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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I would ask for the full celiac panel (TTG, DGP and EMA) again since you have been consuming gluten since January. First degree relatives should be retested every two to three years or sooner if symptoms warrant. Note that some celiacs are seronegative. In that case, an intestinal biopsy is needed. http://www.cureceliacdisease.org/screening/ ...
  2. cyclinglady
    From my research IgA deficiency is defined at a number close to zero. Your result is fine for celiac disease testing which is mostly used as a control test for the IgA tests (DGP, TTG). Who knows why you tested the way you did? If you find out, please share. I test positive to only the DGP IgA (even in follow-up testing) and I had a Marsh Stage IIIB...
  3. cyclinglady
    The OP just had an endoscopy and biopsies. He probably saw the endoscopy report on his patient portal and hasn’t had the chance of seeing his doctor yet. Consider reading the entire thread before jumping to conclusions. ?
  4. cyclinglady
    What? How can you (most likely not a doctor) make that call? We try to be supportive on this forum which is dedicated to celiac disease, Non-Celiac Gluten Sensitivity or other autoimmune issues where a gluten free diet might help. What brings you back? You last posted in 2013. Are you experiencing current issues that may be attributed to a gluten...
  5. cyclinglady
    You can not say that! Some celiacs are seronegative. https://www.bmj.com/rapid-response/2011/10/30/seronegative-coeliac-disease-clinical-challenge https://www.hindawi.com/journals/grp/2012/637187/ Not only that, we know little about this person and other tests she may have had. I have never had a positive EMA or TTG and I am biopsy confirmed...
  6. cyclinglady
    The endoscopy can be completely normal. It is just a visual and he could have an older scope. Mine was normal. You will have to wait for the pathologist’s report on the biopsies. Unfortunately, the GI only took two biopsies which is not what the American GI Association recommends when testing for celiac disease as damage can be patchy. I guess he i...
  7. cyclinglady
    Google it.
  8. cyclinglady
    Maybe your restaurant owners might consider this model for their sandwich shop. It would be a win-win for everyone. An increased bottom line for the restaurant and another safe place to eat for celiacs. http://www.goodgrubsubs.com/gluten-free-atlanta.html We eat there! So nice to order and see that your food is assembled safely!
  9. cyclinglady
    While arsenic has been a concern in the celiac community because it is our “go to” grain, I think you just need to keep moderation in mind. I still serve rice to my family (I am mostly grain free myself). I choose rice grown in California (less arsenic) and change up lunches to not include sandwiches every single day. Ennis had good suggestions. I ...
  10. cyclinglady
    Welcome to the forum. Expect good days and bad days as you heal. Why? It takes time to master the gluten free diet and time to heal. Here are some helpful tips that might help answer some of your questions: https://www.celiac.com/forums/topic/91878-newbie-info-101/
  11. cyclinglady
    Great! Research all that you can about the gluten free diet. Personally, I would avoid oats, going out to eat, and processed foods (as much as possible) until you start to see your symptoms start to resolve. Keep a food journal as you might have permanent or temporary intolerances to other foods (e.g. lactose, corn or soy are common offenders).
  12. cyclinglady
    Have you ready the Newbie 101 thread located at the top of the “Coping” section of the forum? Learning the gluten free diet takes time. It is easy and normal to make mistakes in the early months of recovery. Do not eat oats (some celiacs are oat sensitive), do not risk eating out, and avoid processed foods (even certified gluten free ones) as much as ...
  13. cyclinglady
    Yes, it is a positive! The next step is an endoscopy to obtain intestinal biopsies. This will help solidify your diagnosis, set a benchmark for follow-testing, rule out other possible concurrent issues (e.g. H.Pylori, cancer, SIBO), and perhaps help you to adhere to a gluten free diet, if the biopsy is positive. I can tell you that I tested positive to...
  14. cyclinglady
    I honestly do not know how often false positives occur. It was good that despite your low result, your GI moved forward with an endoscopy. It is so hard waiting for results! Keep us posted.
  15. cyclinglady
    I dunno. Anyone ever work in a fast food restaurant as a teen? Back in my day, there was no training in regards to allergies. You just kept foods appropriately hot or cold to prevent food poisoning (and try to keep the roaches out). I worked with some pretty dumb kids who did dumb stuff. Unless kids have changed, I would be cautious when eating...
  16. cyclinglady
    Hi! Was your doctor planning on obtaining biopsies from the small intestine? Was he going to biopsy the stomach to (help rule out H. Pylori, etc. Your results are inconclusive, but I can tell you that I never had a positive (even on follow-up testing) on the TTG tests. I only test positive to the DGP IgA. Did you know that some celiacs are seronegative...
  17. cyclinglady
    Vivian, Any primary care physician can order a celiac blood panel. If yours will not, time to find a new doctor! UCLA and UC San Diego both have celiac centers. https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/screening/
  18. cyclinglady
    Here is an updated candy list for 2018: https://www.verywellfit.com/gluten-free-candy-list-562806 Reese’s should be gluten free except for mini’s or candy for holidays like Valentine’s Day. Do you have DH (celiac rash)? If so, 20 parts per million may be too much for you. Often DH suffers must adhere to a really strict Gluten Free diet....
  19. cyclinglady
    I like Dr. Fasano. His lectures are fun and informative: https://m.youtube.com/watch?v=VvfTV57iPUY Here are some books. You can probably find some at the library. https://www.amazon.com/gp/product/B00J7Z1J5E/ref=as_at/?imprToken=Gz2h82BZnhfcMacKGIgrCw&slotNum=17&ie=UTF8&camp=1789&creative=390957&creativeASIN=B00J7Z1J5E...
  20. cyclinglady
    Yep, you have several positives! You should be referred to a Gastroenterologist for intestinal biopsies. This will confirm a celiac diagnosis, set a benchmark measurement for healing, rule out any co-existing problems, and help your child adhere to a gluten free diet. Keep on eating gluten until all testing is complete and you have the pathologist...
  21. cyclinglady
    Get tested for celiac disease first before gluten free!
  22. cyclinglady
    If you suspect a gluten issue, get tested for celiac disease BEFORE going gluten free! Learn more: https://www.beyondceliac.org/celiac-disease/get-tested/
  23. cyclinglady
    Autoimmune Thyroiditis is it’s own separate autoimmune disorder. It can be somewhat treated by replacing the hormone that is diminished or destroyed by thyroid antibodies (prescription). It is the cause of about 80% of thyroid disorders. You should ask your doctor to screen you for thyroid antibodies. Hashimoto’s Thyroiditis is commonly linked to cel...
  24. cyclinglady
    It sounds like you are both heading in the right direction. I am so happy and relieved for you both! ? When I was diagnosed with Chronic Autoimmune Gastritis a few months ago, my GI just recommended just continuing with the gluten-free diet. We have had some serious conversations in the past (Autoimmune runs so strong in my family) about my desire...
  25. cyclinglady
    Do not be deceived. Going gluten free is not going to make you glamorous. ? Sharon Stone has had her issues like anyone else. She suffered a brain aneurysm a few years ago and it took her two years to recover. She has celiac disease, and from my quick google search, she may have Type 1 diabetes as well. I applaude her ability to continue...
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