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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I was diagnosed five years ago. I did not have GI issues, but had anemia which resolved on a gluten free diet. Is the diet worth it? Yes, I actually feel much better. Things I attributed to age have resolved. If I had been diagnosed earlier, I might have prevented my other autoimmune disorders from developing. I might have prevented my vertebrae...
  2. cyclinglady
    Systemic candida is not as common as the internet leads you to believe. Many AIDS patients struggle with Candida because their immune system is serious compromised. Others usually have it localized like thrush (babies) or women, vaginally. There have been UTI issues linked to candida. Members report a link to celiac disease, but who knows if that is...
  3. cyclinglady
    Looks like doctor notes, but who knows as I am not a doctor. Celiac disease and epigastric issues? Maybe for insurance reporting? Like anything there are good and bad benefits to a patient portal. Call the doctor.
  4. cyclinglady
    The most popular brand of cornflakes in the US contains gluten. Maybe check your box of cornflakes for the barley ingredient?
  5. cyclinglady
    Have you tried soy milk? Although some people do not tolerate it, I used it for years when I was lactose intolerant. Habits are hard to break, but you could try drinking tea without anything added. Make sure your tea is gluten free, of course. I am in the U.S. and drink plain old Lipton (black tea) or the Republic of Tea which is certified gluten...
  6. cyclinglady
    I would say you might be experiencing lasting damage! Dealing with DH (which is celiac disease that manifests in the skin) is horrible! A strict, super strict gluten-free diet is advised. It can years for the antibodies to clear out of the skin and it can erupt (flare) even when not exposed to gluten during recovery. See if you can get the complete...
  7. cyclinglady
    I do not have DH, but I have been pregnant and understand your concerns. I have not seen Sulfasalazine prescribed for DH. I would definitely research the possible effects with a pregnancy. https://www.drugs.com/cdi/sulfasalazine-tablets.html Dapsone is usually the first line of defense with drugs, but these drugs can have serious side effects...
  8. cyclinglady
    Me. I had no GI symptoms at the time I was diagnosed. I was shocked. I did have anemia, but struggled with that all my life (my celiac-related anemia was always overlooked due to a genetic anemia). I had just gone in for a routine colonoscopy (cancer screening for the over 50 club) and during my consult, my GI ordered a celiac blood panel and if positive...
  9. cyclinglady
    Thanks, all. I really appreciate the input that you all have made. This is a confusing or controversial topic in the celiac community. Each person must do the research and decide for themselves if drinking gluten-reduced or even gluten-free beer (20 ppm) is right for them. I personally waited years before drinking beer. Like bread, I think you just...
  10. cyclinglady
    Try to save money by eating foods that are naturally gluten free (meats, fish, veggies, fruit, nuts, rice and dairy when you can tolerate it). Avoid processed foods, because most are junk food anyway and are not healthy (e.g. cookies, candies, crisps, etc.). At this point you want to heal as fast as possible. Try wrapping your “sandwiches” with lettuce. ...
  11. cyclinglady
    Since you are sick of doctors, consider the gluten-free diet. Be sure to stay on it for at least six months. The DH? Who knows? DH visually mimics other rashes. A biopsy is the sure way to a correct diagnosis. You do have to be gluten for 6 to 12 weeks though.
  12. cyclinglady
    There are over 200 symptoms for celiac disease. Best to get tested as symptoms for celiac disease overlap with other illnesses. http://www.cureceliacdisease.org/screening/ I hope you feel better soon!
  13. cyclinglady
    Welcome! The TTG can be elevated for other reasons though that is not common. Chances are, your GI missed damaged areas which is easy to do since the small intestine is the size of a tennis court! If you are feeling better, stay the course. It takes time to heal and two months is not enough time to heal. Look at feeling better at six months or...
  14. cyclinglady
    Stay hydrated. It will be over soon. The prep (dang, I got sick (bored) of jello and broth) is the worst part. Plan for something yummy to eat when you get back home.
  15. cyclinglady
    Welcome! There are over 200 symptoms that can be attributed to celiac disease. Unfortunately, they often overlap with other illnesses. Here is more information about testing, which usually includes taking biopsies from the small intestine. http://www.cureceliacdisease.org/screening/
  16. cyclinglady
    What? Trents is not drunk. Arsenic is a huge concern especially for celiacs because most gluten-free, processed foods contain rice as a substitute for wheat. Learn more: https://www.consumerreports.org/cro/magazine/2015/01/how-much-arsenic-is-in-your-rice/index.htm https://www.glutenfreewatchdog.org/news/arsenic-and-rice-update-for-gluten...
  17. cyclinglady
    Welcome! There are over 200 symptoms that are attributed to celiac disease. Unfortunately, those symptoms often overlap with other illnesses. Learn more about testing for celiac disease: http://www.cureceliacdisease.org/screening/ Follow your gut (no pun intended). Something is wrong. Do not settle for a “it is all in your head” dia...
  18. cyclinglady
    Great suggestions. There is a chunk of those who have celiac disease who are non-responsive. Most often it is due to hidden gluten (some can not handle 20 ppm). Read this study and consider the “Fasano” gluten-free diet for a few months. The diet restricts processed foods, even Certified gluten-free foods. Then get retested. Talk to your GI....
  19. cyclinglady
    I am sorry you got sick. If it is any consolation, I get my face peppered with red dots after vomiting. This has happened since I was a kid. Mom: “You just threw up, didn’t you?” Me: “Yeah, how do you know?” When I was little I always thought that I could never hide anything from my mother. She had amazing magical talents. ? Guess what? Petechi...
  20. cyclinglady
    Great advice! It is so hard to determine the best course of action. I worry about this very issue with my 17 year old who is due to be retested.
  21. cyclinglady
    Maybe it is not your celiac disease acting up? I struggled last year with gastric issues. I had a repeat endoscopy which revealed healthy healed villi and a new diagnosis: Chronic Autoimmune Gastritis. While I can control or treat my celiac disease with a gluten free diet, I can not control my gastritis. I notice that my gastritis occurs or is made...
  22. cyclinglady
    Another reason you might want to stay clear of oats (not celiac related). Weed killer found in kid’s cereals. https://www.ewg.org/childrenshealth/glyphosateincereal/#.W3blmhplChA https://www.ewg.org/release/roundup-breakfast-weed-killer-landmark-cancer-verdict-found-kids-cereals-other-oat-based#.W3S7ghplChB Wonder how much is found in w...
  23. cyclinglady
    It is complicated. Those two tests (TTG IgA and DGP IgG) were negative and based on those two facts alone, you could say that you do not have celiac disease. However, it does not mean you do not have celiac disease. 1. You might not test positive to any of the celiac blood tests, but you could still have intestinal damage. That happens to s9me...
  24. cyclinglady
    You might not have celiac disease, but a few of your test results indicate that something could be going on. It is good that you are getting checked.
  25. cyclinglady
    I do not know why they use the word “mild”. A positive is a positive. It is like saying you are mildly pregnant! You are either pregnant or not. I receive a “mild” positive because I had only one positive on the entire celiac panel. Yet, my biopsies revealed some pretty severe damage. A low result does not necessarily indicate low damage and a h...
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