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hez

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  1. I am the only one that has celiac disease. The majority of the dinners I serve are gluten-free. However, I do make fish sticks and mac and cheese for them on occasion. But I hate the cc issues.

    Problem solved! I found Annies boxed (dry) gluten-free mac and cheese at Wild Oats. It uses rice pasta and is made in a gluten-free facility. It was good (I am still a kid at heart at times). I also did the Ian's gluten-free fish sticks. Again tastes like a fish stick (very kid friendly). It is a little costly so I will probably make their fish sticks and just make a few gluten-free for me.

    Hez

  2. I do find aspects of this disease difficult. I do fine at home and do not want the gluten things my family eats. Partly because I know how sick I will get. Plus I have found substitutes for most things or stuff is gluten-free. However, I do miss the ease of eating out. Going where you want to go. I miss not having to think about it. Although it is at times a struggle I will take this anyday over feeling sick. Or even worse having some life threatening disease. It is important for the sake of your family to stay gluten-free. They need you to be healthy. Maybe the family can do some comprimising by not going out as much. Let them know that this is difficult and you need their support. Keep coming here so we can remind you of the benefits of being gluten-free!

    Hez

  3. For a period of my life I had to distance myself from my mother (not related to celiac). It was hard, lonely and very sad. However, it was neccessary for me to do this to be healthly. During that period I surrounded myself with really good friends. I am so sorry they are unsupportive.

    Hez

  4. Hopefully, someone more knowledgeable than I (and a better speller) will add to this post. From what I have read the word spice could indicate gluten. However, with the new labeling laws it would have to state if it at least had wheat (the law does not cover gluten, just wheat). Depending on the product it may be best to contact the company or look online.

    Hez

  5. Steph,

    I love to cook and always have! I have found that alot of my "old" cookbooks are naturally gluten-free with a few changes. Do you have any cookbooks that you could skim thru for ideas? I made a wonderful chicken cachatore (I can cook but can not spell) with rice and vegies, tried a spoon bread the other night (Cooking Light magazine) with salad and fruit, and homemade pork green chilie with rice and cut up fresh vegies and dip. I have been in a rut as well lately. Sometimes I think I get so wraped up in what I can't have that I forget about all the things I can have. It does not help that you have a picky eater! I have one to but she is four and just puts on ketchup to cover up the flavor!

    Hez

  6. I am an Episcopalian and have worked out a communion rice cracker with my priest. However, my husband is Catholic so I understand (somewhat) the challenges you face with communion. I would highly reccomend speaking to your priest. From what I understand having just the wine "counts" as communion. I remember reading a thread where the catholic celiac has a special chalice to drink the wine from to eliminate cc issues. There was also a article in Gluten Free Living (some time ago) regarding the low gluten host. It might be another thing to research. I wish you luck. I know from personal experience how meaningful communion is.

    Hez

  7. Neko,

    Our family had planned a trip to S Dakota last summer. However, we canceled the trip in spring when I got my dx. I could barely eat at home, could not imagine travel at that time.

    We still would really like to visit. Please keep me posted on how the trip goes!

    Good luck and welcome to the board.

    Hez

  8. I have not been denied life insurance but that is because I got it prior to diagnosis! I have been denied the cheap life insurance rate because of back pain (that does not kill you). I think they can deny you the cheapest rate with this or any other disease. Keep in mind they do not understand celiac disease.

    This was a decision that my husband and I made together regarding gene testing.

  9. Please let your wife know that she is not alone. There is a entire board of people here! For me I had to take baby steps with the gluten-free life. I tackled one issue at a time instead of trying to do everything at once. There is power in knowing what is wrong. I would also recomend finding a support group. If one cannot be found have her write her feelings to the board. It is healthy to vent out your feelings. My thoughts are with you both.

    Hez

  10. I am sorry to hear that your daughter is sick. It is a horrible feeling to watch your kids not feeling well.

    For me, the reaction is within an hour to an hour and a half. However, for my Mom (not confirmed celiac disease just feels better gluten-free) her reaction can not appear for several days.

    I think each of our bodies is so different it is hard to come up with a solid answer.

    Hez

  11. How long have you been gluten-free? The reason I ask is it might not be the products. My experience was that I would be eating products that were safe but still getting sick. The reason, my villi were not healed. I saw some improvement in month 5-6. However, before that I would go in and out of feeling bad. I was never able to connect with a specific food. It was just taking my body a long time to heal.

    Of course products do change and it is highly possible that you have been glutened. Just thought I would throw out another possiblility.

    I do hope you feel better soon.

    Hez

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