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hez

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  1. I would be very leary of getting a blizzard. Back in college (before dx) I worked at a dairy queen. They do not clean the blizzard machine between batches. So if someone ordered a oreo blizzard before you I would think the equipment would be contaiminated. Same with the milkshake machine, if someone had a malt before your milkshake.

    I do order their cakes for our family for birthdays. I spoke with the woman who makes the cakes, very nice. She ensusres that all the equipment is cleaned beforehand and the frosting is unopened. We leave out the fudge sauce and chocolate crunch and substitue m&ms. It is very good and she does great designs.

    Hez

  2. Isn't it great to be a year out! Happy Anniversary :P

    Are you and your husband big people? I ask this because it just might be that your kids are normal for their genetic make up. Both my ds and dd are small for their age (both have been tested and do not have it at this time, I am the one with celiac). However, I am small frame and so is my dh. My kids have never been over the 20th percentile. Most of the time they are around the 10-15 percentile. My son is hardly ever hungry, I can count on two hands the times he has asked for food, he is 8 years. His main goal in life is to play not eat!

    Just a different perspective that your son sounds completly normal to me (I am not a doc just another mom with a great son)!

    Hez

  3. Keep in mind I am in the US. It sounds like this ingredient sometimes is made with corn and sometime with wheat. It would not be gluten-free if it was derived from wheat but it would be gluten-free if it was derived from corn. I am pretty sure this ingredient is used as a sweetner but must also have a starch component (would explain the wheat or corn).

    I am hoping someone who knows a little more will contribute to this question.

    Hez

  4. For some reason I have choosen not to worry about this. Usually the person taking the order, getting gluten filled treats and taking your money is different from the person making the drink. I go to Starbucks about 4 times a week and have not had any trouble (knock on wood).

    I think that you need to find what your comfort level is. None of us live in a bubble but where each persons comfort level is different. I probably take risks others would not and choose not to take some that others readily take on.

    Hez

  5. A friend of mine has children who are allergic (not celiac) to wheat and dairy. When they are at potlucks or out to dinner the kids take some kind of enzyme that she says helps with cc. However, they have a different response because they are allergic. I am not sure if it would help if you had celiac.

    I really am not sure about these health food store enzymes, I have never tried them.

    I have heard of the research being done with the EP-B2. I think the research is being done at Stanford?

    Hez

  6. The reality is that eating out is risky for celiacs. It is one aspect of this disease that I hate. I went out and spoke to the manager, went over ingredients, very careful-I still got sick (I had a salad)!

    I think of eating out like going to Vegas. It is a crap shoot, sometimes you win sometimes you lose. We really do not eat out that often (I am not a gambler).

    I do hope you feel better soon.

    Hez

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