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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Have you had follow-up testing to determine wither your celiac disease is still active?
  2. cyclinglady
    No. Why? Because I have some different intolerances. Like I do not eat oats. I can not eat things like nuts, garlic, onions or Xanthan gum. Plus, need to watch my carb intake. It affects my blood sugar and leads to weight gain. But other members might think differently!
  3. cyclinglady
    Here is my advice. Get the medical records. Print off or save every lab report you get online. It can be so useful in the future. I have all my medical records going back 25 years, for me and my family. When I change doctors, I bring in a family health history (tree diagram). Every doctor loves it and so do my sister-in-laws! I also have a single...
  4. cyclinglady
    Yikes! Get another doctor, if she refuses to order a complete panel. Maybe get a new one anyway. What else could this doctor be missing? There is no excuse for a doctor not to google the tests. Shameful! Only a few celiacs are actually Immunoglobulin A (IgA) deficient. They use the test to validate the “IgA” Type celiac tests (it is called a control tes...
  5. cyclinglady
    Hi! I am sorry that you think you have another autoimmune disease. 😥 I get it. I was diagnosed with my 3rd one two years ago and trying to avoid a 4th. RA maybe in my future too as my mother was just diagnosed and my grandmother had it too. Anyway, you could try the Autoimmune Protocol Diet (Paleo). It might help. A tiny study done at Sc...
  6. cyclinglady
    Welcome! No one knows for sure exactly what triggers celiac disease. Doctors suspect stress or an infection (virus or bacteria), but nothing has been proven. For a while it was thought that first-degree relatives had a 1 in 10 chance of developing celiac disease (if they have the genes to do so). Recently, Mayo Clinic published a study...
  7. cyclinglady
    Do a search on the US government website: https://pillbox.nlm.nih.gov/results.html?medicine_name=adderall&imprint=&shape=&color=&inactive_ingredients=&repackaged=false&page=1&items_per_page=20 Look for the inactive ingredients. If there is no gluten is is safe. Drug companies, for whatever weird reason (extensive...
  8. cyclinglady
    Welcome. Maybe you and your mother are not as actually gluten free as you think. Depending on where you live, there can be a lot of cross contamination with grains. Gluten can be hidden in many processed foods too. Consider trialing the Fasano diet or the Autoimmune Protocol diet. Keep a food journal to see what other foods might be causing...
  9. cyclinglady
    I have celiac disease, so I am not sure I would be much help. It sounds like the gluten-free diet is helping. Are you working with a doctor who diagnosed you with NCGS? Is he or she proving follow-up care? Either look to your diet (like do you eat out where you might still be getting gluten into your diet) or see your doctor. You might have...
  10. cyclinglady
    Stool tests are not medically accepted for diagnosing celiac disease. There is a lot of controversy over this, but only you can decide what is best for you. https://www.verywellhealth.com/enterolab-testing-may-identify-gluten-sensitivity-562956 To learn more about celiac disease and testing go here: https://www.beyondceliac.org/celiac...
  11. cyclinglady
    Wow! You are doing great. Just eight months in too. Be patient. Things will continue to improve. Most members report taking a year or two to really feel 100% better. Congratulations on your new job. 😊
  12. cyclinglady
    Thanks! I assume California? I am from OC, but my kid is 19. We finally gave aware all that sidewalk chalk. Hope someone responds or try a local celiac group (there is one in OC).
  13. cyclinglady
    When is your endoscopy? Most doctors do not advise going gluten free until after the endoscopy because ALL celiac disease testing requires you to be on it. Make sure you are on a full gluten diet two weeks prior to the endoscopy. Unless you were or are on a vegan diet and were not supplementing B-12 (which is only on animal products naturally...
  14. cyclinglady
    Hi! Everyone’s normal is different. For me the reaction can last for weeks. Besides bloating, it hurts to digest anything — whether it is gluten free or not. So, I consume soups and stews for breakfast, lunch and dinner. I can become lactose intolerant again and that really makes me 😡. Fatigue? Yes, my body is on the attack. No wonder there ...
  15. cyclinglady
    Eat. Your body is telling you to eat for a reason. As a newly diagnosed celiac, chances are you have vitamin and mineral deficiencies that will soon resolve with healing and provided you do not live on junk food. Plus, when you radically change your diet, you tend to also cut back on calories. Things will even out, but it may take months. Make...
  16. cyclinglady
    Hannah, I am sorry that you are struggling. Please contact your doctors right away. Tell them what you have shared with us. I am sure they can determine if you need to be admitted for your eating disorder. You need help! I care. Celiac disease is a serious disease. Untreated, it can cause cancer or another illness like Crohn’s. Please, ...
  17. cyclinglady
    Hummm, I do not know. I buy my meat from Costco. They cut and grind the beef on site. While they do season some cuts of meat (seasoning does not contain gluten), they do not put anything through the grinder except beef. They do not make sausages. The company did say that they cleaned the lines, but if it were me, I would give that beef away...
  18. cyclinglady
    But really, real food does not have to cost more. Purchasing processed gluten-free soups can be expensive. Any processed food can be expensive. You do not need lots of protein if you are not trying extreme sports. You will need to learn to cook. Start with rice and beans. Eat eggs, fresh veggies or frozen ones. Look for fatty meat on sale...
  19. cyclinglady
    I agree with Ennis. Real food. I fuel my bike rides with things like juicy homemade burger, steak, fish, poultry, bacon, and lots of fat! But take it easy until you feel better. Hard to do, but worth it.
  20. cyclinglady
    It can take a while for the autoimmune reaction to build up antibodies in the bloodstream. It is why a normal “gluten challenge” prior to blood test requires consuming gluten about 6 to 12 weeks (Varies among celiac centers). The longer the time, the better the result because you do not know if you generate a lot of antibodies quickly or not. In as ...
  21. cyclinglady
    Congee is the Asian name for rice porridge. You just use any old rice, just not that instant rice or par-boiled rice (Uncle Ben’s). White is preferred over brown which even takes longer to cook. I used Japanese short grain or Jasmine rice just because I like it and the short grain rice is grown here in California. if you make more than you c...
  22. cyclinglady
    Well, it might just be healing still from active celiac disease or maybe an intolerance to something else. Keep a food journal. It really does help.
  23. cyclinglady
    Looks fine. But are you now having problems with indigestion or heartburn? Is this a new symptom?
  24. cyclinglady
    You just make it with any rice (Not instant) and water. It is called Congee. Bob’s Red Mill actually makes a porridge. The rice has been ground up a bit for faster cooking (like quick oats). I make my rice porridge in my instant pot which I can stick outside on my patio. It is faster and I do not need to watch it cook on the s...
  25. cyclinglady
    You should be fine. One week off gluten should not impact the blood tests. Two weeks is faintly worrisome. If you can, wait until next week. In the meantime consume gluten (1 to 2 slices of bread or equivalent).
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