hez

Next time you are in just ask to read the bottle of syrup. I think the label of ingredients is on there. I usually get a chai so I am not as informed about the syrups.

Hez

My understanding is that couscous has gluten which makes it a no go. If you go to the celiac forbidden list on this site you will see couscous listed. Below is a link to the page.

Hez

https://www.celiac.com/st_prod.html?p_prodi...-15107217727.b3

I was told growing up not to eat potatoes that are green. However, I have no idea why. I am curious.

Hez

I have also noticed this change in the packaging. The website states that some things are made in the same factory as wheat. It was not clear why the removal of gluten-free on the package. I sent Mission an e-mail asking why they have done this. If they reply I will post their answer.

Hez

It used to be that I would know I had been glutened within an hour. Which made figuring out what glutened me very easy. Now it is different. I think my lag time can be a couple of days. I find it very frustrating. It is almost imposible for me to figure out if it was something I ate or if it was cc. I wish I could be of more help. I am frustrated too!

Hez

Quinoa is a great substitute for couscous (which is a no no).

Hez

I highly recomend you order these donuts before the heat of summer is upon us! Otherwise the chocolate will melt off the donut.

Hez

This is also why most main stream cereal is off limits to us. Almost, no all, of my favorite cold cereals have malt in them

Hez

Welcome to the board. There are alot of great people on here that offer wonderful support.

First, take a deep breath and realize everyone of us at one point, is where you are. Feeling overwhelmed and alone. The good news is that you are not alone.

It takes a long time to figure out the gluten-free diet. It might be best to keep to simple naturally gluten-free food for awhile, chicken, beef, fish, rice, potatoes, fruits and vegies, until you get a better handle for what to look for in ingredient labels.

As far as the bf and family go, you may need to give them a little time. I would suggest steering them to this site or other information that explains celiac in simple terms.

Some things to look out for that might have gluten are make up (esp lipstick), shampoo, lotion, sharing condiments (like mayo or mustard, is your bf using a knife then double dipping? it is now contaminated), sharing the same cutting boards and toasters are just some things to think about.

I know others will have more useful tips and offers of support!

Hez

I completly understand how you feel. Most of us feel the same way from time to time. Life would be so much better if there was no gluten!

Hez

Thanks for the info. Next time I go out (which is hardly ever!) I will call the Red Robin near us.

Hez

Does Red Robin have a gluten-free menu? I went to the website and could not find one.

Thanks,

Hez

I chew trident. It took forever but here is what the webstie says

Is Trident

What a relief it must be for both of you to have this surgery behind you. Sending good thoughts for a speedy recovery.

Hez

I had thyroid papillary cancer before my celiac. My mothers doc is convinced they are related.

For me thyroid cancer was not a huge deal. It has an extrememly high cure rate and little side effects to treatment. I had surgery to remove the thyroid and lymph nodes. The cancer had spread to the lymph nodes but again it is not a huge deal. For some reason in thyroid cancer it does not spread through out the body if it goes into a nodule, it just sits there. After surgery we did follow up radiation treatment. Again no side effects. Really the worst part was being in isolation after the radiation treatment. Now I take synthroid (pill) to replace the thyroid functions.

Fast forward 15 years later and I get my celiac dx. I am not sure if my surgery was my trigger or the birth of my son. I tend to think ds only because I was sick months after giving birth.

I will send prayers and good thoughts your way and for your Aunt.

Hez

Since I am the cook in the household our dinners are gluten-free. I am very sensitive and need to be careful. So, I do not mess with gluten. You will need to find what works best for you. Make sure you butter tub, mayo and other condiments are not contaminated by gluten. I have my own and just mark it with a sharpie!

Welcome to the board!

Hez

Everytime I call about yogurt I get the same answer. Only the natural, no flavor is guarenteed to be gluten freel

I have heard the above to be true about Dannon but not yoplait. If you do a search on this site there are alot of threads saying what I have said. Yoplait is made by Kraft, Kraft is a company that discloses gluten on the label. You do not need to call the company, you need to read the label. This is one of the companies that celiacs can trust.

Hez

Most yoplait yogurt is gluten-free (I think there is one with a granola), they are a Kraft company and will clearly state gluten. I use a natural Hormel deli meat that is prepackaged that says gluten-free on the label. However, I think the Healthy Choice lunch meats are safe but I am not positive.

Are you reading the labels everytime you buy something? It seems like a stupid question but I have almost been glutened from forgeting to double check every product every time. A company can change ingredients like we change our underwear!

I would also think about cc issues in your home. Plus I would look to outside sources of possible contamination (playgroup, church, preschool, day care, grandparents).

I hope you find some answers soon. It is very frustrating.

Hez

There is also a company in Wyoming called Gluten Free Oats. They also test their product. I have used their oats in the past and was happy with the company (family member has celiac).

Hez

I like Kinnicnik and some of the Glutino breads. How can Whole Foods screw up so badly?

Hez

Welcome! I got rid of some of my non stick cookware that had deep scrathes but kept my stainless pots and pans. Just gave everything in my kitchen a good scrub. I did go through my make up shampoo to make sure they were safe.

Hez

I would also be concerned about the chips. Most are fried in fryers where gluten is also fried. You really need to ask. There is never a "safe" option at a resturant. It is always necessary to ask questions.

Hez

You should have no problems visiting Disneyland. Call Disneyland and ask to speak to Chef Chris. First ask for the food/resturant department and eventually you will find Chef Chris, the nicest guy in the world. He will walk you through what and where you can eat. Have a great time!

Hez

I just made today pineapple wrapped in bacon. Very quick and easy.

Hez

I have not seen these yet. I will be on the look out! I would love to try them.

Hez