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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I can not help with an allergy spray, but my family uses a Nedi Pot which is just a saline solution. It works and is very safe. Boil the water and cool. Do not use tap water.
  2. cyclinglady
    Thanks for the update. Remember, you are the customer. You should be given copies of all your lab tests each and every time or they should be loaded into your patient portal if you live in the US. Also, I think you just had the TTG IgA test. I never had a positive on the TTG or EMA. Just the DGP IgA and I am biopsy confirmed. Why? No one knows...
  3. cyclinglady
    The Kirkland Cashews must be a different supplier that varies by region. Mine only mentions processed with other nuts. Not sure about Edy’s. You must be on the East Coast! We have Dreyers which is on the West Coast. I think if you stick with plain flavors, you should be just fine per the website. But I really like Breyers (Unilever) which h...
  4. cyclinglady
    Just avoid the ones that state “made in a facility that uses wheat”. Sometimes you can call the manufacturer to see of lines are shared, but when it is private labeled (e.g. Kirkland, Trader Joe’s, Aldi, Or other store brands), it is harder to get a definitive response. For example, Jelly Bellies do not contain gluten. We toured the candy factory. Onl...
  5. cyclinglady
    Welcome! You might try the search button on the forum. I found this thread to get you started: https://www.celiac.com/forums/topic/52692-farming-with-celiac/
  6. cyclinglady
    We do not eat the Costco nuts that are made in shared facility with wheat (not all of them have that statement and I will purchase those that do not have that statement). I confess that I have not followed up by calling to see if the lines for the no-gluten-listed products are dedicated. Costco peanuts (a legume) are certified gluten free. I get...
  7. cyclinglady
    Hi! There are over 200 symptoms for celiac disease. All that you mentioned could be celiac disease, a gluten sensitivity, cancer, SIBO, lupus, whatever! The only way to know if it is celiac disease or not is to get tested, but you have to be consuming gluten daily or the tests will not work. Learn more: http://www.cureceliacdisease.org/screening...
  8. cyclinglady
    That is FANTASTIC news! Thanks SO much for sharing! ???
  9. cyclinglady
    Italy is a gluten free haven! Print off or take a photo of gluten free travel cards (google it). They can be found in most languages. It tells the server how to handle your food. We were able to find 100% dedicated gluten free restaurants (for example one was by the Vatican). Restaurants come and go, so do some online research before you go. Check...
  10. cyclinglady
    Refractory? Your GI is nuts! It is WAY to soon to even consider refractory celiac disease. It is too soon to even suggest non-responsive celiac disease. Why? The gluten free diet has a HUGE learning curve. Huge! Then there is the time to heal. Antibodies do not shut down fast after you stop the consumption of gluten. Your body decides when it is...
  11. cyclinglady
    Like I stated before, you might not have celiac disease. Six biopsies and your TTG tests were negative. You can trial the diet like Tessa suggested. You might have Non-Celiac Gluten Sensitivity. Did your doctor suggest anything? Have you had a discussion or is this direct from the patient portal? I do not think you are IgA deficient enough to...
  12. cyclinglady
    Yes! Just look for the green gluten free symbol on their cartons. Not all Breyers is gluten free. Those that contain gluten or might be cross contaminated are made on a different manufacturing line/location.
  13. cyclinglady
    That is odd because their website says that all Mylanta liquid products are gluten free.
  14. cyclinglady
    You can have gastritis for a variety of reasons. If it is acute, it probably is due to something like a virus or bacterial infection (food poisoning). Chronic gastritis is most often due to H. Pylori which can be treated. I was diagnosed with Chronic Autoimmune Gastritis. A recent endoscopy/biopsies revealed it (I did not have gastritis when I was diagnosed...
  15. cyclinglady
    Stew, soup and even cooked fruit — anything mushy. I eat this for breakfast lunch and dinner. Anything hurts to digest for a few weeks. As far as gluten is concerned. Our house is gluten free, but even when it was mixed, I accepted no outside food that could contaminate my kitchen, including my grill. Some people bring food still, but I graciously a...
  16. cyclinglady
    @Sickcutie Welcome! A celiac must be gluten free in order to heal. Can you tell us why it is hard for you to follow the gluten free diet? Do you worry about missing your favorite foods? Do you have access to medical care? Your doctor should be able to help you. Perhaps talking with a dietitian would be helpful or join a local celiac...
  17. cyclinglady
    Again, every celiac is different. My recent endoscopy (five years after my diagnosis) revealed healed villi. I do not think it took me five years to heal, but my few glutenings I experienced in those five years were significantly more severe compared to when I was diagnosed where I only presented with anemia. Researchers think Zonulin might be the...
  18. cyclinglady
    Like Ennis shared, a gluten exposure hits me much harder. I only had anemia when I was diagnosed. My glutenings can last for months (e.g. hives for months or hurting to digest anything for weeks). Each glutening has developed a new set of issues for me. But that is just me. Every celiac is different in terms of presentation and experiences. i can...
  19. cyclinglady
    Celiac disease and other autoimmune disorders fall under the umbrella of Hypersensitivity. There are four/five types. I have found that if one of my hypersensitivity issues (say a gluten exposure that triggers a celiac response/flare up) worsens my other types of hypersensitivity like IgE allergies or my Hashimoto’s thyroiditis. Although this is W...
  20. cyclinglady
    What are the lab ranges? What kind of doctor are you working with? Celiac Disease blood tests help with a diagnosis, but only intestinal biopsies can confirm it. Some people do not have access to an endoscopy for a variety of reasons (e.g. lack of insurance or long wait times). In that case, the doctor might trial a gluten free diet and check antibodies...
  21. cyclinglady
    Two months is a bit too soon, but at least your TTG came down. That is a great sign! Stay the course.
  22. cyclinglady
    Are you sure celiac disease was firmly ruled out? Consider getting a second opinion. Did you receive your test results? Did you get the full celiac blood panel? Did you know that some people do not test positive on the standard screening celiac disease test: the TTG? Did you know some celiacs are seronegative? Though I would think your doctor, if he...
  23. cyclinglady
    There is no test for a gluten intolerance or sensitivity, (Non-Celiac Gluten Sensitivity). You can get tested for celiac disease. Symptoms for celiac disease or NCGS can be attributed to many many illnesses. Learn more about testing: http://www.cureceliacdisease.org/screening/
  24. cyclinglady
    This small study suggests that taking probiotics may contribute to brain fogginess and bloating. While it may be good to keep the large intestine (colon) populated with healthy bacteria, taking probiotics in patients with impaired gastrointestinal mobility (e.g. diabetes, celiac disease) may contribute to issues like SIBO where the bacteria may populate...
  25. cyclinglady
    You could be susceptible to a gluten intolerance. The only way to find out is to get tested. Learn more about testing for celiac disease. You must be consuming gluten 8 to 12 weeks prior to the blood tests or the results will be negative. http://www.cureceliacdisease.org/screening/ Find another doctor. Your current doctor does not seem...
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