to avoid - wheat, barley, rye or non-certified oats - is true for ice cream, too. I'd find one or two brands you trust (that black box Breyers, for example, actually says Gluten Free on the packaging). Personally, I don't eat a lot of ice cream - I do have long-standing...
  20. Nikki2777
    With the caveat that I haven't checked with the manufacturer lately, I take Levothyroxine (generic synthroid) made by Mylan. I check the rx every time I pick it up to be sure they haven't subbed in a different manufacturer. Little yellow pills.
  21. Nikki2777
    I don't know about Lawry's but I trust McCormick's labelling. As an alternative, we use something called Jane's Krazy Salt regularly. It's very good.
  22. Nikki2777
    There are plenty of gluten free ice creams. I think the Breyers in the black container, for example. Most ice cream is naturally gluten free. If I remember, the one with Bunny in the name is not. Just be aware that many of us, especially in the first year or two after diagnosis, suffer also from lactose intolerance. So, even with gluten-free ice cream...
  23. Nikki2777
    Thank you, all. It's disappointing but good to know, and definitely something I'll want to dig into over the next few years.
  24. Nikki2777
    Thank you. Scott - I didn't know that. Very scary. Basically like making a choice to hurt your residents. And Knitty Kitty (great name, btw) I would definitely be on board for that, though I don't know if I could convince my gluten-eating husband to move there! Hope to get started on making calls soon - who knows, maybe there's a business opportunity...
  25. Nikki2777
    Thanks, Scott. I'm actually less concerned about that as it is my understanding that Nursing Homes, being medical facilities, have to provide a safe diet (though the food is probably inedible). I imagine it's kind of like the pre-packaged horror show that is airline gluten-free meals. Someone can absolutely correct me if I'm wrong. For me the...
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