hez

Even though the fries have tested in a clinical labortory to be gluten-free I have never eaten them. Why? Because they were not made in a lab. They were made by teenagers who have no clue about cc. I am just too scared to eat the fries When we go I only get a coke and the apple dippers with carmel, they are very good! I hope you feel better soon.

Hez

Jestgar- Thank you for rembering the liver! I forgot they did blood work to make sure I had good liver function.

Hez

Lynne-

I used to work in battered women shelters and for a county in California in the department of child services. Needles to say I tested positive to TB. I remember having a chest x-ray and having to take medication for 6 months. It must have not been active. At the time it did not seem to be a big deal. I don't remember the medication or it having any side effects. To be honest I forgot all about it until I read your thread then my thought was "oh, yea, I had that". I will pray that all will work out best for your daughters health.

Hez

I finally got a response saying they will respond

Hez

Thank you for contacting us.

Your message is being forwarded to a Consumer Services Representative who will review your inquiry and reply. Please be assured that we will respond to you as quickly as we can.

General Mills Consumer Services

Well, at least you got a response! They have not bothered to contact me Although maybe it is just as well, it would only anger me further

Hez

I am sure you and David will laugh about that trip for years to come!

Hez

For me this is not a easy black and white issue. It really depends on the food and the company that produced it. I am sure for some this is a no brainer but for me it just depends.

For example, my nut thins have a legal statement about being produced in the same facility. However, other people have posted that they contacted the company and that the lines are sepearate. I have never had a problem with them. Others have. Each of us has to decide these things for themselves. And in the case of children it is up to the parent to make that judgement call. For this parent a shared facility was not an issue. For other parents it is an issue.

Hez

I just sent an e-mail. However, I am a tad fatalistic, I don't think they care what we think. They are a huge corporation and we are a small group. I still think my voice needed to be heard. It is up to them to listen.

Hez

I eat Oscar Meyer lunch meat. They are owned by Kraft who will clearly label, don't you wish they owned everything?

Hez

I understand not wanting this disease to be your identity. It is hard when it is a part of who you are and it alters how you live your life. The key for me is that it is part of who I am but not what I am. I am so much more than this disease. Maybe try just taking it day by day for awhile and not worry about the larger picture until your feeling better.

Hez

If you like the Midel fake oreos you will love the Kinicnick (sp?) k-toos They are truly amazing, just like the real thing.

Hez

I eat their rice cakes all the time. The have never been chewy. I would take that one back to the store you bought it from. As far as the rice cake tasting like the bag, never experienced that. However, I never eat the rice cake plain, I always have somethilng on it.

Hez

I really like the break bars! The closest thing to a kit kat that I have found. Only bummer is I have to mail order almost all of the glutino products, cannot find it locally.

Hez

The ice cream cones were wonderful

Hez

While there are several people on this board that have gotten sick from Amy's products I am not one of them. I also don't eat them often. But they are a great meal if I am in a hurry.

The cheese rice crust pizza is made in a dedicated facility if you are concerned about cc issues. As far as I know the other gluten-free options are not made in a dedicated facility.

Hez

I stay away from salad bars. In the end it just isn't worth the risk. I can make my own at home and not get sick.

Hez

The endoscopy isn't too bad. The worst part for me was getting over the drugs they give you. Plus I had "d" and a lot of gas the next day. Although I had "d" all the time so that probably was not related to the procedure. Good luck!

Hez

I highly reccomend talking to your doctor and doing research before trying oats. Then I would only eat the gluten-free oats from either the Canadaian (cream hill estate?) or Wyoming (glutenfreeoats.com) people. I eat the gluten-free oats from Wyoming and have not had a problem.

Hez

I ordered from them shortly after I was diagnosed over a year ago. I ordered the gluten-free graham crackers. I really did not care for them. However, the gluten-free thing was so new that I did not like most gluten-free products. So, not sure if you should give much weight to my opinion.

Hez

It is not okay. The oil is contaminated with the gluten foods. You need to have a dedicated fryer to ensure safe food.

Hez

It took me about six months on the gluten-free diet before I started to feel better. I think because my damage was severe (not one villi standing) it took awhile to heal. I have been gluten-free for over a year and feel wonderful. I have energy and am not running to the bathroom. Everyone is different and everyone heals at their own rate. I agree with Ursula about the dairy. I took out milk for a good nine months. I can now enjoy it again!

Hez

My understanding of refractory sprue is that this is celiac disease that is NOT helped by the gluten-free diet. You can be gluten-free and not get any better, still have gi symptoms. This is a rare condition. Hopefully, someone will chime in and give a better explaination.

Hez

I'm sorry I just didn't want anyone to get sick. All dairy queens are owned and operated differently. Talk to the manager. Who knows, if it's not busy they maybe able to clean it!

Hez

This just points to how different the same restaurant came be in another place! I phoned my Macaroni grill and spoke with the manager who told me there was nothing I could eat there. He claimed everything came marinated and could not even think about the cc issue.

I am so glad you had a great experience!

Hez

I am almost sure that my trigger was the birth of my eldest son. I was so sick. The doctor kept doing labs and could never figure out what was wrong with me. Over three months things got back to normal so the docs and I never went any further with it.

Fast forward seven years, an ectopic pregnancy and a 3 year old daughter and I became sooo sick! Again lots of testing with the a different doctor. This doctor just happened to run the celiac test so we figured out the dx. The biopsy showed complete atrophy, not one villi could be seen, completely flat. I think it just took awhile for my body to completly fail.

Hez