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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    This is where we get our traveler cards. This link is French, but there are many languages: http://www.celiactravel.com/cards/french/
  2. cyclinglady
    Read our Newbie thread located under the “Coping” section of the forum for advice. The forum has several articles about kitchen tips. I can tell you from experience, that going gluten free at home is most likely best. I had a shared household for years (hubby was gluten-free). When I was oddly diagnosed, the whole house went gluten free. Hubby said tha...
  3. cyclinglady
    The ultrasound checks for stones. A HIDA scan will check for functionality. Mine GB was removed because it was not functioning and was infected. Do not rule out GB issues until you have had a HIDA scan. But if you are celiac, a gluten free diet may help your GB to function better. Just my own personal theory.
  4. cyclinglady
    Balsamic vinegar is made from grapes and is gluten free. https://www.cureceliacdisease.org/faq/is-vinegar-safe-for-those-with-celiac-disease/ Did you inform the cruise line in advance when you booked? Did you talk to the Head Waiter (managers)? Did you ask to see the kitchen where allergies are handled? I have traveled on RC without any...
  5. cyclinglady
    Did you try a local celiac group?
  6. cyclinglady
    Give the gluten-free a try. While it might not agree with you now, it might be fine for you after you heal. You just need to experiment. Try keeping a food journal to pinpoint any additional intolerances.
  7. cyclinglady
    Best bet is to travel with a cooler. If you find a gluten-free restaurant (read reviews made by celiacs), all the better! Remember, you can just order a drink and enjoy your traveling companion’s company.
  8. cyclinglady
    I serve those items to my family. I avoid the retried beans because I can not tolerate onions and garlic. I usually make my retried beans from scratch, but use Rosarita’s when camping or when I go out and my family makes tacos. Just served them last night!
  9. cyclinglady
    I would imagine there would be a great interest in this. LA is sadly lacking in dedicated gluten free restaurants. Do your research. Talk to other gluten-free bed and breakfast owners. I stayed at an excellent one in Bath, England. Join a few local celiac groups. Consider advertising. Also, contact Children’s and Kaiser. Celiac family members who h...
  10. cyclinglady
    Lara, I am so sorry that you are going through struggle with breast cancer. Since you can not take supplements, try to get your nutrients from good non-processed foods. Of course, maintaining a gluten-free diet is critical. I take no supplements at all. My doctor has tested me for nutritional deficiencies and I have none. However, I eat a non-processed...
  11. cyclinglady
    Not every celiac has issues with potatoes. I eat most nightshades (peppers are a personal intolerance for me). When celiacs are first diagnosed, they often have developed other food intolerances like lactose intolerance. Most resolve after you have healed (due to leaky gut). Learn more about leaky gut from a leading celiac expert, Dr. Fasano...
  12. cyclinglady
    I would add during the endoscopy, were other biopsies from the stomach (not small intestine) submitted to the pathologist? I have celiac disease and autoimmune gastritis. H.Pylori was ruled out. Diagnosis? My hubby went gluten-free some 17 years ago (he received some poor medical advice and should have been tested for celiac disease). But he is...
  13. cyclinglady
    If they are very young, consider adding the DGP tests. Small children, especially toddlers, often do not test positive to the TTG tests. For my teen, I make sure the entire set of tests are ordered since I only test positive to the DGP IgA (and I am NOT a toddler ?). Shop around for lab prices. Sometimes offering cold hard cash can yield a decent...
  14. cyclinglady
    Well written and I heartily agree! Thanks.
  15. cyclinglady
    I “dragon sit” occasionally for my neighbors. I will keep this in mind. Thanks!
  16. cyclinglady
    I am so sorry that you were glutened! Here is to a speedy recovery!
  17. cyclinglady

    New To Site

    cyclinglady commented on Holly F's blog entry in Holly F's Blog

    I agree Nancy! ?. Our best defense may be educating people.
  18. cyclinglady
    Some members with DH have found that following the Fasano diet for a few months has been the only way to break the DH rash cycle. The diet specifically has you avoid processed foods and frozen veggies are processed. Read more in the DH section.
  19. cyclinglady
    I agree with Knitty Kitty. Ask about EOE. It seems that celiacs can often have other hypersensitivity (Google types) issues outside of autoimmune. I hope he is better soon!
  20. cyclinglady
    And...my follow-up endoscopy after being gluten-free for five years revealed healthy villi. My new GI had the latest and greatest scope. I even got pictures! The pathologist’s report confirmed the endoscopy results.
  21. cyclinglady
    I think you need to wait for the pathologist’s report. My GI used an older scope, so he visually could not see any damage. My biopsies revealed a Marsh Stage IIIB. In the meantime, go gluten free as he suggested. The small intestine is vast. He did not take a lot of biopsies. Damaged areas can be missed.
  22. cyclinglady
    All celiac testing requires you to be on a full gluten diet. It is 8 to 12 weeks prior to the blood test and 2 to 4 weeks prior to an endoscopy. Sounds like your GI is clueless which is alarming. Why isn’t he following the Amercan Gastroenterologist Association’s guidelines for celiac disease testing? Even worse what else is he missing (e.g. cancer)? ...
  23. cyclinglady
    It is possible that the LES could be connected to celiac disease. Then keep at the gluten-free diet and give it time.
  24. cyclinglady
    The LES is probably contributing to your heartburn. ?. If your heartburn was ONLY attributed to celiac disease, it can take weeks. Months to years before it resolves. Everyone heals at a different rate. On week is not enough time. Research LES and figure out if you can apply those suggested remedies (like losing weight, sleeping on a wedge, eating...
  25. cyclinglady
    How long before you see a GI? For example, it has been reported that in some areas of Canada, the wait time for a GI appointment or endoscopy is months and months! In that case the patient can go gluten free and then do a two to four week gluten challenge. A gluten challenge can make you very sick though. The longer you are away from gluten, the worst...
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