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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I am the Queen of fainting. I have been experiencing it since I was a little kid. I have had a few evaluations, but nothing has come up. Buying a house? That is SO stressful on top of a new celiac disease diagnosis. Things will improve! I promise. ?
  2. cyclinglady
    When my face swells, my tongue and eyes swell too. So much that I can not speak well or even see. Does this happen to you?
  3. cyclinglady
    I agree with Karen (she knows her stuff), but why even buy processed junk? Go for some traditional cream and milk! It is REAL!
  4. cyclinglady
    I suggest getting tested for celiac disease if you suspect gluten could be an issue and have your doctor also test for a wheat allergy. My facial swelling is due to allergic reactions and not celiac disease.
  5. cyclinglady
    Why not just play it safe and eat fermented foods? Learn more about the efficacy of commercially produced probiotics (this is one of the times I think the government is correct): https://nccih.nih.gov/health/probiotics/introduction.htm http://www.berkeleywellness.com/supplements/other-supplements/article/probiotics-pros-and-cons
  6. cyclinglady
    My family is still avoiding mechanically sorted “gluten free” oats and will continue to only purchase purity gluten-free oats (certified and grown in dedicated fields) until a safe testing method is in place (manufacturers, part of a stakeholder panel, are working on this). General Mills pulled gluten-free Cherrios from the Canadian market. They sell Che...
  7. cyclinglady
    Welcome! Did you get a celiac blood test prior to your procedure? If so, and the celiac disease antibodies test was positive, you may just be starting to develop celiac disease. If you have not had antibodies testing, then you may have something else.
  8. cyclinglady
    Try the App/website, “Find Me Gluten Free”. Look for reviews written by celiacs. Have fun!
  9. cyclinglady
    It is great that you are working with a GI. As a parent, I know that it I s hard to see your child in pain. Keep all records. I can not stress the importance of this as you may need a second opinion, if you do not get results. An allergy to wheat is different from celiac disease which is an autoimmune disorder that has a known trigger — gluten (...
  10. cyclinglady
    I am not a doctor, but I think it means that you could very well have celiac disease because you had a positive on one of the blood tests and you had an abnormal biopsy. You could just be developing villi damage. Trialing the gluten free diet will help your doctor solidly your diagnosis. This article discusses your situation. https://www.ncbi...
  11. cyclinglady
    I agree with Ennis. I am a low carb high fat fan. It is great for those with insulin resistance (diabetes or pre-diabetes). Think about it. Celiac disease can often give you an edge on weight. After healing, you are at risk for weight gain just like everyone else who does not have celiac disease. Once the pounds are gained, it is hard to remove...
  12. cyclinglady
    I was diagnosed five years ago. I was glutened somehow last year which set off a cascade of new issues like autoimmune hives. Six months later the hives resolved. My stomach was still bothering me. My GI offered a repeat endoscopy, but I refused. Instead, I did the Fasano strict gluten-free diet. My stomach was still bothering me. Finally, I had the...
  13. cyclinglady
    Four months is still a short amount of time. I have suffered from insomnia. Like you, I can fall asleep, but usually wake at 4:00. I attribute my insomnia to hormonal shifts as I experience hot flashes. Let’s hope others who have experienced insomnia will chime in.
  14. cyclinglady
    How long ago were you diagnosed? Healing can take months to up to a year based on forum member comments.
  15. cyclinglady
    While I was diagnosed five years ago with celiac disease, my hubby went gluten free 17 years ago per the poor advice from 2 medical doctors (poor meaning not getting tested). The diet worked. He refuses to do a challenge. Why do you want to get tested now when it is obvious that gluten is making you sick?
  16. cyclinglady
    If you suspect celiac disease, try finding a doctor who knows about DH and how to properly biopsy it. Read through our DH sections for advice.
  17. cyclinglady
    I have to agree with Apprehensive Engineer. A gluten eating mother can safely nurse her baby who may have celiac disease: http://www.cureceliacdisease.org/faq/is-gluten-found-in-breast-milk-2/ https://www.glutenfreedietitian.com/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ there are plenty more sites that back up this claim...
  18. cyclinglady
    I am also glad, but I would definitely report your PCP. As a medical doctor, he should be protecting the best interests of the children. It is well known that celiac disease is genetic. There is no excuse for it in my personal opinion.
  19. cyclinglady
    I am sorry that you got sick on that particular ship. I would recommend posting your comments a forum like Cruise Critics because I bet RC employees are checking out comments there. I also suggest sending a letter and not an email to the CEO. Every cruise has risks for celiacs. We cruise with our extended family, but we prefer to travel on our own...
  20. cyclinglady
    If just red wine causes you grief, it is most likely the tannins that are the cause and not sulfites.
  21. cyclinglady
    All the flours should be certified gluten free. Studies have shown that many naturally gluten free flours can be cross contaminated at the mill. The tart pan has many crevices. I would not use one that you have used before with gluten. I sold all my old tart pans at a garage sale. Nice to be helpful, but I would never eat anything that was not...
  22. cyclinglady
    It sounds like you really want to have a formal diagnosis. If so, stay the course, as you can not tell by symptoms alone as they often overlap with so many illnesses. How do you know you have Hashimoto’s?
  23. cyclinglady
    At this point, consider just going gluten free and be done with it. While I am formally diagnosed, my hubby is not. He has been gluten free for 17 years (12 years earlier than me). The goal is to feel well, isn’t it?
  24. cyclinglady
    A new study was released this week. Although not a true scientific study, the results are promising for Type 1 diabetics and in my personal opinion, Type 2, as well. I am sharing this because Type 1 has a strong affiliation with celiac disease. Of course, more studies are needed. Unfortunately, as you all know, food treatment for an illness is not well...
  25. cyclinglady
    I have test positive to ONLY the DGP IgA even in follow-up testing many times yet I had moderate to sever intestinal damage. Ask the NP to run the entire panel or find a lab that can run the tests for you. If that is not possible, find another MD. You are the paying customer!
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