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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I can not help you. I avoid processed foods and I too, have heard complaints about Amy’s products. But I checked the Gluten Free Watch Dog’s site. The two Amy’s products she has tested were below 5 ppm. Instead of getting a subscription to People magazine, ask for a GFW subscription on your next birthday. GFW is like Consumer Reports. Unbiased and r...
  2. cyclinglady
    No question is dumb! Go ahead and have a drink. It may or may not bother you. It depends on the extent of your intestinal damage and collateral damage like liver damage (I never had that). Like you said, stick with wine, cider, or gluten-free beers that are brewed with non-gluten grains. Do NOT try the gluten reduced beers like Omission. I like potato...
  3. cyclinglady
    If you want to know if you are lactose intolerant, then test with milk. But what if you are “slightly” lactose intolerant? Then you would be giving up cheese or butter when you would not have to. I need dairy in my diet. I am not just gluten free, but am a diabetic. Grains are not diabetic friendly, but full fat dairy is. I would (did) test wit...
  4. cyclinglady
    Did the Kaiser GI offer to do an endoscopy to obtain intestinal biopsies? If not, you should! The antibodies tests were not designed to diagnose celiac disease. Biopsies obtained from an endoscopy is the gold standard of diagnosing celiac disease according to all celiac experts (I attended a lecture this year by Dr. Sheila Crowe who is the President of...
  5. cyclinglady
    I am glad you are going to the doctor! Something is definitely wrong!
  6. cyclinglady
    I am sorry that you are ill. When was the last time you had follow-up testing done for celiac disease (antibodies and/or endoscopy)? http://www.cureceliacdisease.org/faq/how-often-should-follow-up-testing-occur/ Rule out active celiac disease as the culprit of your current symptoms first otherwise you are just guessing.
  7. cyclinglady
    I was on the “Fasano” diet last Fall. I did NOT give up coffee and I did NOT consume Gatorade. I think the diet’s emphasis is concentrating on whole, non-processed foods that reduce the risks of hidden sources of gluten contamination. It is pretty simple. Eat like your great-great grandparents. If you did not grow it, gather it or hunt it, you did n...
  8. cyclinglady
    If you have been diagnosed with celiac disease, ask your GI to run follow-up antibodies testing. This will help you determine whether your celiac disease is active. You may have other illnesses that are the source of your symptoms. http://www.cureceliacdisease.org/faq/how-often-should-follow-up-testing-occur/
  9. cyclinglady
    I am not a doctor, but the celiac tests (TTG and EMA ere negative). Your IgA (Immunoglobulin A) is low (could be due to many things), but it is only used as a control test in celiac disease testing. (It means the celiac test results worked.) You could ask for the rest of the celiac panel which includes the DGP. Talk to your doctor to see if this is...
  10. cyclinglady
    Welcome! 1) Follow up testing is advised. Are measuring your antibodies a good indication that you are adhering to the gluten free diet? Celiac experts think so, but the tests were designed to help diagnose celiac disease. They are not perfect, but they are the only tool in the toolbox for now. Biopsies obtained via endoscopy are still the best...
  11. cyclinglady
    Welcome! If you are both on a gluten diet, consider getting tested before going gluten free. Please research the topic carefully. Your doctor may not be celiac savvy. Going gluten free before testing is NOT recommended by all celiac disease experts. Here are the tests: http://www.cureceliacdisease.org/screening/ Some 30% of the population...
  12. cyclinglady
    Have you been tested for Graves Disease? It is an autoimmune thyroid disorder. Ask your doctor for a complete thyroid test (including thyroid antibodies and especially if you already have celiac disease).
  13. cyclinglady
    Welcome! Celiac disease is like a chameleon. Symptoms wax and wane. Always changing. They can get worse after going gluten free. Even a tiny exposure can set off antibodies that attack your small intestine. You are still new. The gluten free diet has a very steep learning curve. Consider a few things. Get follow up testing. This can help...
  14. cyclinglady
    I am sorry that you are unwell. It can take over a year to recover from celiac disease depending on your intestinal damage. The diet is tough to master, you could have additional intolerances or other concurrent illnesses, and it takes time to heal. You should receive follow-up care. Get your antibodies retested. This will help to see if you are adhering...
  15. cyclinglady
    Good catch. Thanks!
  16. cyclinglady
    Feeling good. Isn’t that really the main goal? My hubby went gluten free 17 years ago per the poor advice of two medical doctors. The diet worked. Does he have celiac disease? We will never know as he refuses to get sick in order to get a diagnosis. Funny thing though, I was diagnosed with celiac disease some 12 years later! Having a diagnosis can b...
  17. cyclinglady
    I have had several TTG and EMA tests and have NEVER had a positive. I only test positive to the DGP IgA test. Weird, but true. There is a reason why there are several celiac tests. Did I mention that some celiacs are seronegative? In that case, only an endoscopy would provide a diagnosis (really the endoscopy is still considered the gold standard in...
  18. cyclinglady
    I can understand your frustration. You can keep your endoscopy appointment (call in to see if any has canceled). You would need to go back on gluten free a full two weeks prior to the scope. It might be worth it, but only you can decide what is worth it. My hubby went gluten-free 17 years ago without a proper diagnosis. It was worth it. His health...
  19. cyclinglady
    Never. But my Both my SILs get them. Stress tends to bring them on according to them. I hope your little ones recover fast. Summer virus can be tough. ?
  20. cyclinglady
    What a supportive wife! I went gluten light when my hubby went gluten free some 17 years ago. I prepared all the family meals and made sure they were gluten free. My daughter and I did consume gluten, but we had strict safety procedures in the home. Oddly enough, I was diagnosed 12 years later. How weird is that? (They do say the longer you live together...
  21. cyclinglady
    I was in my 25th year of marriage when I was diagnosed, so it was easy to toss some things. I would ditch the plastic stuff. You need to be concerned with scratched items. Your stainless is fine. Just clean it well. I tossed my food processor. It was impossible, I thought to clean the blade crevices and I worried when I thought of the endless pie dough...
  22. cyclinglady
    I am sorry that you are ill. It does sound like you had a gluten exposure. ? Celiac disease is like a chameleon. Symptoms wax and wane. They are always changing. Some celiacs do not have any symptoms. Celiac disease is not like an allergy which can be swift in developing symptoms. It is an autoimmune response that happens to be triggered by gluten...
  23. cyclinglady
    Anxiety is common with many celiacs. What other disease must be managed solely by the patient? The gluten free diet has a very steep learning curve, but I can assure you with time, you will master the diet. Soon you will find that your anxiety will diminish as well. When my antibodies are elevated from a glutening or stress (which impacts my other...
  24. cyclinglady
    Your GP/PCP at Kaiser should not have diagnosed you with celiac disease. She should have referred you to a GI for further testing (the rest of the celiac panel and endoscopy). PCP/GPs at Kaiser are not authorized to order the additional celiac tests (I have family members who have Kaiser). Slightly elevated TTG tests can be attributed to other autoimmune...
  25. cyclinglady
    Celiac Disease is under the unmbrella of Hypersensitivity. There are four types. This is from Wikipedia, but it explains it well: https://en.m.wikipedia.org/wiki/Hypersensitivity You can have more than one type of hypersensitivity. Since is is an immune response, if you trigger one , it can lead to triggering another. At least that occurs with...
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