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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I believe you. I did some quick research and not much was revealed. In theory, even if grown using wheat (or wheat based) the end product should be fine. If using Xanthan Gum or consuming products that use Xanthan Gum consider purchasing only certified gluten-free as it has been tested to meet gluten-free standards.
  2. cyclinglady
    Try to see if there are any cancellations with the GI. I had the complete celiac panel many times. I only get a positive on the DGP IgA (even in follow-up testing) and I am biopsy confirmed. Why? My doctors do not know. This is one example why there are several celiac blood tests.
  3. cyclinglady
    There is so much still unknown about celiac disease, but a vast majority have the DQ2 and DQ8 genes. However, There are always exceptions to rules. You can do an internal search for member Ravenwoodglass who does not carry the standard gene. Her gene was identified: https://www.ncbi.nlm.nih.gov/pubmed/22342873 I think as time goes on, more genes...
  4. cyclinglady
    I get wanting to avoid a gluten challenge. It seems like remaining completely gluten free is the way to go. It can be done. My hubby is not officially diagnosed, but he was gluten free 12 years prior to my own diagnosis. Who would stay on a diet for almost 20 years if he did not see significant health improvements? (He was woefully mis-guided by his PCP...
  5. cyclinglady
    Xanthan Gum can be “fed” with wheat, but it is fermented and gluten (whether from wheat, corn, etc.) should not be in the final product. However, some people react (allergies or intolerances) like me, so I have to avoid it. https://en.m.wikipedia.org/wiki/Xanthan_gum https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/add...
  6. cyclinglady
    Gemini, Armour thyroid used to be dirt cheap. I used to pay cash as it was cheaper than going through my excellent insurance (back in the 90’s). It has been around for like 100 years. Forrest Pharmacuticals was bought out and the new owners increased the price of all their newly acquired drugs. Pure greed. So, my insurance is footing the increase, ...
  7. cyclinglady
    Maybe you should get your test results. You might not have had the full celiac panel. If my GI had not ordered the entire celiac panel, my diagnosis would have been missed. I am sorry that you are still struggling.
  8. cyclinglady
    IgG what? DGP, AGA, TTG? Assuming it was the standard (and popular screening TTG, a positive would mean that you should have been referred to a GI for an endoscopy and biopsies. Biopsies of the small intestine is still considered the gold standard in diagnosing celiac disease. But you are gluten free and are feeling better. Another sign you probably...
  9. cyclinglady
    Those look like gluten removed beers and are not really gluten free. They are made with barley and wheat and supposedly the “special” brewing process reduces or elimates the gluten below 20 ppm. But the celiac community says these beers are not gluten free enough to be safe for celiacs. Consider selecting a distilled alcohol beverage, wine or a gluten fre...
  10. cyclinglady
    If you can feel it and manipulate it, your GI should check you for a hernia or fatty tumors. Both my dog and my neighbor had fatty benign tumors. Of course cancer should always be ruled out. Now that you know you have celiac disease and not all your symptoms are resolving (and you are adhering to a gluten free diet which repeat blood tests can reveal...
  11. cyclinglady
    I was very surprised. I had no idea I had celiac disease or even suspected it. Testing is critical for a diagnosis. I encourage the full celiac blood panel because I only tested positive to the DGP IgA which is not common. My biopsies revealed intestinal damage.
  12. cyclinglady
    I simply had anemia — no GI issues. Two months after my celiac disease diagnosis, I suffered two vertebrae fractures doing nothing. As a result of undiagnosed celiac disease, I developed osteoporosis. You can see how differently celiac disease can present.
  13. cyclinglady
    @vvicin02— normal protocol is to remain on gluten until all testing is complete, even the endoscopy (so many primary care physicians do not know this). I do not know your health provider (some health plans take up to a year to obtain an endoscopy (e.g. Canada) or your financial issues), but you will need to be back on gluten a good solid two to four w...
  14. cyclinglady
    Ask your GI to check your antibodies. Rule out celiac disease as the culprit. To learn more about celiac disease follow-up care: http://www.cureceliacdisease.org/faq/how-often-should-follow-up-testing-occur/ A repeat endoscopy might be needed.
  15. cyclinglady
    I think you have to wait for test results. Celiac Disease has over two hundred symptoms. Problem is they often overlap with other illnesses. Welcome to the forum.
  16. cyclinglady
    You might meet some at the Gourmet Girls Go Gluten Free on Oracle or at Dedicated on Speedway. Both 100% gluten-free!
  17. cyclinglady
    Thanks! Just a few years back, some GI’s were wondering why their patients were not getting well. Turns out a big chunk of the probiotics they tested were contaminated with gluten. I hope this issue has been resolved. Likeyou, I suggest a gluten free product that has been tested or try adding fermented foods into your diet. This is a blog published i...
  18. cyclinglady
    Put your requests in writing. Be direct and specific and list the reasons why you should get tested for celiac disease. Your doctor should respond. If you do have celiac disease and he refused to screen you despite your asking, he is setting himself up for a lawsuit. Or....just get another doctor.
  19. cyclinglady
    This is so true. A gluten exposure for me triggers increased antibodies for my other autoimmune disorders and sets off my entire immune system. I also have the weirdest allergies which are due to Mast Cell Issues. I get a bug bite and a thousand hives will appear. celiac disease is part of the four types of Hypersensitivity and they often are interlinked...
  20. cyclinglady
    Carbs do not sit well with me either, but that is because I have diabetes and my glucose meter is not happy when I consume too many carbs. But carbs do not impact my celiac disease, gluten does. However, a damaged gut will have trouble processing ANYTHING. Our gut becomes “leaky” due to too much Zonulin leading to other various food intolerances that may...
  21. cyclinglady
    Yeah, that might have been me. Turns out that even going on the Dr. Fasano diet, I was still not well. I thought I was going crazy. I finally went back for an endoscopy after a suspected glutening last year. Turns out that my villi had healed, but that I had Chronic Autoimmune Gastritis (which thankfully is no longer flaring due to time and patience...
  22. cyclinglady
    Really the gluten free diet does not need to be expensive. Beans and rice. How cheap is that? Just buy dried beans and rice (visually sort and wash). Eat for days (add in to your diet: veggies and fruit, eggs (other protein sources), dairy, nuts), and freeze in smaller portions. Corn tortillas freeze well too. Cheap. Look for sales. Want chicken,...
  23. cyclinglady
    It sounds like you have improved significantly and are on the right track. Anxiety and depression are common issues with celiac disease, so you are not alone! Please give yourself more time. It took me over a year to finally feel well. I felt better when I went grain free when I was diagnosed with diabetes after a year into my celiac disease diagnosis...
  24. cyclinglady
    I was shocked when I got my diagnosis. Anemia was my main symptom too. My GI suggested testing for celiac disease when I went for a routine colonoscopy (yep, over 50 years old). I had no GI issues. Two months after my diagnosis, I fractured my back (2 vertebrae) doing nothing! Turns out celiac disease caused far more problems than I realized. So, make...
  25. cyclinglady
    I agree. Trying the gluten free diet can not hurt you. Give it a few months though! It takes time to heal.
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