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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Wow! You have a positive ANA and an elevated histamine level (what was the range). Was lupus or other autoimmune ruled out? You could have celiac disease or sensitivity. You would have to have an endoscopy. You did not mention your symptoms, but I assume you have GI issues or are anemic unless you have a relative who has celiac disease. My...
  2. cyclinglady
    Good luck! Even if I order gluten-free meals (e.g. international flights), there is a 50% chance that The gluten-free meal will make it on the plane even when I have called several times to confirm. I bring my own food. Cold items are placed in a collapsible cooler with a bag of ice. The ice is discarded in the trash when going through TSA. Then I...
  3. cyclinglady
    Show me legitimate peer-reviewed studies, please. Otherwise, I personally disagree. https://library.sdsu.edu/research-services/research-help/peer-reviewed-articles
  4. cyclinglady
    Yes. Consumer Reports issued an article about rice and apple juice a few years ago. Trish Thompson who heads up The Gluten Free Watchdog, a mini version of Consumer Reports, has written many times about the subject. https://www.glutenfreewatchdog.org/news/arsenic-and-mercury-in-rice-new-research-from-dartmouth-college/ This is a concern since...
  5. cyclinglady
    You mean that with all these lab results, no doctor has been able to pinpoint a diagnosis?
  6. cyclinglady
    When I had a positive on my blood panel, my endoscopy was scheduled out seven weeks due to work constraints. I used that time to bid a fond farewell to some of my favorite foods. That said, I would not want to mess up an opportunity to get a firm diagnosis. Eat gluten daily. Start now until you have the endoscopy. Current guidelines are 2 to...
  7. cyclinglady
    Do not be embarrassed! You should follow your intuition (your gut feelings). Men do not have that same instinct. You have to not only protect yourself, but your unborn child and manage your three kids. You have a lot to handle on top of avoiding gluten! Anxiety is so common with celiac disease too. It will improve with time. I just went...
  8. cyclinglady
    I think you need to pull all your records, including the pathologist’s report and get a second opinion from a GI who has celiac patients. Something is not adding up. The biopsy should have seen damage. That is way more telling than a visual. You might be right that you do not have celiac disease or you might be a silent celiac like Tessa says (at least f...
  9. cyclinglady
    Are you sure it is eczema? Has your dermatologist ruled out Dermatitis Herpetiformis? DH is an insanely itchy rash that is usually bilateral (both sides of body). It is actually celiac disease and can only be treated on a strict gluten free diet. https://celiac.org/celiac-disease/understanding-celiac-disease-2/dermatitis-herpetiformis/
  10. cyclinglady
    Glad you are doing well! Welcome to the forum.
  11. cyclinglady
    Have you had repeat testing (celiac blood panel or repeat endoscopy)? This will help determine if you are diet compliant or if celiac disease could be the cause of your bloating. It could very well be a new illness.
  12. cyclinglady
    How were you diagnosed with celiac disease? Both blood tests and biopsies via endoscopy? What was your level of intestinal damage? Or were you diagnosed due to your rash? Was that biopsied? If you have DH (celiac rash), it takes months to a year for it to go away. DH suffers need to be super strict with their diet. Your gluten splurge? If you...
  13. cyclinglady
    Do you have any family members with celiac disease or other autoimmune disorders like Type 1 Diabetes, thyroiditis, etc. do you have any autoimmune disorders yourself? Any lab tests that are off (e.g. low hemoglobin, iron, elevated liver enzymes, or very very low total cholesterol)? It might make your case stronger for a referral. At Kaiser, only...
  14. cyclinglady
    @Steph 86 As of July 2018, the Colgin website states that their liquid smoke is gluten free. Of course formulas change, so you should read the label. Carmel color is usually gluten free and derived from corn in the USA. https://www.colgin.com/faq/#gluten https://www.beyondceliac.org/gluten-free-diet/is-it-gluten-free/caramel-color/ Glad...
  15. cyclinglady
    @H8 Wheat — You said that you were nearly six weeks into the challenge. That might very well be enough to find elevated antibodies in your bloodstream. The University of Chicago issues pretty conservative numbers. Their goal to is catch as many celiacs as possible. We are all individuals and researchers really do not all agree on specific cut off dates d...
  16. cyclinglady
    Two months after my celiac disease diagnosis, I fractured two vertebrae doing nothing. Turns out I have osteoporosis as a result of having celiac disease. I had months of pain, numbness and tingling. Ask your doctor for a bone scan. But...two months is a short amount of time to heal from celiac disease. It takes time to really master the diet which...
  17. cyclinglady
    The result seems negative me (I am not a doctor). Did your doctor run the control test (Immunoglobulin A or IgA)? If you are IgA deficient, the other IgA tests are invalid. Consider getting the rest of the panel: EMA and DGP. Not all celiacs test positive to the TTG tests that you took. Have you seen a GI?
  18. cyclinglady
    You should go back to your GI. Get your antibodies rechecked to see if celiac disease is the cause. It might be another autoimmune disorder or other issues. Right now, you are just guessing. Get to a doctor for testing.
  19. cyclinglady
    Great points! I wish there was testing available for those who have been gluten free for years. I would sign my hubby up.
  20. cyclinglady
    Just keep in mind that celiac disease testing requires you to be consuming daily for 8 weeks or so before a blood draw. They are testing for antibodies and not an allergic reaction. It is possible to also have an actual wheat allergy. Allergy testing (IGE) is not always accurate. For example, I wheal up for horses and cats. But I do not worry about...
  21. cyclinglady
    Okay, GFinDC, I am going to plug Mission’s sister product Guerrero tortillas which are on the West Coast. Both are made by Grumas Corporation. They crank out billions of corn tortillas, flour and chips. They are actually labeled gluten-free making it easier for newbies and seasoned veterans to identify. Tamale season is soon approaching! ...
  22. cyclinglady
    If you still suspect celiac disease, ask your medical doctor for a celiac blood panel. Keep in mind that the antibodies tests will only work if you have been consuming gluten daily for 8 to 12 weeks (conservative figures per University of Chicago). Celiac disease has been compared to an iceberg. Since the genes for the disease were identified, they...
  23. cyclinglady
    There could be a reason doctors are no longer trying to use antibiotics to relieve DH or Rosacea. There are some very serious side effects to taking these drugs long term. Why even take the risk when dietary changes can provide relief and remission? I can speak from personal experience. I have Rosacea and was on tetracycline for a few years back...
  24. cyclinglady
    Hi! Push for the full celiac panel (it is just one blood draw). The TTG test does not catch all infants and toddlers. They are so little that they might not have had enough gluten exposure to develop antibodies. Ask for the DGP tests! https://celiac.org/live-gluten-free/lifestyle/for-parents-and-children/22783-2/ This trusted Preemie...
  25. cyclinglady
    If you have celiac disease, ask your doctor for follow-up testing to see if your antibodies are elevated. This can help determine if you dietary compliant and if celiac disease might actually be the cause of your leg pain. Regardless of your reason for going gluten free, your symptoms should have resolved by now. I would consider seeing another doctor...
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