clevercate

Hi Kathy, It's been awhile since I saw your post back in April. I meant to comment back then but I've been so overwhelmed by this whole gluten business that I had to step back for an emotional breather. Now I feel I'm ready to get back into the game! Firstly, how are you doing? Everything can change so often and so fast with having gluten ataxia...

Hi Kamma, So pleased to hear back from you (and a big thanks for the Edit. link , so useful and I hadn't found that site yet...). I am still fairly mobile ( use public transit, walk almost every day...) and intend to stay that way. I believe one of the reasons I may have stayed mobile is that I "use" it each day , including physio exercises for strength...

Kamma & Co. I'm so interested in reading ALL of these comments. I'm new to this forum, a brief bit of history. Although I was diagnosed with sporadic ( idiopathic ) spinocerebellar ataxia in 2004, I've always felt there was more to my conbdition than just the " sorry, there's nothing we can do for you. Go home and don't worry about it " ( an actual...