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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    My antibodies were elevated when I had a repeat endoscopy. My GI went in deep and his scope’s magnification was strong. You could see the heathy villi (got the photos). The pathologist’s report confirmed healing at the microscopic level. The antibodies tests were to help diagnosis celiac disease but not to monitor the diet or healing. The only way...
  2. cyclinglady
    Your results are negative, but know that some celiacs are seronegative. If you have some of the risk factors for celiac disease (like a family member, another autoimmune disease (autoimmune thyroiditis or Type 1 diabetes) iron deficiency anemia, etc.) or you have Gi issues (it could be a FODMAP issue), consult a GI. There must be a reason why you went...
  3. cyclinglady
    Then the IgG tests are normally ordered if you are IgA deficient.
  4. cyclinglady
    How IgA deficient are you? For what I know, (a crazy lady on the internet) your immunoglobulin A ( IgA ) result needs to be close to zero and not just below range for the TTG IgA test not to work. You could ask for the complete celiac panel. I test positive to only the DGP IgA, had patches of severe damage via biopsies and was only low on ferritin — n...
  5. cyclinglady
    It can take up to a year or longer for antibodies to resolve. Just stay the course. Do not get hung up on the numbers. As long as they are not going up, you are fine! Know that the antibodies tests were designed to help diagnose celiac disease and not really to monitor it. But it is the non-evasive tool in the tool box, so doctors use it....
  6. cyclinglady
    Make sure before your endoscopy that you are back on a daily diet of gluten for a solid two weeks. Other than my ferritin (iron stores), I was not deficient in anything when I was first diagnosed. I had some patches of severe damage. Anemia was my only symptom at the time. It sounds like you are doubting your diagnosis. The endoscopy might...
  7. cyclinglady
    Two positives on the celiac panel? I think there is strong evidence that you might have celiac disease. Your biopsies obtained from your endoscopy should give you a final diagnosis. It will also provide a benchmark for future endoscopies should you need them. Expect to go through a grieving period, but know that you will soon feel better! It...
  8. cyclinglady
    I have other allergies, so finding bars is not easy for me. They sure are convenient though.
  9. cyclinglady
    I checked the website. They list only the active ingredients. I think you need to call them or see if the inactive list is on the box or insert unless someone else on the forum has used this product. Good Luck!
  10. cyclinglady
    I would strongly suggest you go gluten free. You did have a positive TTG. Like I said, it can be easy to miss damaged areas or you could just be starting to develop celiac. The AIP diet has helped so many people who have autoimmune disease and it is gluten free. Which is telling. Gluten is not good for everybody. Even celiac disease researchers know...
  11. cyclinglady
    Stuff that that happens! No worries. I am confident, if you scrub off the spatula and run it through the dishwasher, it will be fine. Usually it is recommended to get new utensils, (e.g. wooden spoons), due to years of gluten contact.
  12. cyclinglady
    This one should be fine. It is labeled gluten free. You said you did not feel well after eating them. It could be due to additional intolerances to dairy, soy, nuts, or corn which are in these bars and not gluten. But if I ate something that made me feel sick, I would avoid it. How long have you been gluten free?
  13. cyclinglady
    The author was never diagnosed with celiac disease based on her own admission I found on her earlier January 2020 posts: “Hi - found out I had celiac disease almost a year ago (but think I’ve had it for about a year and a half). My blood test came back negative but I hadn’t eaten ANYTHING four days prior cause my body was rejecting it. I didn’t do ...
  14. cyclinglady
    True, but some celiacs are definitely more sensitive than others based on forum members who have DH and have reported rashes from gluten free labeled products. Personally, there are better bars out in the market for celiacs. The Atkin bars are made in a facility with wheat (which may or may not be an issue) and they contain soy, nuts, corn and...
  15. cyclinglady
    It is possible that your GI missed damaged areas. I think your other autoimmune diseases (Sjogrens and RA) can cause the slightly elevated TTG IgA. The University of Chicago: “Yes, blood work can be falsely positive, as can any test in medicine, especially at low titers. However, it may be that the biopsy was done or read incorrectly or that t...
  16. cyclinglady
    Sure your body craves all that stuff. Sugar is addictive. It is like a drug! But why no fat or salt? Those things are allowed on the AIP diet. Big juicy steaks, nice pieces of salmon, A big, fried-in-lard burger, chicken with crispy skin, tasty avocado salad, green salads drenched in olive oil, roasted sweet potatoes or squash, yummy crispy fall apples...
  17. cyclinglady
    They should be under 20 ppm of gluten if clearly labeled gluten free on the package. Some celiacs are more sensitive, so you need to use your own judgement.
  18. cyclinglady
    I think it best to heal from celiac disease so that you can absorb the nutrients to help improve your bones. I have osteoporosis and had fractures 7 years ago just after my diagnosis. I am good now. No more fractures. A gluten free diet and plenty of weight bearing exercise did the trick. The author of this article was not even formally diagnosed...
  19. cyclinglady
    All celiac disease testing requires you to be on a full gluten diet. To do a gluten challenge would require 6 to 8 weeks of gluten (1 to 2 slices of bread daily or equivalent) or 2 weeks if going directly to endoscopy. The gut literally can heal in as little as a few weeks. Most people do not heal that fast, but some can. Also it takes time to build up...
  20. cyclinglady
    There is celiac disease, Non-Celiac Gluten Sensitivity, and a wheat allergy. There are no tests for Non-Celiac Gluten Sensitivity (used to be called Intolerance). The diagnosis comes from exclusion of celiac disease (gluten: wheat, barley and rye). and wheat allergies (think anaphylactic reactions, hives, selling, etc). Ask for a full panel if...
  21. cyclinglady
    I hope your surgery goes well.
  22. cyclinglady
    Congratulations! And it is sooooo true!
  23. cyclinglady
    Best to get back on gluten and ask your doctor for a celiac blood test. If you are gluten free, all celiac testing is invalid.
  24. cyclinglady
    I could not do it either. The document looks like it was originally printed and then scanned into a PDF. I do not eat things like chicken nuggets, or fake crab, but I would avoid processed formed meats for sure and probably those non-dairy yogurts and cheeses. To @Aaron275 — Soy can be a huge problem for many celiacs. Avoid it. The b...
  25. cyclinglady
    Thanks @knitty kitty These are some of the same things that I found. Nothing specific. Best to avoid processed foods as much as possible, I suppose. I did sent an email to the Gluten Free Watchdog about this topic since she has contacts at the FDA.
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