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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Have you had follow-up testing for celiac disease? All your current issues may not be celiac-related at all! For example, I was having stomach issues that persisted after a glutening at the beginning of last year. I was driving my self crazy thinking I was getting gluten somehow into my diet. My celiac antibodies were elevated as confirmed by my GI....
  2. cyclinglady
    I think Ravenwoodglass meant a GI and not an Endocrinologist! But her advice is spot on. It is critical for you to keep consuming gluten until that endoscopy! Now your blood tests. Yes, you have a positive! It only takes one positive. Why so many celiac tests? Because they are not perfect. If they just offered one type, they might miss some celiacs...
  3. cyclinglady
    What about this easy Jello cheesecake that my mom and I have been making since the 1960s? It is always a bit hit and perfect for Easter. Best yet, it can be made the day before. One thing done on your checklist! https://www.justapinch.com/recipes/dessert/cake/no-bake-light-and-fluffy-cheesecake.html There are other comparable recipes out there...
  4. cyclinglady
    I forgot to ask when you last had your antibodies checked. So, it is good that you are seeing your GI. A year ago, I had an infected tooth from a root canal gone bad, then within the same month I got the flu and a cold. It took three rounds of antibiotics to knock out the tooth infection (plus extraction). I felt as it I had been glutened somehow...
  5. cyclinglady
    I suppose it could be related to celiac disease if you have had diarrhea or vomiting. The cause could be many things like exercising hard and drinking too much water. It happened to a cycling buddy. She now drinks water with added electrolytes. What did the doctors at the hospital think?
  6. cyclinglady
    Do you know that some 10% of celiacs have negative blood tests? Do you know that doctors do not always order the full celiac panel? You might have had only the TTG which catches most celiacs, but not me. I test positive to only the DGP IgA. Did you know that some celiacs are asymptomatic? When I was luckily diagnosed, I only had anemia. I had no gut...
  7. cyclinglady
    I also just had a recent repeat endoscopy after five years. The “latest and greatest” camera revealed a healed small intestine (pathologist’s report also supported this fact). This time I was experiencing some issues (had no GI issues at the time of my diagnosis), but it turned out to be chronic autoimmune gastritis. It is so nice to have confirmation that ...
  8. cyclinglady
    How was celiac disease ruled out? What made them think gluten intolerance? Did you have an endoscopy? Celiac disease is systemic and can affect many organs outside of the GI tract. I would suggest a second opinion to rule out celiac disease because a gluten intolerant diagnosis does not seem to be enough of a diagnosis for you to adhere to strict...
  9. cyclinglady
    If you just dropped the bread in and took it right out, unplug the toaster and wipe the metals racks with a clean dishcloth slightly dampened and then run the empty toaster a few times. I am sure there was not enough gluten residue to cause harm as the bread was probably still soft and pliable and not crumbly. Keep that toaster in the cupboard (or...
  10. cyclinglady
    Lipstick: Gabriel, certified gluten-free. https://gabrielcosmeticsinc.com/ The rest of my makeup, screen and lotions? I just read the ingredients and to avoid gluten.
  11. cyclinglady
    My link was not about celiac disease. Toward the middle of the article, it is directed at physicians and includes tests to order that are necessary to insuring good follow-up care, if you are not able to find a celiac-savvy GI or attend a major celiac center. Within the article there is a link to locate physicians, dieticians, etc. who are knowledgeable...
  12. cyclinglady
    @lacey It sounds like your symptoms are not “allergy” (mast cell) related, since antihistamines are not helping. The doctor who performed the allergy test, what did he/she recommend? You are correct that some recent studies have show that first generation antihistamines (e.g.Benedryl) that cross the blood brain barrier have been linked to dementia, bu...
  13. cyclinglady
    Do antihistamines help?
  14. cyclinglady
    I use Maybelline and I have not been glutened by it (even if it has gluten, you would have to have a lot fall into your eyes and swallowed for a Gluten reaction, so highly unlikely that you are getting glutened). Your symptoms sound like an allergy. Let’s face it, there are some pretty weird ingredients that I can not even pronounce in Cosmetics. Have y...
  15. cyclinglady
    Because I am clueless as to how and where this plant is grown, who is handling it, etc. I guess I have this notion that most people processing it might be a little too R E L A X E D, if you get my drift! ?
  16. cyclinglady
    Bueno Dias! Your English is much better than my Espanol! I took a look at the cake mix on the Walmart Website. It looks to be gluten free, but websites are not always current, so best to look at the actual package/box. Duncan Hines is a trusted company. The post you responded to is from 2006, long before the US FDA gluten free rules were made...
  17. cyclinglady
    Keep us posted! I hope it works.
  18. cyclinglady
    Welcome Vicki! I am glad you found us! We might not ever get to meet in person, but I think you will find us to be a supportive group. You have been through a lot! Is there a specific question that we can address? Socializing can be difficult, but not impossible. I usually order a drink when I go out. I always bring some food along...
  19. cyclinglady
    @GFinDC— Believe me, I am seriously contemplating getting some marijuana as it is legal here in California. I worry about gluten cross contamination. That could be remedied though if I grow some plants in my veggie garden. Do you think they carry plants or seed at Lowe’s or Home Depot? ?. Then there is the potential allergic side effects for me....
  20. cyclinglady
    I can not help you with a referral, but I was in the same boat as you. For a while, I worked with our family physician, who monitored my progress based on information put out by celiac centers. Like this: https://celiac.org/celiac-disease/understanding-celiac-disease-2/treating-celiac-disease/ He was more than willing to order any tests...
  21. cyclinglady
    I am glad it worked out!
  22. cyclinglady
    I am sorry that you have Osteoporosis too! I am sure that osteoporosis and menopause contributed to my bone graft failure. I do try to chew in that area. Without applying force the bone can continue to recede. My retainer helps with the chewing while protecting the toothless area. Exercising your jaw is just as critical as exercising the rest of your...
  23. cyclinglady
    Welcome! Supposedly, kids heal faster, but no one knows for sure. Most members can take weeks, months or even years to feel better. Why? Often there is collateral damage beyond the GI tract (e.g. osteoporosis, joint issues, or neuropathy). Then there is the gluten free diet which has a steep learning curve. Mistakes are made and that can set a...
  24. cyclinglady
    I do not think you can change this doctor. Confronting him would serve no purpose. You can report him to the medical board. You can give an honest review on Yelp, etc. Be nice and polite so your comments come across as valid. I think my first GI caught my diagnosis because he attended a recent conference (never asked as I never went back due...
  25. cyclinglady
    Worse yet is Stephen Johnson Syndrome where medications like Tylenol can cause your skin to blister off. Horrifying! https://rarediseases.info.nih.gov/diseases/7700/stevens-johnson-syndrome I do not take any OTC medications. None. I just tough it out. That is because I usually react (anaphylactic) to medications like acetaminophen, NSAIDs...
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