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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Welcome! Food intolerances are common in celiacs (lactose, soy, corn, just about anything!). They are often temporary, but some are permanent. What kind of spices? You need to be careful with spice blends as some may contain gluten. I can say that I have garlic, onion and hot pepper intolerances which means no salsa or marinara for me! Iron...
  2. cyclinglady
    I am sorry that your baby is ill! Your daughter does have a positive on the DGP IgA (like me). It often catches very young celiacs or elderly ones (like me). Her Immunoglobulin A is high too and that can be elevated with autoimmune disorders. I would consult with the PED GI. Talk over your concerns about the endoscopy. He or she may decide to...
  3. cyclinglady
    Yes. Celiac disease is not an allergy. It is an autoimmune (AI) disorder like lupus or rheumatoid arthritis. The trigger for celiac disease is known (gluten), unlike other AI disorders. Once it is triggered, antibodies ramp up and start attacking the small intestine and can get into the bloodstream and damage other areas of the body. It can take hours...
  4. cyclinglady
    ?
  5. cyclinglady
    Thanks for the clarification! I am glad it worked out for you both.
  6. cyclinglady
    Looks like you should be referrred to a Gastroenterologist for an endoscopy to obtain intestinal biopsies to confirm a celiac diagnosis. Keep eating gluten until all testing is done.
  7. cyclinglady
    It is frustrating determining if you have been glutened or not. Celiac disease is like a chameleon. Symptoms can and do change. I imagine that NCGS is comparable. Consider a sulfite intolerance. Whatever it is, it appears that vinegar is not for you! I am glad that you figured it out. ?
  8. cyclinglady
    Distilled white vinegar is gluten free: https://www.beyondceliac.org/gluten-free-diet/is-it-gluten-free/vinegar/ Those supplements to “break down” gluten may give you piece of mind, but they do not work for celiacs according to top celiac disease experts. You can take them, as I think the mind is a pretty powerful healer. But....your hug...
  9. cyclinglady
    I would let it go, unless they advertise that they offer gluten free options safe for celiacs. I can not imagine that I would trust any catering company who has not been specifically trained and certified in handling allergy meals. I would have insisted on touring their kitchen just to be sure. Even then, I would be wary as I would want to avoid getting...
  10. cyclinglady
    Have you seen this small study out of UC San Diego using the AIP diet (which is gluten free). They had an amazing remission rate (over 70%). Patients remained on their medications (except 1), so it was not all diet. It is definitely worth trying. Just avoiding non-processed foods alone has got to be healthier! https://www.ncbi.nlm.nih.gov/pmc...
  11. cyclinglady
    Well, not to frighten you, but I just presented with anemia (no GI issues). My anemia was so bad, my doctors kept asking me to have some transfusions, but I refused. Two months after my diagnosis, I fractured two vertebrae doing NOTHING! I have osteoporosis as a result of celiac disease. Due to my age, building bone is pretty impossible. I did take...
  12. cyclinglady
    I learned something today! You are right that most coaches are not trained to train young women. Even jumping and landing is different for a woman’s body than a man’s. This book discusses this very subject and is worth reading! Here is an article about the book found in The NY Times: https://www.nytimes.com/2008/08/17/books/review/Mor...
  13. cyclinglady
    I would advise taking the year off. Hard to do when you are an athlete, but to keep up competitively is hard. I really dislike that kids are doing their sport year round. I am from the old school of cross training. I think there is less chance of repetitive injuries. Has she has follow-up testing for deficiencies, anemia, bones? Osteopenia or...
  14. cyclinglady
    Listen to the GI. Do not go gluten free yet. Why? What if they mess up on the biopsies? You should wait until you have the blood tests back and the pathologist’s report in hand. Believe me, Mistakes can be made (losing things, etc.). Something caused that elevation. If it turns out not to be gluten, then what?
  15. cyclinglady
    I am sorry that your test was inconclusive. Celiac disease can be so maddening! ?. But by going gluten free and retesting, you might be able to solidify your diagnosis and FEEL better.
  16. cyclinglady
    By all means have dairy! It is okay for the gluten free diet. But it might negate the Autoimmune Protocol (AIP) die that might have been trying to adhere to. That most likely does not allow dairy. It probably has more to do with the milk proteins (casein) that lactose (milk sugars). The proteins are what most people who are allergic to dairy react to...
  17. cyclinglady
    The anti-gliadin test is older and is no longer in use and was replaced by the Anti-Deaminated gliadin peptides test. You should verify which test was given. Then check the pathologist’s report to see how many samples were takenand from what locations. Doctors should take more than four as damage can be sparse. The small intestine is the size of a tennis c...
  18. cyclinglady
    Okay. Can you clarify that the Anti-Gliadin test had the word Deaminated in the test wording?
  19. cyclinglady
    My doctor did not “see” anything either on my first endoscopy. His scope was not the “latest and greatest”. I had to wait for the pathologist’s report as damage can be microscopic (those villi are tiny).
  20. cyclinglady
    You do not want to hear this, but be patient! So hard, I know! It takes time to heal for a variety of reasons. First, how bad was your intestinal damage? Second, did you develop any additional food intolerances (often these are just temporary). Third, you might have some collateral damage beyond the gut (bone and nerve damage, anemia, etc.). Fourth,...
  21. cyclinglady
    Why skip biopsy? Just having one positive (and not a strong positive) on the celiac panel does not rule out celiac disease. A endoscopy can also identify concurrent issues, set a benchmark for future testing and make dietary compliance a bit easier (no doubt). But I understand if there are financial constraints or delays getting to a GI. I wish...
  22. cyclinglady
    Keep eating gluten until all testing is complete!!!!!
  23. cyclinglady
    Get tested! It is an easy blood test. Learn more: http://www.cureceliacdisease.org/screening/ Important! Keep eating gluten or your test results will be negative.
  24. cyclinglady
    Consider getting tested. There are over 200 symptoms that can overlap with other illnesses, so you can not tell by symptoms alone. Here are the tests: http://www.cureceliacdisease.org/screening/
  25. cyclinglady
    Celiac disease can develop at anytime. TD1 patients have a 10% chance of developing celiac disease. This child should be retested. My own kid gets tested every few years. I would do it sooner if she had symptoms (and some celiacs are symptom free!) Your friend should request a complete celiac panel and do it nicely in writing. Doctors just hate...
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