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hez

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  1. Hopefully, someone will come to my rescue! I will be traveling to Hopewell, NJ in the coming weeks and will need to eat. I know that Hopewell is near Princeton. That about covers what I know!

    What places to eat are safe? Where can I shop for gluten-free food?

    I will have access to a gluten kitchen so some meals I can make.

    Thanks for any and all help!

    Hez

  2. Anytime we eat out we are taking a risk. It is very possible that somewhere along the line there was some cc. If you are still healing heavy greasy foods could also cause problems. There are those on this forum that have had great experiences there are others that have not been so lucky at PF Changs. Some locations do better than others.

    I am sorry you are sick. I hope you feel better soon.

    Hez

  3. I think this is one of those times where you really need to know your own psyche. If long term, you know that you would only follow the diet if you had a formal dx, I would eat the gluten. If you have the psyche that does not need a firm dx go off. It really is a matter of personal choice. I was off the gluten for only two weeks before the biopsy. However, my damage is so severe I could have been off gluten for months and the results would have been the same. I know me, I need a firm dx. Otherwise, I would always question the results which would open the potential for me to be reckless with my diet.

    I think you will find this forum a great resource! Welcome to the board!

    Hez

  4. I am so sorry you are not feeling well :( The only thing I can offer is my experience. After being dx it took over 6 months for me to notice a difference on the diet. My endoscopy revealed severe damage. I think because of that it took a very long time for me to feel better. To this day if I glutened due to cc I am sick for about a month. I know many people on this board have an easier time than me. In time you will figure out what is "normal" for your body. For now keep on the the diet and in time you will feel better :)

    Hez

  5. I have yet to find anything that remotely resembles "real" bread. I am to the point that I just do without. I use lettuce and corn tortias for "bread". I do think that Breads by Anna is the closest thing to bread. It does great in my bread machine.

    I know in Europe they have gluten-free breads that taste different due to the fact that some use the gluten-free wheat starch (highly refined with low levels of gluten). For awhile there were ads on this website for a company from Europe that used this ingredient. I am not sure if I would use due to the fact that I seem to react to cc. Just not sure. I know others have with success.

    Hope you find something you like!

    Hez

  6. KarenDianne-

    I know pure maple syrup (the real stuff) is gluten-free. There are alot of syrups that are not. I can't remember why, maybe malt? I use the Eggo brand of syrup and do not have problems. I checked about a year ago and they were gluten-free.

    Hez

  7. I have heard peanut oil is best for deep frying. It does not break down at higher temperatures like olive oil. However, I could not find a big jug when I went to the store. I ended up with vegetable oil and it worked great for my onion rings (the only think I have tried in my new fryer).

    Hez

  8. My family and I went to Disney in CA three years ago. We had the best time! We stayed at the Disneyland hotel and just did CA Adventure and Disney (did not go anywhere else). The character breakfast was wonderful. They made me gluten-free waffles and walked through the buffet line to tell me what I could have (keep in mind I am the only one with celiac disease). At the park there were several places that were fantastic with my diet. The mexican resturant was the best! Since we have gone you can now go to the entry desk? and obtain a gluten-free list of places to eat and snacks that you can have. Chef Chris (in charge of food service) is also a great resource and extremely helpful. I do not have his number but I think if you do some searches it will come up. You will have a great time!

    Hez

  9. I am so sorry your wife got sick. Everytime we eat out we take a risk. We as individual's have to weigh the risk. For me I am very sensitive so the risk is very high. I am careful when I eat out and really do not eat out very often. I am also very careful at home since I am the only one with celiac! I tend to not complain to restaurants when I do eat out. I feel like (in my instances) they did all they could to insure a safe meal and I am grateful for the gluten-free menu.

    Hez

  10. At the risk of being stoned :ph34r: I do at times find the gluten-free life to be difficult. Want to go to a friends house, out to dinner or on a vacation? Not so easy. Do I find the diet worthwhile absolutly! Would I knowingly eat gluten? No way! I find eating gluten-free to be very easy at home. However, in social situations it is not as easy. I would welcome a drug that would allow me to go to a friend's or out to dinner where I could be protected from cc. I get sick from even the slightest cc a pill that would take that worry/illness away is welcome in my book.

    Hez

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