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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    If you have celiac disease, it can takes weeks to months to over a year for your antibodies to stop attacking you after starting the gluten free diet. Celiac disease is not an allergy. You said you had one positive on the celiac panel. I can tell you I had just one positive and my biopsies (via an endoscopy) revealed some pretty severe damage. I...
  2. cyclinglady
    I get your passion, Ennis. I kind of feel the same way about sugar which actually has a measurable impact on me (glucose meter). It is addictive. The evidence that it may be the cause of our near epidemic levels of diabetes, obesity and heart disease is compelling. What I have learned is that there is no one perfect diet for all. Dairy is back...
  3. cyclinglady
    I use President Feta which I purchase at Costco, but they sell it at other smaller grocery stores in smaller containers. Most of my cheese purchases are made at Costco because it cheaper and we consume a lot of it. I have never had any cheese that has had gluten in it. Baby Bells, mozzarella sticks, etc. are good choices for travel. They fit in my little...
  4. cyclinglady
    I can not answer most of your questions since I reside in the US. However, here in the US you are the customer and are entitled to copies of your medical records. Not sure if everyone on the NHS is electronically connected, but if not, bring your records with you to save time.
  5. cyclinglady
    There are over 200 symptoms attributed to celiac disease. The problem is that they often overlap with other illnesses. The only way to know for sure is to get tested after completing a gluten challenge (if you are gluten free already). Know that some celiacs are seronegative. It is on of the many reasons an endoscopy is required to complete a celiac disease...
  6. cyclinglady
    Did you get a complete celiac blood panel? It includes the TTG, EMA and DGP (IgA and IgG versions). You only need one of those tests to be positive. You should be also tested for an IgA deficiency which is common 8nceliacs and thetest is also used as a control test. Ask for the lab tests results. It is your right. Know that if negative some celiacs...
  7. cyclinglady
    I am not sure I understood. Are you already gluten free? All celiac testing requires you to be on a gluten diet or the tests will be invalid.
  8. cyclinglady
    I can attest to the dirtiness of a public pool. I got a cut on my thumb. I swam at the pool. Within a day or so, my cut was infected. I went to urgent care because the throbbing kept me awake at night and you could see the infection going up my hand and wrist. It was a Saturday and it took forever to see a doctor. There were five kids who came in with...
  9. cyclinglady
    I have been in Armour Thyroid for over 20 years and have done well. It makes up for the loss of thyroid function, but it has not necessarily lowered my thyroid antibodies. They were still elevated last year. Down from 2,000 to 300. I think they went up when I has the flu, a tooth infection and possible glutening (those antibodies were off the charts too...
  10. cyclinglady
    Thanks for keeping us posted. Your comments will help others. I am glad that your doctor is being so thorough.
  11. cyclinglady
    Welcome! Celiac disease can teach you (what am I saying....WILL) to be patient. Take time to heal. Being pregnant and then caring for a baby is exhausting and that happens to moms who are fit and healthy! A few months seems like forever, but it will pass by quickly. Listen to your doctors. Recovery can take months to a year or so. Why...
  12. cyclinglady
    @SheenaM What? How were you diagnosed with anemia? It is a standard blood test given to most when they see their doctors. Maybe you did not get copies of the lab results. You should ask for them. It is your right! Anemia is very serious. You could have a heart attack. You might need a blood transfusion. Please follow-up with your doctor. ...
  13. cyclinglady
    Do you have celiac disease? It can go into remission on a gluten free diet, but it never goes away. Once a celiac, always a celiac. If you have been gluten free for 10 years and have consumed some gluten, chances are, your reaction could be minor. It takes time for antibodies to start building again. Consume gluten daily and chances are you will get...
  14. cyclinglady
    It can take months or a year or longer depending on your intestinal damage, how fast you learn the gluten free diet and avoid making mistakes and if you have collateral dam get like osteoporosis or anemia. Nerve damage can take much longer to heal (or it might not). What did your GI see during your endoscopy? Did he comment about your throat as...
  15. cyclinglady
    If you think you might have celiac disease and are still consuming gluten daily, ask your doctor for a celiac blood test. If you are already gluten free and you are finding that corn is also bothering you, continue with the Gluten Free diet and avoid corn (corn gluten does not trigger celiac disease, gluten from wheat, rye or barley does). You can...
  16. cyclinglady
    Some 30% of the population carries the genes that could develop into celiac disease. Only a very few actually do. The genetic test is usually used to rule out celiac disease. If you have Ulcerative Colitis, your GI should or can screen you for celiac disease.
  17. cyclinglady
    Smart move on moving forward with the GI visit. You have had strong positives on the celiac panel. Your daughter? I did not have a strong positive (weak for me) yet I had moderate to severe intestinal damage. The celiac blood tests are for screening. There was some thought that they could skip endoscopies for diagnostic purposes, but researchers/experts...
  18. cyclinglady
    Trying the diet for two weeks may not be long enough for your daughter to see results (reduction in symptoms). It certainly is not enough time for measured antibodies to be reduced that can take six months to a year! Some celiacs have NO symptoms. They are called silent celiacs. I think you should consider working with a celiac -savvy GI or one...
  19. cyclinglady
    Welcome! You can drink soda like Pepsi or Coke products. There is no gluten. However, you might want to rethink your soda habit. Sodas are hard for your liver to process. It processes it exactly like alcohol. There has been a huge increase in fatty liver. I have family members who are athletic, slender and they were diagnosed with fatty liver...
  20. cyclinglady
    Okay, in theory, a celiac should heal within weeks of consuming a gluten free diet. The villi do have that capability which is well documented. But in reality, most of us can take up to a year to heal or even longer? Why? The gluten-free diet has a steep learning curve. Mistakes are made. You have been a celiac for five years, but you are just starting...
  21. cyclinglady
    There are several gluten free tour groups around. Just google. But do not be afraid to travel. Just learn how to travel safely. You may not find restaurants that can accommodate you safely all the time, but there is always a grocery store and access to a microwave. We camp, travel in an RV or our car (ice chest), cruises, and internationally. It...
  22. cyclinglady
    First, it costs more to train employees in how to handle gluten free pizza products, and second keeping gluten-free dough around that might get tossed it it is not used is expensive. But I am not even going to get into the safety of eating gluten-free pizza from Dominos. Most celiacs avoid Dominos like the plague. The risk for cross contact is very high...
  23. cyclinglady
    Search out SquirmingItch’s posts often found in the DH section. She has found, like many others with DH, that a gluten-free diet with a lot less processed foods has helped. In fact, she went on the Fasano diet which was designed for those celiac who are non-responsive to the normal gluten-free diet. Maybe 20 ppm might be too much for some celiacs, some c...
  24. cyclinglady
    Wow! My gym pool is indoors and they still use chlorine to keep their pool clean (like our school pool). I never though a “salt” pool would aggravate DH, but why not?
  25. cyclinglady
    I do not have DH, but members report that they must be super strict with the gluten-free diet. Most have determined they must avoid even most processed gluten-free foods, as 20 ppm seems to be too much for them. Read through the DH section for tips for triggering DH.
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